Hi everyone. Does anyone have any skin problem... - Behçet's UK
Hi everyone. Does anyone have any skin problems whilst sitting in the sun? I experienced a rash which looked liked bad acne?
Hi,
Yes, I have had a rash that appears like acne from sitting in the sun but I am on Azathioprine, found out afterwards that you are supposed to avoid the sun. I have never found out if it was my BD or the medication I am taking! Can anyone else help?
I love sitting in the sun but have had to stay indoors with this fabulous weather we are having at the min in the UK 
Can I ask if you are taking azathioprine? Or another one similar to this?
It is a huge learning curve for all of us with this terrible illness.
I haven't mentioned it to my consultant as it only happened the once as since it happened I avoid the sun.
I hope you can resolve your problem 
Xx
Hi Kerry,
I love sitting in the sun but recently I came up with really bad blisters, they were painful and have taken 10 days to heal, I also burnt and I was only in the sun for a short time, first time I have ever burnt. I am on methotrexate and have been for 3 years, so know care must be taken in the sun. Some of the medication we use has all sorts of side effects, not good but necessary.
Hope it gets better quickly for you. X
I have sun sensitivity and it is common with a lot of auto immune conditions and also a side affect of a lot of medications we have to take.
I use very good factor 60+ sunblock which also allows you to tan. It is called Anthelios XL.
Andrea
Hi Kerry,
I have much difficulties with the sun. Photosensitivity was actually one of the first strange symptoms that appeared years ago when I was 15. It began as a "flushed" heat rash that would be brought on by the sun, and I started getting chronic hives as well. I also noticed the rashing (along with acne like lesions and blistering) would also appear in the heat and artificial lighting. I was told that was just chronic idiopathic urticarial causing sun and heat allergies and struggled taking many different OTC and prescription antihistamines for a good while. Things began getting worse for me with the sun, hot lights, and especially the heat, when I started getting really sick from the Behcet's. It came to the point where I was completely heat intolerant-- my body would go into severe attacks just from my body temperature increasing-- the swelling would get so bad that I looked and felt like I was going to explode, I have trouble breathing (feels heavy in my chest and tight like I'm being suffocated), my pain intensifies to the point that I can be screaming in pain, I get severely nauseous and vomitting, and get all kind of skin issues. When I began my Remicade infusions just over a year ago, the only noticeable therapeutic effect I was getting from it was an increase in me being able to tolerate heat (I can now actually open the oven myself and get food in and out or I can stand over the stove to cook my own food!), and with that I also became more tolerable to the sun as well. My rheumatologist explained to me that its not quite like Lupus where the actual u.v rays (I think UVB is especially bad) are involved in increasing disease activity.. but that the sunlight and heat can worsen Behcet's symptoms (especially skin problems) because it causes an immune reaction and also heat causes blood vessels to dilate and swell. He said that once you find the right treatment, you should be able to better tolerate the sun. But I do still try to avoid it and heat as much as possible because I don't want to make myself sicker.
-Jenna
Hi everyone, thanks for answering my question, very helpful indeed. I've always been able in sit in the sun, but I'm not currently taking anything to control the bd hence why all my symptoms are worsening. Gp put it down to be starting inflammation drug but only took it for 2 days. Does being on a immune surpressent help as that's my next step. I haven't sat in the sun for 24 hours and the lumps and skin is easing but now very itchy. Another enjoyment soon to be banished? I hope not. xxx
