Posts - MPN Voice | HealthUnlocked

MPN Voice

10,784 members • 14,980 posts

All posts for August 2017

Oregano oil

Hi everyone. A long shot but hope it reaches the person who wrote about taking oregano oil as an aid to infections. I would be interested to know how you use...

Hi everyone. A long shot but hope it reaches the person who wrote about taking o...

Garden987

•7 years ago

1 Reply

PV JAK2

I was diagnosed in April with reasonably high levels...I have had Venesections almost every week since ... My levels are not improving too much... I am getting...

I was diagnosed in April with reasonably high levels...I have had Venesections a...

Sueworthington

•7 years ago

4 Replies

I missed you so I'm back to chat ,,,,how you doing ??

It's 4 years since I was invited by my specialist doctor at Cambridge hospital .to join the majic trial ...I agreed to trial ruxulitnib the then. New...

It's 4 years since I was invited by my specialist doctor at Cambridge hospital ....

Twinkly

•7 years ago

5 Replies

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Vitamin B making urine bright yellow

Are you taking a Vitamin B complex? One of the vitamin B's makes urine bright fluorescent yellow.

Are you taking a Vitamin B complex? One of the vitamin B's makes urine bright f...

Searcher56

•7 years ago

4 Replies

Urine colour

Hi everyone I have et and am on 100grm hu I drink 3 litres of wAter daily but sometimes my urine will be a bright almost fluorescent yellow so I drink more...

Hi everyone I have et and am on 100grm hu I drink 3 litres of wAter daily but ...

Hidden

•7 years ago

3 Replies

polycythemia

i need a good doctor from London for polycythemia.

pragathi

•7 years ago

9 Replies

fatigue

I am so fed up with the fatigue. it is stopping me doing things i want to do and turning me into someone i don't want to be. i just want to get on with my life...

I am so fed up with the fatigue. it is stopping me doing things i want to do and...

Stanley28

•7 years ago

18 Replies

Et

Hi, my name is Sheila and I'm 32 and have just got diagnosed with ET and am CALR positive. My platelets are 1429 at present and my haematologist is happy to...

Hi, my name is Sheila and I'm 32 and have just got diagnosed with ET and am CALR...

Sheila-collins

•7 years ago

8 Replies

Disappointed

Feeling so down just back from seeing my consultant. Plt count hasn't came down much so I'm up to 2 capsules each day also sent away for some liver and thyroid...

Feeling so down just back from seeing my consultant. Plt count hasn't came down ...

Mummyto4c

•7 years ago

25 Replies

Kirklands forum today

Hi all, I've just been to my first forum talk today. Would just like to thank maz and everyone for all the hard work they must do to set these talks up. I...

Hi all, I've just been to my first forum talk today. Would just like to thank ma...

Lainy1

•7 years ago

7 Replies

Hydroxycarbamide and Allopurinol

I collected my first Hydroxycarbamide prescription yesterday from the hospital pharmacy. I was also given another drug called Allopurinol. I wasn't told that...

I collected my first Hydroxycarbamide prescription yesterday from the hospital p...

Connie46

•7 years ago

20 Replies

Aspirin and ibuprofen

Hi im new to ET and on low dose aspirin. I've just had gynae surgery and havw been taking co codamol and paracetamol for pain. I also suffer from arthritis in...

Hi im new to ET and on low dose aspirin. I've just had gynae surgery and havw be...

ladydriva

•7 years ago

14 Replies

PV and car insurance

Hi all Can some one please tell me if I have to declare that I have been diagnosed with PV when I renew my car insurance? I don't feel it affects my driving...

Hi all Can some one please tell me if I have to declare that I have been diagnos...

Hilarya

•7 years ago

20 Replies

Hello Everyone

Hello I was just diagnosed on Tuesday with ET and so I am still trying to find out as much information as I can.

Hello I was just diagnosed on Tuesday with ET and so I am still trying to find o...

Debborah

•7 years ago

12 Replies

Just wanted to share this link

It's always nice reading articles about research being done into MPNs!...

Betsywest

•7 years ago

5 Replies

Good news!

I've been for my colonoscopy this morning (I've had more fun on a Thursday!) Anyway they found a little polyp and removed it. It has to go to the lab but,...

I've been for my colonoscopy this morning (I've had more fun on a Thursday!) Any...

lizzziep

•7 years ago

23 Replies

Dry tap BMB

PV and stable for 12 years until May this year when my Haemaglobin count had dropped and I was told I have anaemia. No other blood measurements indicated any...

PV and stable for 12 years until May this year when my Haemaglobin count had dro...

Dodders

•7 years ago

5 Replies

Question about treatments

Hi, I was diagnosed with Polycythemia . My blood levels are high. Hematocrit at 64 and Hemoglobin at 22. Is it normal for Hematologist not to see me for 4...

Hi, I was diagnosed with Polycythemia . My blood levels are high. Hematocrit at ...

doyle1500

•7 years ago

11 Replies

MPN Forum Glasgow

Did I read there is a Forum in Glasgow next week? Could someone give me details please. Where, when etc. We will. be in Glasgow next week so it would be a...

Did I read there is a Forum in Glasgow next week? Could someone give me details...

JSKly

•7 years ago

8 Replies

bomber55

just curious as to if anyone out there that is taking or has taken Hydrea if has had issues with Bradycardia?

just curious as to if anyone out there that is taking or has taken Hydrea if has...

bomber55

•7 years ago

6 Replies

What on earth is going on???

Hi my friends Sorry to have to seek advice again but I am feeling like pooh. I have just finished my course of antibiotics for my bladder infections but I...

Hi my friends Sorry to have to seek advice again but I am feeling like pooh. I h...

jillydabrat

•7 years ago

13 Replies

Afternoon tea

After the hospital appointment this morning an English afternoon tea with daughters and granddaughters 💕

After the hospital appointment this morning an English afternoon tea with daught...

Sand-Dancer

•7 years ago

16 Replies

Check up

Hospital check up day guys! Wish me luck! Going for a joint appointment with my sister who has ET. Don't know who needs most luck actually - us or our...

Hospital check up day guys! Wish me luck! Going for a joint appointment with my...

Sand-Dancer

•7 years ago

16 Replies

San Francisco Conference

Who else will be attending September conference in SF, CA, USA?

Jerrymohler

•7 years ago

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The Health Benefits of Dog Ownership for MPN Cancer Patients - 2nd in a Series "Natural Healing Ideas for MPN patients"

Hope everyone enjoys the article! - http://www.pvreporter.com/health-benefits-dog-ownership-mpn-cancer-patients/ Regards, David - PV Reporter

Hope everyone enjoys the article! - http://www.pvreporter.com/health-benefits-do...

PVReporter

•7 years ago

5 Replies

Loneliness

Like many of you I suffer from loneliness and isolation. My neighbours occasionally ring the bell to ask if I need any shopping but usually don't see them for...

Like many of you I suffer from loneliness and isolation. My neighbours occasion...

Garden987

•7 years ago

11 Replies

Life limiting

I have not replied to much lately, but do read with interest and not always sure what to say anymore, my best friend died this week following a 5 year battle...

I have not replied to much lately, but do read with interest and not always sure...

ourlife

•7 years ago

7 Replies

Immunosuppressive?

Hi Everyone, after a mild first time shingles outbreak my dentist is hoping I'm not immunosuppressed. I'm ET jak2+ on HU 500 mg 3x wk Is our immune system...

Hi Everyone, after a mild first time shingles outbreak my dentist is hoping I'm ...

DH65

•7 years ago

3 Replies

Anxiety and fatigue

Well I don't know if it related to ET but my anxiety levels are worsening and the fatigue is hitting me every day. Today was my day of work, all I've done is...

Well I don't know if it related to ET but my anxiety levels are worsening and th...

sjdard

•7 years ago

16 Replies

Meniere's Disease !

I was diagnosed with ET Jak2 positive at end of march this year prior to this i had a couple of bouts of vertigo i have been taking Hydroxycarbamide 500mg...

I was diagnosed with ET Jak2 positive at end of march this year prior to this i ...

violeta19

•7 years ago

2 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for August 2017

Oregano oil

PV JAK2

I missed you so I'm back to chat ,,,,how you doing ??

Vitamin B making urine bright yellow

Urine colour

polycythemia

fatigue

Et

Disappointed

Kirklands forum today

Hydroxycarbamide and Allopurinol

Aspirin and ibuprofen

PV and car insurance

Hello Everyone

Just wanted to share this link

Good news!

Dry tap BMB

Question about treatments

MPN Forum Glasgow

bomber55

What on earth is going on???

Afternoon tea

Check up

San Francisco Conference

The Health Benefits of Dog Ownership for MPN Cancer Patients - 2nd in a Series "Natural Healing Ideas for MPN patients"

Loneliness

Life limiting

Immunosuppressive?

Anxiety and fatigue

Meniere's Disease !

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