Hi there, I have noticed that there is a persistent theme when reading other people's stories. The theme is that the people treating people with FND somehow believe that CBT is the magical cure (or rather convert back to the dark ages of Conversion Disorder where it was considered hysteria, and caused by someone having a nervous breakdown, thus being caused by an actual event). For many thousands of people this in fact is absolutely not true. People develop FND without having any kind of event or cause. Through my scathing opinion of the medical profession here in Australia (absolute lack of funding for research into treatment programs and my reliance on myself to design my own treatment program) I see this consistent theme of people being treated as hysterical. Or rather people not being treated at all, (as in my own case).
In response to this lack of treatment even though I have written to every single person on all of the Australian lists I found, and even though I am experiencing the worst possible symptoms, I have remained positive, however it really has opened my eyes to how patients are being treated by the medical system and how especially in Australia, the medical system is failing so many people. This, here is largely due to the massive cuts in funding to the Australian Medical Research and Rehabilitation centers, but also if you trace that back is due to the massive cuts in funding to Education. Because researchers come from Universities and universities need funding in order to have the opportunities for researchers. Through research comes new cures and new ways of looking at Conversion Disorder and also comes up with new ways of treating and diagnosing it.
I really feel so sad when I read about another person who is being "fobbed" off by the medical profession because their symptoms are just "way too difficult to figure out".
One thing I have thought about doing is starting a public campaign in Australia to highlight this lack of treatment and to publicize the stories of what patients are experiencing and going through. I did not realize this but I actually do have contacts in the Media. However all of this can only happen if I did not have FND symptoms and therefore only had a tiny window every day in order to function. But it is an idea, and I have seen it work with other Medical disorders (and diseases) in Australia where if media is shone into the darkness, people in high places actually start to do something about it.