Recovering from FND

[LindseyG]

I was diagnosed with non-epileptic seizures/conversion disorder in 2011. I am now healthy, while having FND is still a concern in my life, I no longer have seizures and am using CBD to control them. I did not know anything like this existed back when I was first diagnosed, so I am on here to offer support wherever I can.

[avol18]

Hi, I was diagnosed with FND in 2014 and I have non epileptic seizures since 2011. I'm much better this year but only started to cope with seizures so great to hear that you are healthy! I would love to hear from you more

[Hidden]

That's so amazing to hear! My daughter also started taking CBD and it has been 3 weeks since she ha had a seizure. She has not been diagnosed yet for FND but has all the symptoms. She is now having severe body pain, severe headaches, and completely exhausted all of the time and it completely immobilizes her . The CBD does not seem to be helping that but is sure does make a difference with the seizures !

[Rachh8]

What is CBD?

[Hidden in reply to Rachh8]

LoOk a few posts beneath you for info on CBD

[LadyPink]

What is CBD

[Hidden in reply to LadyPink]

Look at post beneath you to learn more about CBD

[mamadeb]

Hi-is it the medicinal form of cannabis? If it is can you explain a bit more please as I don't know how it works-thank you!

[Hidden in reply to mamadeb]

Cannabidiol, CBD Rich CannabisCannabidiol—CBD—is a cannabis compound that has significant medical benefits, but does not make people feel “stoned” and can actually counteract the psychoactivity of THC. The fact that CBD-rich cannabis is non-psychoactive or less psychoactive than THC-dominant strains makes it an appealing option for patients looking for relief from inflammation, pain, anxiety, psychosis, seizures, spasms, and other conditions without disconcerting feelings of lethargy or dysphoria.

Scientific and clinical research—much of it sponsored by the US government—underscores CBD’s potential as a treatment for a wide range of conditions, including arthritis, diabetes, alcoholism, MS, chronic pain, schizophrenia, PTSD, depression, antibiotic-resistant infections, epilepsy, and other neurological disorders. CBD has demonstrable neuroprotective and neurogenic effects, and its anti-cancer properties are currently being investigated at several academic research centers in the United States and elsewhere.

[LindseyG in reply to Hidden]

Thank you for writing out this reply! I couldn't have said it better myself. I will write a longer post about my journey with CBD soon.

[Hidden in reply to LindseyG]

That would be nice. I would like to know if you had other symptoms like severe muscle pain paralysis ears ringing severe headaches etc. I am hoping that long term CBD will help all my daughters symptoms

[LindseyG in reply to Hidden]

I did not at the time, though I still do get headaches from time to time. CBD has been shown to help both pain and headaches, ProjectCBD is an excellent website I would suggest you look into, as well as medicaljane.com

[Steve49 in reply to Hidden]

Hi.

Sorry I hope that you don't mind me contacting you !!

To date I have had Stroke at 32, following radiotherapy in 2005 I have got chronic pain 24/7.

To date I have had a number off meds that haven't worked.

PI found info on CBDs on the internet & I have just started using it with great effect.

Can I please ask you how you have found it's benefits ??

Sorry but what ways do you find its use in daily life ??

I am trying this in my daily life but I haven't crossed the "bridge"as yet.

Many thanks.

Steve.

[Swim-summer]

Hi my husband has recently been diagnosed with FND and is still having regular seizures. Can you tell me more about how CBD has helped you please.

At present he is working from home but wants to be back in the office in a week's time. Looking forward to hearing from you

[Hidden in reply to Swim-summer]

I posted under mamadeb what CBD is

[LindseyG in reply to Swim-summer]

I began a CBD regimine 6 months ago. Starting with suppositories, 10 mg doses every day. Suppositories are the quickest release as it goes straight to into the blood stream. But there are many excellent ways to use CBD other than that. CBD is still considered Illegal in most states even though it has no psychoactive properties, it's like a strong aspirin. CBD can be ordered online. You could look for a company based in Colorado. The rule of thumb is low dose, go slow. So see if you can get some 10-20 mg pills or suppositories through them and start there. Has your husband looked into the ketogenic diet at all either? Please feel free to message me if you have more questions.

[Swim-summer]

Where do you buy CBD please?

[Hidden in reply to Swim-summer]

Cwhemp.com

[Seaotter2020 Volunteer FND Hope]

Great info. Just a reminder- check your hormone levels too. I had seizures from my pituitary gland shutting off and not producing cortisol. Doctors do not think to have those checked, get your B-12' levels checked too. Good luck to you all with the CBD - keep us informed and if there is good medical research we can add it to the website!

THX

[Rozelle012601]

I am not sure being this is an old post if you are still active. My daughter 17 has had conversion disorder for years with seizures dominant from from ptsd etc. she is on psy meds for MI as well. I was curious to add cbd to help with the conversion disorder. She gets bad seizures and unconscious episodes upwords of 40 minutes as well as transient type seizures for over 25 minutes. All nonepileptic. Thanks.

[Hidden in reply to Rozelle012601]

Hi Rozelle,

I'm struggling with my daughter's recent diagnosis. What you describe above sounds quite a bit like what we are going through. I feel like we are stuck in a no-mans-land between the neurologist and therapists. I notice this post was 9 months ago and I'm hoping maybe you have found some relief since you wrote this and maybe have some tips for my family. I truly hope you are doing well. Heather