Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for December 2022

Hot spot on foot ??

hi folks. I hope everyone is having a great weekend. Little question-has anyone experienced, what I can only describe as a hot spot on top of my right foot....

hi folks. I hope everyone is having a great weekend. Little question-has anyon...

•1 year ago

Precautions while on Hydrea

Anyone heard that our bodily fluids could be carcinogenic to others while on hydroxurea? If so what precautions are you taking? I’m on Hydroxurea for last...

Anyone heard that our bodily fluids could be carcinogenic to others while on hyd...

•1 year ago

(Originally posted by Hunter) "Recent forum presented by our friends at MPN Advocacy & Education International"

Hunter found this presentation:...

Hunter found this presentation:...

•1 year ago

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Emergency Room Visit: Besremi and Afib?

It was a stressful week last two weeks as my husband had open heart surgery on November 21 and I'm taking care of him at home now. Last night around 9pm I...

It was a stressful week last two weeks as my husband had open heart surgery on N...

•1 year ago

Hydroxy - back & leg ache

Hi Hopefully someone can help, I was diagnosed with ET Jak2 back in 2017 at the age of 39. Everything has been fine, levels always around 580 mark or below...

Hi Hopefully someone can help, I was diagnosed with ET Jak2 back in 2017 at the...

•1 year ago

myelofibrosis

Is anyone else here on" watch and wait ", am a bit unsure why treatment isn't started,forgot to ask my consultant cos I wasn't thinking straight.

Is anyone else here on" watch and wait ", am a bit unsure why treatment isn't st...

•1 year ago

High Platelet count

Can anyone advise how to lower the platelet count and is Asprin advisable? What foods to avoid etc

Can anyone advise how to lower the platelet count and is Asprin advisable? What ...

•1 year ago

Boston MPN Patient & Caregiver Program - presented by MPN Advocacy & Education International

Recent forum presented by our friends at MPN Advocacy & Education International https://www.youtube.com/playlist?list=PLAp-6okGmIVy2frAJoiNvEV6gROZMkLbF

Recent forum presented by our friends at MPN Advocacy & Education International ...

•1 year ago

Low Platelets

Hi all, I was diagnosed with PV about 10 years ago with platelet counts in the 800-900 range. About 3 years ago, my white blood cell count started creeping up...

Hi all, I was diagnosed with PV about 10 years ago with platelet counts in the 8...

•1 year ago

Starting low dose Interferon Pegasys

Currently taking 1500mg a day of Hydrea but platelets are still high. After years of consideration my Dr ordered low dose Interferon today (hoping my insurance...

Currently taking 1500mg a day of Hydrea but platelets are still high. After year...

•1 year ago

Raised platelets, JAK 2 Alternative drugs to Hydroxy..

I am 74 and have been diagnosed with JAK2, for 4 years. In reality I have had this condition for longer. Diagnosis only came after thrombosis and a blood clot...

I am 74 and have been diagnosed with JAK2, for 4 years. In reality I have had th...

•1 year ago

Could ET mask a diagnosis of Vitamin B12 deficiency/Pernicious anaemia?

I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency....

I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological typ...

•1 year ago

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Switching to Interferon

Did my labs this week and my platelets were in the the 900,000's. Trying to factor in why they continue to go up but I have a feeling the Hydrea isn't doing...

Did my labs this week and my platelets were in the the 900,000's. Trying to fact...

•1 year ago

travel insurance

I know others have aske but can’t find posts . Has anyone been to America from Uk recently. ? Which is cheapest insurance company. . Had a quote fore...

I know others have aske but can’t find posts . Has anyone been to America from ...

•1 year ago

myelofibrosis

Thank you everyone for your replies, advice,and links to further information, I am most concerned about the prognosis which differs depending what site you are...

Thank you everyone for your replies, advice,and links to further information, I ...

•1 year ago

High platelets from ET and increased Histamine levels

Does anyone with high platelets experience food allergy problems related to high histamine levels

Does anyone with high platelets experience food allergy problems related to high...

•1 year ago

raised potassium levels

I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500...

I have just seen this post from FB for ET patients…. Anyone see an increase in ...

•1 year ago

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