Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,312 members • 4,352 posts

All posts for June 2013

Behcet's disease (20 year old female)

Hi, I'm new to this posting but I'm 20 and got diagnosed with this disease about 5 months ago after suffering a cerebral venous sinus thrombosis in September...

Hi, I'm new to this posting but I'm 20 and got diagnosed with this disease about...

lauren92

•11 years ago

6 Replies

Please will people let me know their experiences of Humira - good/bad/side-effects, ta.

satnav

•11 years ago

1 Reply

Had my first Infliximab infusion yesterday at Aintree ...

Didn't feel any different after it , but today not feeling that well and also very tired. I'm sure it was just Infliximab on its own and non of the other...

Didn't feel any different after it , but today not feeling that well and also ve...

SignalBoxer

•11 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Twenty four hours in A&E

Channel 4 are showing the above programme on Wednesday at 9pm and one of the patients being featured has Behcet's worth a watch x

Channel 4 are showing the above programme on Wednesday at 9pm and one of the pat...

ruthbalbirnie

•11 years ago

5 Replies

Lumbar punctures - any advice would be gratefully received. Also problems travelling.

Hi, Was told yesterday by my Neurologist that I have to have a lumbar puncture due to my right leg not working, and I am quite scared. Is it as awful as some...

Hi, Was told yesterday by my Neurologist that I have to have a lumbar puncture ...

Wellington

•11 years ago

8 Replies

Im leaking!!!!:O

Hi everyone, Ive just woken up to a bit of a shock and wondered if anyone else had this problem... I lost around 9 stone in the last 2 years thanks to this...

Hi everyone, Ive just woken up to a bit of a shock and wondered if anyone else...

MusicFreak2396

•11 years ago

7 Replies

How can I move the Drs along?

Hi everyone, I've been lurking on here for a while but I'm going to be brave and ask my own question, it's pretty long so sorry in advance. I have been...

Hi everyone, I've been lurking on here for a while but I'm going to be brave and...

NoodleDoodle

•11 years ago

7 Replies

Hi everyone. Does anyone have any skin problems whilst sitting in the sun? I experienced a rash which looked liked bad acne?

Kerry1

•11 years ago

5 Replies

Leicester patient support group

Hi all Just to let you know we have arranged a patient support group in Leicester and are hoping some of you may be able to attend. The 1st meeting has...

Hi all Just to let you know we have arranged a patient support group in Leice...

swb1

•11 years ago

2 Replies

..on a Happier Note...

Despite my kind of terrible afternoon at my Remicade infusion, I did get to finally see my rheumatologist after waiting over four months to get an appt. with...

Despite my kind of terrible afternoon at my Remicade infusion, I did get to fina...

behcetshurtsbeyondwords

•11 years ago

5 Replies

Need to Vent!

I am so incredibly exhausted right now and my pain is spiralling out of control :( I had my Remicade Infusion today and literally took everything that was left...

I am so incredibly exhausted right now and my pain is spiralling out of control ...

behcetshurtsbeyondwords

•11 years ago

6 Replies

Trigeminal neuralgia

Just been given more tablets to try and ease the pain and was wondering if anyone has tried this drug. It is carbamazepine/Tegratol. I have been reading the...

Just been given more tablets to try and ease the pain and was wondering if anyon...

kenjay

•11 years ago

14 Replies

Hi everyone, just getting over a flare up of mouth ulcers and genital ulcers can anyone tell me if the ulcers down below bleed?

Glitter17

•11 years ago

5 Replies

Bleeding a bit too much...

Hi all; Currently sitting on the bathroom floor after shaving my legs... And I've managed to graze myself a little bit. Didn't think anything of it until I...

Hi all; Currently sitting on the bathroom floor after shaving my legs... And I'...

MusicFreak2396

•11 years ago

3 Replies

Skin punctuation test on your own.

I think I am becoming a hypochondriac, and don't want to go to the doctor for every little thing. So I am wondering if it is possible to take them on your own....

I think I am becoming a hypochondriac, and don't want to go to the doctor for ev...

rolasen

•11 years ago

10 Replies

Hi everyone , i was wondering if anyone knows ...are you allowed food & drink before 1st Infliximab infusion ?

I've got my first Infliximab infusion next Tuesday 11th June at Aintree and I've forgot to ask about eating & drinking before ... And also how did it make...

I've got my first Infliximab infusion next Tuesday 11th June at Aintree and I've...

SignalBoxer

•11 years ago

8 Replies

NEURO BECHET'S

Hi everyone, I would really appreciate hearing from anyone on here who has neuro bechet's. I went to see my rheumy today, who specialises in bechet's. She is a...

Hi everyone, I would really appreciate hearing from anyone on here who has neuro...

pheobe67

•11 years ago

6 Replies

Just wondering if any of you get a cold or gastro, on a scale of 1 to 10 how sick do you all get. AND are you on Azathioprine?

Just wondering how concerned I should be about my daughter getting gastro whilst taking Azathioprine. In the past my daughter normally misses the winter bugs,...

Just wondering how concerned I should be about my daughter getting gastro whilst...

Michja

•11 years ago

5 Replies

A&E being an absolute joke.

Just rushed to A&E after a nose bleed that came out of my eyes!! Still didn't go entirely blind... But pretty darn close. I'm now home. They told me it wasn't...

Just rushed to A&E after a nose bleed that came out of my eyes!! Still didn't go...

MusicFreak2396

•11 years ago

9 Replies

Birmingham support meeting.

Hi everyone, I have been invited to a support group and was told a few of you go to it (Birmingham one) I would like to make some cakes for this support group...

Hi everyone, I have been invited to a support group and was told a few of you g...

MusicFreak2396

•11 years ago

2 Replies

Antibiotics and Cellcept

Hi all, my daughter has yet again had a very bad dose of tonsillitis, we took her to the out of hours doc at 6am this morning, and she was given antibiotics,...

Hi all, my daughter has yet again had a very bad dose of tonsillitis, we took h...

tamirra

•11 years ago

15 Replies

Chest pain???

Hi again, i also forgot to mention ive been getting very breathless with chest pain when i lie down. It gets better as i sit up. I had thought at first it...

Hi again, i also forgot to mention ive been getting very breathless with chest p...

MusicFreak2396

•11 years ago

16 Replies

Just a rant.. because if i dont tell someone.. im going to expode.

Hi everyone, im so sorry to bother you all again. Birmingham CoE Havent yet given me an appointment, and im almost entirely blind in one eye and can only see...

Hi everyone, im so sorry to bother you all again. Birmingham CoE Havent yet giv...

MusicFreak2396

•11 years ago

8 Replies

Search posts

Pinned Posts

See all

Online Behçet's Support Group Meetings

Last call for Secukinumab in Behçet’s trial

Latest poll

See all polls

How long ago were you diagnosed with Behcet's Syndrome?

Vote

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for June 2013

Behcet's disease (20 year old female)

Please will people let me know their experiences of Humira - good/bad/side-effects, ta.

Had my first Infliximab infusion yesterday at Aintree ...

Twenty four hours in A&E

Lumbar punctures - any advice would be gratefully received. Also problems travelling.

Im leaking!!!!:O

How can I move the Drs along?

Hi everyone. Does anyone have any skin problems whilst sitting in the sun? I experienced a rash which looked liked bad acne?

Leicester patient support group

..on a Happier Note...

Need to Vent!

Trigeminal neuralgia

Hi everyone, just getting over a flare up of mouth ulcers and genital ulcers can anyone tell me if the ulcers down below bleed?

Bleeding a bit too much...

Skin punctuation test on your own.

Hi everyone , i was wondering if anyone knows ...are you allowed food & drink before 1st Infliximab infusion ?

NEURO BECHET'S

Just wondering if any of you get a cold or gastro, on a scale of 1 to 10 how sick do you all get. AND are you on Azathioprine?

A&E being an absolute joke.

Birmingham support meeting.

Antibiotics and Cellcept

Chest pain???

Just a rant.. because if i dont tell someone.. im going to expode.

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive