baffled

so I went to see the doctor last week as I was getting no better the person I seen was a old fashioned one who actually listened to me,

So basically he said the vaccine has woken some dormant disease in your body and that is what has happened he thinks it is MS

He burst out laughing at the consultants FND label apparently so many more people are being diagnosed with FND and just dismissed so you are of there waiting list,

He is sending me for the tests to confirm MS and will still be going to the Ataxia clinic

The downside is these consultants who have labels me have to confirm MS he can’t do that will be fun

He said he knows of far to many being kicked of the waiting list with the FND diagnosis

So I am making a claim now with the vaccine he said this will probably be your life and the vaccine will finish me as it is eating away at my immune system now but personally I am happy with that with what he said at least I know

[210272]

I'm glad he was honest with you and really hope the damage from the vaccine can be reversed - there must be an antidote. Diagnosing people with FND so they get taken off the waiting lists is not a laughing matter (although I get why he laughed) and I hope he's reported each incidence that he's heard about to the World Health Organisation.

[Lady4]

I found this research but its linked to auto immune diseases after Covid 19 infection:

thelancet.com/journals/ecli...

[210272 in reply to Lady4]

Good find, Lady4 and MS is thought to be an auto immune condition. Interesting that they mention vasculitis since women with vasculitis are more likely to be initially misdiagnosed with anxiety than their male counterparts (see 'what patients can teach doctors about rare diseases' for further information). Meanwhile I wonder if the FND Society or the FND feminists know about the practice of diagnosis people with FND to get them off waiting lists?

[Lady4 in reply to 210272]

And also there is the fact that FND can mimic other diseases (and vice versa) esp MS and epilepsy. I really think the functional (think this is the one where they used visual prompts - could be wrong) MRI should be done as routine, not basic ones.

But I can't help wonder does it really, or is this another way to get the waiting lists down.

[210272 in reply to Lady4]

It's certainly no laughing matter if the FND dx is being given to get people off the waiting lists. I hope Dawn at FND Hope UK knows about this since she's worked really hard to get a care pathway for people with FND in the UK.

[Lady4 in reply to 210272]

Its sad but the care pathway isn't followed and the correct professionals aren't diagnosing.

[210272 in reply to Lady4]

Indeed. Navigating health systems is sooo complicated.

[Shimmyaway]

What ever the end diagnosis turns out to be, at least you are being taken seriously now and not being given the brush off, so hat's off to you for persevering, If it's your immune system that is under attack, try and fight back through your diet. Tim Spector has a lot to say about that and has got a lot of info on Youtube. Do you know how long you will have to wait for the confirmation of one of the likely diagnoses? You are keeping us all in suspense!

[Lady4 in reply to Shimmyaway]

Hi Shimmyaway

I have watched a lot of Tim's dietary blogs as originally signed up for his Covid study and emails and he did a great free study, (pretty sure I signed up for the release of the paid subscription), something to do with an app that scanned the barcodes of food and told us the exact content plus more (a bit vague now). They were really insightful into the workings of our digestion system and gut (think there was one blog about having protein, followed by low fat and then carbs re breakfast, I still have my notes on a scrap bit of paper).