I’m new to site. Diagnosed with JAK 2 ET ABOUT 9 months ago . I’m trying not to take chemo drug . Platelets rose to 920 so decided if still up a month later would take hydroxycarbamide BUT down to 760 ! A month later up to 820 . Now feeling disheartened tired of trying
Taking CBD OIL high dose. Curcummin high dose Vit d. Rishi mushroom capsules
Seeing Ayurvedic practioner .
Has anyone found platelets fluctuate ?
Apart from a few toes purplish at times and a new rash on back I don’t have symptoms
Would appreciate being in touch with others who are trying( or did try) alternative treatments