I have a friend at work whos daughter suffers from FND. I have been doing a lot of research in to CBD oil and its benefits. I was doing research for her and ended up here. There is a lot of science about our Endocannabinoid system and how CBD oil affects our CB1 and CB2 receptors. If you haven't tried CBD oil I would highly recommend it. Do the research. It is worth it. Make sure what you try is free of toxins and pesticides verified by third party labs. And tested for the amount of CBD and THC, which should be less than .1 %. CBD oil will get you healthy, not high.
Time to consider CBD?: I have a friend... - Functional Neurol...
I definitely think CBD has improved my quality of life. A friend sent me a big bottle of high quality CBD and I took it for a couple months before I was prescribed THC, Honestly I felt nothing from the CBD oil but once I combined it with THC oil it has made a huge impact on reducing seizures. People sometimes ask me if I’m just high all the time and I’m definitely not, i take the smallest doses possible three times a day, 2:1 ratio CBD: THC . As a matter of fact if I’ve accidentally taken too much and gotten high, I feel really really awful. The THC doesn’t work for me alone either, nor does just the keto diet. I get the best results from doing all three together. I’ve gone from 3 seizures a day to being seizure free for two Months!
It has unfortunately had very little impact on my left side numbness and weakness, but I still run, cycle, and swim an hour a day/ six days a week. Some days I’m in the competitive times and other days I just drag the left side of my body.
Oh my god can you tell us more! I have bought love CBD entourage oil 800mg CBD &CBDa from the health food shop in U.K. but that is helping a bit. I can't imagine being able to exercise again, that sounds amazing, how did you do that? Have you always been able to exercise or have you gradually built it up? I so miss swimming and walking but I can't seem to do either without being in bed/tremors/gait/speech problems extreme fatigue afterwards. What is the THC and can you get it in the U.K., I've not heard of it?
The 800 mg CBD is great, it's the strongest and you don't need much of it ( a couple drops three times a day does it for me).
THC is cannabis/ marijuana , I have no idea what your laws are like in the UK. Here in New Mexico a doctor has to prescribe it to you. When I was prescribed it, I really didn't think it would work, but I was desperate. The dosage they gave me was WAY to high, and I was so stoned beyond my mind, it was kind of a horrible and last two days!! But it was the first two days in a row that I didn't have any seizures, so I knew I was on to something. There is a brand that works the best for me (Panaxia, it's medical grade oil) and I don't know what strain of marijuana they use, but it took me months of trial and error and getting information to get my dosage right and use the right combination. There is a whole world of marijuana strains, and some can even cause seizures!
The other very important element is the ketogenic diet. Many people use it to loose weight, I've never lost any weight on it, but I have a low BMI and I just eat as much as my body asks for. You can find lots of information on it online, It's a very high fat diet, low carbs (sad face insert here) I've been on it for nine months, and It's gotten easier over time. I would very much recommend getting a blood ketone monitor, it's so much easier to figure out the diet if you can monitor your progress, otherwise it can feel really confusing.
To answer your question, yes and no, I use to jog here and there, go for hikes etc, maybe a mile a week, if that. If you would have told me last year or even ten years ago that I would compete in a triathlon I would have not believed you. Now I run 15-20 miles, swim a couple miles, and cycle 5 hours, in a week!
It took me about a year to get where I am right now. Things got worse before they got better. I hadn't discovered THC/CBD or Keto diet yet, and my seizures gradually went from once a week to multiple times a day. Some days my tremors were so bad I could barely walk, I was fatigued, nauseated, and just miserable. I just kept pushing myself, if all I could do was walk to the mailbox then that's what I did. I'd get better and I'd get worse, and I just kept going. In November once I was doing the oils and diet, I started improving, by January I had all of that stuff down and I really started training, and slowly I've gotten stronger. I still struggle with left side numbess/tremors/pain, and I've developed scoliosis and sometimes my back is in a lot of pain. My seizures have reduced significantly, I've driving and working again, I look normal to other people. So yes huge improvements but not back to my "normal"
I wish you luck, and if I could get on top of a mountain and tell others my story in hopes that it would help them I would. Please send me any questions!
Wow thank you so much for getting back to me and taking the time to give me such great advice. I have not heard that the Ketogenic diet helping, thank you so much for telling me about it. Do you know if there is something which I can do to help myself I will and I must say my diet is very high carbs as I'm so tired all the time so this sounds very interesting I'm away to research it now. Thanks also for explaining the cannabis side of things