Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for December 2022

Christmas Greetings

Wishing all my MPN friends, a Merry Christmas and a Happy New Year. I don't post often. but read all post each day. Thank you everyone for the help and...

Wishing all my MPN friends, a Merry Christmas and a Happy New Year. I don't post...

AngiP

•1 year ago

1 Reply

To all in usa

Do hope you are managing to keep warm and safe in the areas that have been badly effected by the weather. And plans havnt had to change X

Do hope you are managing to keep warm and safe in the areas that have been badl...

Mostew

•1 year ago

6 Replies

Splenomegaly in Polycythemia Vera: Its Clinical Significance and its Relation to Symptoms

Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced...

Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark,...

Manouche

•1 year ago

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Merry Christmas

Merry Christmas and a blessed 2023 to everyone! I don't PST often but read most and have been truly blessed by so many. Thanks for being here!

Merry Christmas and a blessed 2023 to everyone! I don't PST often but read most...

Thankfulone

•1 year ago

2 Replies

Merry Christmas!

It's very nice that everyone here wants to help each other with good advice and their experience. Merry Christmas everyone and good health in the New Year!...

It's very nice that everyone here wants to help each other with good advice and ...

Softy125

•1 year ago

1 Reply

Happy Christmas

Would like to wish you all a Happy Christmas and Happy 2023.Thank all of you that have helped me this past year. Smudger

Would like to wish you all a Happy Christmas and Happy 2023.Thank all of you tha...

Smudger0122

•1 year ago

4 Replies

Change of medicatuon

Hi everyoneI'm new to this site. I was diagnosed with ET about 6 years ago and I've been taking Hydroxycarbamide since then, which has more or less kept my...

Hi everyoneI'm new to this site. I was diagnosed with ET about 6 years ago and I...

Sivasi

•1 year ago

19 Replies

Christmas

Hi everyone wishing you all a merry Christmas and a happy new year Hope you all have a great time and thanks for being such a wonderful helpful bunch...

Hi everyone wishing you all a merry Christmas and a happy new year Hope you al...

Poppy6060

•1 year ago

3 Replies

Greetings to all

hello people - as we continue to ‘muddle along’ I am sending wishes to all on this wonderful forum for a happy and peaceful Xmas/holiday season - also to thank...

hello people - as we continue to ‘muddle along’ I am sending wishes to all on th...

amhann

•1 year ago

3 Replies

To MPN broders and sisters!

Wishing you, Merry Christmas and, best ever, healthier and prosperous New year!

Wishing you, Merry Christmas and, best ever, healthier and prosperous New year...

light

•1 year ago

2 Replies

CoVid and Polycythaemia Vera

I tested positive on 17 December 2022 and still showing positive after further test on 23 December. Has anyone with PV fell to CoVid and how long did it take...

I tested positive on 17 December 2022 and still showing positive after further t...

Edinburgh1953

•1 year ago

7 Replies

positive Covid

hi all first hope you have a Happy Christmas I’ve had 6 Covid vaccines and tested positive on Wednesday my Haematolygist wouldn’t even speak to me from the...

hi all first hope you have a Happy Christmas I’ve had 6 Covid vaccines and tes...

PhilReade

•1 year ago

23 Replies

Flu jab spacing

Should those of us classified as extremely vulnerable have second flu jabs three months after the first?

Should those of us classified as extremely vulnerable have second flu jabs thre...

Paul123456

•1 year ago

2 Replies

Vitamin K2

Anyone taking vitamin K2? I would like to hear about your experience.

Softy125

•1 year ago

5 Replies

greetings

seasonal greetings to you all. And thank you for your ongoing support . Carolyn x

seasonal greetings to you all. And thank you for your ongoing support . Carolyn...

Mostew

•1 year ago

9 Replies

Stem Cell Transplant (stc) after care

Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the...

Can someone who has been through a sct, or their carer, give me info about the t...

Scaredy_cat

•1 year ago

9 Replies

MPN Voice Christmas message 2022

Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing year, we started off the year with...

Hello everyone It’s that time of year again for the round-up of the MPN Voice y...

Mazcd

Partner•1 year ago

9 Replies

Besremi

Hi all ! Anyone on 500 mcg of Besremi and feeling terrible bone and muscle pain?? Especially at night?? I also recently had a very bad gum infection in my...

Hi all ! Anyone on 500 mcg of Besremi and feeling terrible bone and muscle pain?...

Ggrana3192

•1 year ago

10 Replies

bloods up date!!!

thanks to everyone for your reply’s managed to get sorted and have to have two venesections after Christmas which seems extreme to me but suppose they know...

thanks to everyone for your reply’s managed to get sorted and have to have two ...

Badger1

•1 year ago

2 Replies

Can Anyone Recommend Helpful Books?

Hello Dear MPNers, Have any of you read any books that you would recommend in relation to living with a chronic illness especially chronic lifelong cancers?...

Hello Dear MPNers, Have any of you read any books that you would recommend in r...

ETphone_home

•1 year ago

5 Replies

Starting Besremi Next Week

Hi all, Thank you for all the posts of your journey with PV as they are really helpful for me. I was diagnosed with PV June 2022. My HCT and platelets have...

Hi all, Thank you for all the posts of your journey with PV as they are really ...

MrsBerri

•1 year ago

9 Replies

MPN Voice Recipe Book

MPN Voice provides support to patients and their families across the world who have been diagnosed with rare blood cancers called Myeloproliferative Neoplasms....

MPN Voice provides support to patients and their families across the world who h...

Mazcd

Partner•1 year ago

8 Replies

Platelet's creeping up

Latest CBC Hematocrit 44.7 Platelet 703 Hgb 12.8 WBC 12.4 RBC 5.90 First time I have been in the 700 range for Platelet's. Entered 600 range February of...

Latest CBC Hematocrit 44.7 Platelet 703 Hgb 12.8 WBC 12.4 RBC 5.90 First t...

wateron

•1 year ago

8 Replies

Is bone and joint pain with PMF normal?

Hi I have intermediate PMF, diagnosed 10years ago, now 71. Not requiring any treatment, but finding overall bone and joint pains increasing, especially after...

Hi I have intermediate PMF, diagnosed 10years ago, now 71. Not requiring any tre...

Itch

•1 year ago

8 Replies

increased white blood cells

what makes your wbc increase in polycythemia

Anzo

•1 year ago

6 Replies

Platelet Numbers Increasing for the Better

Hi all, I wrote back a month ago worried about my lowering platelets and the doctor taking me off Besremi. My last injection was early November 500 mcg. My...

Hi all, I wrote back a month ago worried about my lowering platelets and the doc...

marlenablue

•1 year ago

4 Replies

Resveratrol and ET

Hi everyone, I’m wondering whether anyone has tried the natural phenol, Resveratrol, to help their platelet reduction? I’m calr positive ET on Hydrea which I...

Hi everyone, I’m wondering whether anyone has tried the natural phenol, Resverat...

myllo

•1 year ago

8 Replies

covid vaccine induced platelet disorders

https://justthenews.com/politics-policy/coronavirus/fda-researchers-find-pfizer-covid-vaccine-linked-blood-clots-ages-65 I was diagnosed 6 months after...

https://justthenews.com/politics-policy/coronavirus/fda-researchers-find-pfizer-...

patriciapugliese

•1 year ago

33 Replies

dizzy, ET , aspirin and Peg interferon

Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL...

Every so often I get bouts of dizziness. Often associated with nasal congestion ...

Sprat19

•1 year ago

5 Replies

bloods

hi can people tell me how long it usually is between blood checks please I’ve wait 17 weeks this time usually 8-10 weeks bloods were fine except haematicrit...

hi can people tell me how long it usually is between blood checks please I’ve w...

Badger1

•1 year ago

17 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2022

Christmas Greetings

To all in usa

Splenomegaly in Polycythemia Vera: Its Clinical Significance and its Relation to Symptoms

Merry Christmas

Merry Christmas!

Happy Christmas

Change of medicatuon

Christmas

Greetings to all

To MPN broders and sisters!

CoVid and Polycythaemia Vera

positive Covid

Flu jab spacing

Vitamin K2

greetings

Stem Cell Transplant (stc) after care

MPN Voice Christmas message 2022

Besremi

bloods up date!!!

Can Anyone Recommend Helpful Books?

Starting Besremi Next Week

MPN Voice Recipe Book

Platelet's creeping up

Is bone and joint pain with PMF normal?

increased white blood cells

Platelet Numbers Increasing for the Better

Resveratrol and ET

covid vaccine induced platelet disorders

dizzy, ET , aspirin and Peg interferon

bloods

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