One very confused woman: I am... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,125 members2,680 posts

One very confused woman

Celticat profile image
5 Replies

I am bamboozled by what is causing so much pain in my tired beaten up pain ridden body a year ago I was diagnosed with FND which I knew nothing about as I didn’t know it was an illness untill I googled it but then it left me so confused 😐20 years ago I was diagnosed with ME/chronic fatigue after a bad bout of flu 🤧 which floored me and after that my life was stollen from me robbed of all the wonderful things like gardening, walking dogs 🐶 going on adventures .....more or less trapped to a life indoors apart from the odd day out which left me tired and weak, then 10 years later diagnosed with fibromyalgia the pain worsened to an occasional day with painkillers for the bad pain untill now having to take them everyday but the shit thing about it is it doesn’t take all the pain away just the worst of it, it took me a long time to get it through my head that I couldn’t do the things I loved to do but as hard I tried the harder I was knocked back with fatigue and pain year after year of trying but no improvement just a steady decline of poorer health, I miss seeing family 😭 friends I used to have are long gone, I am now trying to do things that make me happy indoors but as an artist when the hands are weak and sore it stops me in my tracks, my head is swimming with ideas but I just can’t lift a pencil then I have to get a bundle of cushions and prop arms head and settle down in the sofa and watch some documentaries thank god for television.

I am very grateful of having the things that so many people don’t have and the trick to a positive mind to improve health is being grateful and taking baby steps on very bad days after all there are people in this world who are much less fortunate and seeing the news there are many terrible events 😱 to prove that.

my mum always used to say “count your blessings and name them one by one” it does help put things in perspective it really does.

5 Replies
angelina22 profile image

Makes me so happy to see that you are practicing gratitude! Keep doing that! It will honestly get you through some of the hardest times, even though you feel there’s no end in sight. I too have been diagnosed with FND and told there’s no treatment or cure (but I’m waiting on an appointment with professor Mark Edwards for a second opinion & waiting on a referral to see a clinical psychologist too) however I want to recommend that you look into Medical Medium, who offers a lot of insight and advice for people suffering from chronic and mystery illness. I’ve been following his protocols and noticed many changes. I can’t believe how much I’ve improved already, however I’m open to the likelihood that healing from this will be a bumpy road. Perhaps his protocols can help you too, who knows. For myself, I felt I’d rather do everything in my power to get better, rather than waiting on doctors and such. Much love to you, I truly empathise with your struggle, more than I can tell you. Keep pushing through.

Celticat profile image
Celticat in reply to angelina22

Thankyou 😘 I am comforted to know I am not alone as much as other fellow sufferers are i’m Sure, Thankyou for your words of encouragement and advice I am very glad that you are getting help from this book it’s very strange you mentioned the medical medium because a few months ago I read something about this that it interested me so much I purchased the kindle book for my iPad but forgot all about it untill you brought it up now I am eager to read it and see if there’s anything I can get from it, I hope you get answers for your own illness and get the help you deserve, Thankyou hugs celticat 🤗 xxx

Justdrea81 profile image


We have very similar stories. I was diagnosed with CFS in 2012. Last year, I battled the "FND" diagnosis and ended up with Fibro and "neurological issues of an unknown cause" (Huh. I guess that's FND, isn't it?) I started in January on Low Dose Naltrexone and it has 100% changed my life. I am back to work in the office 2 times a week. I don't need to spend my entire weekends in bed, so that I can function during the week. It has been amazing for me! I have also read that it is supposed to help FND as well. And my neurological symptoms are greatly reduced on it. I am so grateful.

Jessdonna profile image

I am so sorry for your suffering. I also was diagnosed with ME at 32 now at 47 diagnosed with fnd. I keep seeing a pattern in alot of cases being diagnosed with Me then later in life fnd. There as to be a better answer to this .

Daisy9 profile image

Hi, I can sympathise with how you feel. I too have fibromyalgia, arthritis of my neck, spine, erosive, inflammatory arthritis of my fingers & Functional movement disorder, PNES! The frustration of the limitations this has imposed on me is HUGE!! I take one day at a time and learnt to crochet 😊. I'm thankful for the love & care of my family & close friends.

You may also like...