bomber55

[bomber55]

just curious as to if anyone out there that is taking or has taken Hydrea if has had issues with Bradycardia?

[JediReject]

Hi Bomber 55 , , , got to say in all my years taking HU and talking to folk taking it it's a new one on me so would be surprised if it was the cause .Assume it has come on since you started it, I don't recall reading it on the leaflet as a possible side effect but I haven't taken it for a few years.

Cheers Chris

[bomber55 in reply to JediReject]

yes it is new onset- was given all clear by MI Heart Dr. prior to beginning medication have no blockage and most people have EF of 50 % mine was 60-70% with no issues a one time heart spasm which was reason for heart Cath due to elevated levels thought to have been heart attack but further testing ruled that out. Heart rate in the 50s since starting med -and not on full dose yet started at 500 then 1000mg 3 days a week just recently increased to 1000mg 5 days. Just wondered if anyone else had that issue

[JediReject in reply to bomber55]

Oo well I hope you go on ok with it , , be a downer if increased dose caused any further issue . . Always worrying when a major organ is affected. You might be better on Ruxolitinib (if you are eligible) or an alternative mainstream drug.

Whichever I wish you all the best

Chris

[bomber55 in reply to JediReject]

thanks, will keep watching and having continual discussion with Dr.

[AndyT]

Interesting - I'm on Pegasys rather than HU, for CALR + ET, but also wondering why my resting heart rate is generally low to mid 50s. I'd like to think it's a good sign but being in my early 60s and not particularly fit I don't think I can put it down to tip top condition!

I don't have any previous records to refer to so maybe it's always been my resting rate but I'm planning to get it checked out just in case it's a sign of something else.

Good luck!

Andy

[bomber55]

never hurts to get it checked out-we are our best advocates-as a breast cancer survivor of 16 years they also put me on a drug to reduce chance of recurrence but increased my trigricerlites for 2 years was to take 5 years so quit those they eventually went down thankfully