Hello and Merry Christmas: Hi all, I was... - MPN Voice

MPN Voice

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Hello and Merry Christmas

Rae25 profile image
17 Replies

Hi all,

I was diagnosed ET JAK2+ last month and joined this forum a few days ago.

I just want to wish everyone a Merry Christmas.

I’m looking forward to getting to know you all as we go through our journeys together.

Have a wonderful day ☺️

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Rae25 profile image
Rae25
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17 Replies
Rachelthepotter profile image
Rachelthepotter

Hi. Welcome. I’ve been a member for nearly 3 years, and value this group: we are an amazingly diverse bunch, and have every variety of MPN, and every variety of doctor and healthcare system to deal with.

I have myelofibrosis, ( MF) and live in England. Three years post MPN diagnosis. Living as full a life as I can. All the best.

Rachel

Lifam profile image
Lifam

Welcome and Merry Christmas to you too. I joined this year, very helpful and friendly group. All the best.

Bohus profile image
Bohus

Hey! And merry Christmas! I love this place! I've got ET, three months since diagnosis and still trying to figure out what it means.

Rae25 profile image
Rae25 in reply toBohus

From what I can see there’s lots of helpful information which is great. My haematologist pretty much gave me my diagnosis and then called in the next patient, so I’ve had a lot to learn about by myself. Let me know if you do figure it out as I’m trying to do the same 🙂

Bohus profile image
Bohus in reply toRae25

The same happened to me as well, I had no idea what ET was. I googled it at work later the same day and I realized I had cancer(!). However, it is starting to sink in now and I have a game plan I think. The positive side for me is that a lot of my weird health issues finally has an explanation and Im not a hypocondriac😄

Rae25 profile image
Rae25 in reply toBohus

Yes, my daughter googled it when I arrived back to work (we work in the same place) and thats when I realised too. I ended up leaving work and going to my best friends for moral support/vodka 😆

Lemon123 profile image
Lemon123

Hi Rae 25

Merry Christmas 🎄

Welcome to this friendly and supportive group. I was diagnosed with ET Jak2+ about 18 months ago.

I hope you had a great day yesterday.

Rae25 profile image
Rae25 in reply toLemon123

I wasn’t at all prepared for Christmas this year as I was preoccupied with visits to the hospital and my eventual diagnosis, but I managed to have a lovely day with my husband. Although much quieter than normal, it was just what was needed. I hope you had a good one too.

Bears23 profile image
Bears23

Welcome, this is a great group that is always here to help answer questions and for support! ET Jak2+. Happy Holidays!

Anag profile image
Anag

Merry Christmas Rae25,

Welcome to our wonderful circle of support, info and love. We are all happy to share our experiences, lives and insight as well as our friendship.

Anag🙂

stillkicking profile image
stillkicking

Hi Rae,

I was diagnosed with ET over Christmas/New year 3 years ago, and it was a lot to take in! Very pleased that you have found this forum as you will find a lot of support here and help with understanding your medical condition.

Kind Thoughts and all the best for Christmas and the new year!

Peter

Rae25 profile image
Rae25 in reply tostillkicking

It certainly was a lot to take in and I’ve certainly had a quieter Christmas than usual because the focus wasn’t there. Looking forward to making up for it next year!

Thank you for your kind wishes and I wish you a fantastic new year too.

Cja1956 profile image
Cja1956

Welcome! You will get a lot of support and good advice here. I had ET for 11 years and I just found this site last year when I started feeling worse and people encouraged me to get a second opinion. In September I found out I had myelofibrosis but now I have a really great doctor who is treating me correctly for the first time in a long time.

I wish you all the best on your MPN journey.

azaelea profile image
azaelea

Welcome Rae. I have ET JAK2 diagnosed 18 months ago. This is a lovely friendly group to chat with and bring your worries to. We are all going through it together and it's good to share any worries. Wishing you all the best in 2020. Just seen your post and glad you had a nice quiet Christmas. Fran

Jlah profile image
Jlah

Hello. Glad you had a lovely Christmas Day. Also jak2 + diagnosed October 2018. This forum is a godsend. Jx

Rae25 profile image
Rae25

Thank you all for your welcomes and kind wishes. It’s reassuring to know how knowledgeable and supportive everyone here is.

Devilgirl profile image
Devilgirl

Welcome to the group. I was diagnosed in January & joined soon after having spent last Christmas waiting for results. I don't post often but regularly look in as there is always lots of good advise. Glad you had a good Christmas x

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