Anybody had any of these tests - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Anybody had any of these tests

Marymaryd profile image
17 Replies

Hello having to have a load of tests next week MRI Head scan with contrast .Lung function ,Pet ct scan and Eblus camera and another covid swab . Dr did say looked like an infection that has caused collapsed lobe on left lung why do many tests x

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Marymaryd profile image
Marymaryd
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17 Replies
Mauranne profile image
Mauranne

Hello Mary

I have had pet scans and lung function tests a couple of times. Pet scan is like a CT scan except you have a radioactive dye put in your arm an hour before the scan which is quick and painless. You have to lie down for an hour to allow the dye to go around your body. The scan takes about 20 mins or so and it's looking for cancer and any abnormal cells. The scan is painless.

The lung function tests are basically blowing in different ways into a tube that's connected to a computer. It is painless but takes about half an hour. Nothing to worry about.

I have always found the anxiety before the tests is the worst part. I hope all goes well for you.

Best wishes Maureen x

Marymaryd profile image
Marymaryd in reply toMauranne

Thank you for replying if everything had of been ok all this would of taken place last week & id being waiting for results, it’s always a waiting game. X

Ollie13 profile image
Ollie13

Hi well I would totally agree with Mauranne re tests. I've only every had MRI and PET scan. Neither hurt it looks like your having a full MOT. All the tests are painless but no doubt you will feel really anxious before each test its quite normal . Good luck with all the tests and 🤞 for results xx

Marymaryd profile image
Marymaryd in reply toOllie13

The consultant had said after a ct scan thought it was infection but lung has collapsed slightly so the extra tests are to make sure there’s nothing hiding it’s just thinking about it now & getting past the covid test again on Tuesday . Hope your well x

Ollie13 profile image
Ollie13 in reply toMarymaryd

Lets hope all the tests come back negative. 🤞 for your covid test it's a nightmare having a positive test when you have no symptoms 😞. I'm as well as can be finding Radiotherapy hard going so painful to swallow but now prescribed medication to help the pain. Stay safe and good luck for the tests xx

Marymaryd profile image
Marymaryd in reply toOllie13

Thanks you xx

Schoolta profile image
Schoolta in reply toOllie13

Hello due for my Ebus tomorrow morning. Pet scan wasn’t too bad x

Ollie13 profile image
Ollie13 in reply toSchoolta

Good luck with the Ebus test though not sure what it is. Didn't think you would have any problems with the PET scan it's just waiting for all the results that I found hard. Good luck xx

JanetteR57 profile image
JanetteR57

As others have said, there a 'bundle' of tests they do when things don't look quite right - just as much to eliminate more serious causes as to identify what the problem is to allow appropriate treatment. I've had PET/CT and lung function tests many times - I've had bronchoscopies several times which is often done for similar reasons as the electrobronchial ultrasound (EBUS) test to see inside the lungs/airways. Many people have had lung problems from pneumonia, covid or other conditions so determining what exactly the damage is can result in bespoke treatment. Those of us with longstanding lung issues (I had half my left lung removed in Dec 2010 and diagnosed with lung cancer in Jan 2011 and hospitalised several times since 2015 with different chest infections) have to get used to the waiting game - as it's been part of my 'treatment' ever since - as considered 'active surveillance'/vigilance. hope you can find a way to distract yourself as one thing I've had to learn over the years is patience - having the scan/test is just the start - waiting for the results, them being coordinated by the GP or consultant so they can explain them to you and organise the next step is another... good luck. You'll see from this link there are a plethora of various tests just as much to determine what it isn't as what it is.... roycastle.org/about-lung-ca...

Marymaryd profile image
Marymaryd in reply toJanetteR57

Thank you for replying I’ve an appointment to see consultant on the 21 st. April she is interested in the pet scan & Ebus the MRI on head she said was protocol so maybe it is an mot I should feel lucky as everything is being thrown at me for my benefit. Thank you hope you are feeling well xx

JanetteR57 profile image
JanetteR57 in reply toMarymaryd

Yes, thanks - it's a good way to look at it - checking over things in detail - I was back at work and swimming 3 months after my surgery and worked, swum, travelled ever since. hope they find out the issue soon and you can get some treatment. good luck.

Marymaryd profile image
Marymaryd in reply toJanetteR57

Thank you x

Chester1967 profile image
Chester1967

Just wanted to wish you good luck for the test 🤞🤞 hope all goes well

Marymaryd profile image
Marymaryd in reply toChester1967

Thank you will be🤞And a lot of prayers x

Chester1967 profile image
Chester1967 in reply toMarymaryd

How did you get on with your tesis

Schoolta profile image
Schoolta in reply toChester1967

Hello my breathing tests got cancelled while I was there answering questions. COVID swab came bk positive again but the Dr has argued I need the Ebus doing so that is planned for tomorrow morning really scared it might hurt. So fingers crossed x Thank you for asking x

Chester1967 profile image
Chester1967 in reply toSchoolta

Your very welcome and 🤞🤞

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