I came across this group as I was looking for information/ advice about involuntary movements/ epilepsy/ non epileptic seizures
My symptoms initially started back in April 2018 while at work where I went lightheaded, fuzzy head with a throbbing pain on upper right hand side of my head etc , lasting for approx 1h 30 mins. I didn’t think much of it as I thought it could be todo with not eating or drinking enough during the day. The next day before I was due in work, the same thing happened to me again. I phoned 111 and they advised me I get checked out at my local hospital , so I did, had bloods, observations, was examined etc and all came back normal, was told to note my symptoms and nothing to worry about it.
While I was at work a few days later
( I work in a hospital) I had another episode of feeling lightheaded, fuzzy head, throbbing pain to my upper right hand side of my head etc, anyway I ended up going to A&E where again I had all my obs, bloods and an ECG done, all were normal apart from fast heartbeat. So was referred for an heart scan which also came back normal. I kept having these episodes several times a day every day for about 6 weeks. Again while at home one evening I had another episode of these symptoms but had also now experiencing terrible chest pains, and also developed/notice involuntary movements of left arm/ hand, were it looked like I was having some kind of seizure on my left hand side. I do have mild cerebral palsy but these involuntary movements are new and different. Again I was took to A&E were my obs we’re done, ECGs, bloods and a MRI scan and chest X-ray was done, all results were normal. I was discharged later on the evening and was informed that I would be referred to a involuntary movement clinic at another local hospital to see a neurologist.
These last two months I have only been having these involuntary movements on my left arm/ hand were my arm will suddenly just jerk in the air etc, I don’t have any control over these, I was having between 20-24 episodes per day with each one lasting for seconds.
I have seen a neurologist, where I was examined, asked questions/medical History etc was done and in fact had one of these involuntary movements in front of him. I have been seen by two neurologists were one said these are myoclonic seizures and the other neurologist who’s a consultant said they don’t look like myoclonic seizures, and which he now feels are non epileptic attacks which could be linked to stress. ? I was put onto Baclfron 10mg three daily to see if it would help with these involuntary movements.
A couple of days after I saw the neurologist consultant, the attacks that I have, have reduced from 20-24 to currently 15-17 attacks per day. I have also noticed other symptoms since these attacks have reduced- I get like a warm sensation from my head/ or like through my body with some of theses attacks ? My left hand/fingers moves on there own and also feel like my upper left hand shoulder muscles like contract before I have these attacks. Can these be warning signs ?
I am due to have an EEG done towards the end of August 2018
P.s sorry for the very very long message, was wondering if anybody else on here has these similar symptoms? Thanks katie