guid new year: TO all on MPN VOICE happy new year... - MPN Voice

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guid new year

Scottishterrier profile image
6 Replies

TO all on MPN VOICE happy new year here's to health and happiness and one tip do not worry about your MPN unless your consultant says there is cause to worry and also pray to all our Scottish MPN'Rs we get more MPN nurse Specialists so with enough pressure on Jean freeman she might listen and give our campaign the green light

lots of love Scottish Terrier

ps Not forgetting two unsung heroes Maz and Nona thank you for a wonderful job you do

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Scottishterrier profile image
Scottishterrier
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6 Replies
Ebot profile image
Ebot

Happy New Year! And here’s hoping your campaign succeeds. Nothing like a terrier! 🥂🥂

EleanorPV profile image
EleanorPV

Can you pm me more info?

Scottishterrier profile image
Scottishterrier in reply to EleanorPV

Hi Eleanorpv

hope you had a good new year what I am trying to do is get more MPN nurse specialists in Haematology clinics as they are spot on and have the knowledge a consultant has if the consultant gets called away the MPN nurse specialist can stand in for them so clinic does not run late they are brilliant we need more in Scotland and also if you go to see some GPS you ask them about your MPN and the blank look comes over their face and they say mention it to your consultant but have to approach your local MSP to state our case

best wishes Scottish Terrier

EleanorPV profile image
EleanorPV in reply to Scottishterrier

Hi Scottish Terrier, Not sure what I can do to help the rest of Scotland, I’m lucky enough to have a very knowledgeable MPN clinical nurse specialist. Maybe they could do with more money for another member of CNS team or cover for holidays or sick leave. I’m involved in a project to free up all cancer CNS’s time, at my hospital. Watch this space to witness the impact.

Scottishterrier profile image
Scottishterrier in reply to EleanorPV

We had a fantastic one she left getting a great job her replacement was either pregnant at her interview or after the interview but now we do not have one in place boy do we miss our old one

best wishes

Scottish Terrier

EleanorPV profile image
EleanorPV

It’s interesting the different service we receive across Scotland

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