Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for May 2015

Hydroxycarbamide muscle pain

I was put on hydroxycarbamide in February. By mid March I was getting extreme muscle pain. I have been signed off sick for past 3 weeks as the pain in my...

I was put on hydroxycarbamide in February. By mid March I was getting extreme m...

•9 years ago

Bone marrow

Afternoon from sunny kent ! Does a true diagnosis of ET or PV mean a BMB, is done to most people with elevated platelets and jak2 postive results 😙

Afternoon from sunny kent ! Does a true diagnosis of ET or PV mean a BMB, is don...

•9 years ago

ID Med Alerts?

Morning everyone , does anyone wear a med alert ? for awareness when out of fact we have an MPD and at risk of bleeding in case of accidents etc and if so...

Morning everyone , does anyone wear a med alert ? for awareness when out of fact...

•9 years ago

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Hello Friday ..our thought for the weekend !!

Let us be honest ,it's time to stop deceiving ourselves ,,even if we try to deceive everyone else ...so come to terms and deal with it ,everyday be strong and...

Let us be honest ,it's time to stop deceiving ourselves ,,even if we try to dece...

•9 years ago

Exjade and MF

Has anyone been prescribed Exjade for iron overload? My consultant has prescribed this but reading the notes about it there are all sorts of dire warnings...

Has anyone been prescribed Exjade for iron overload? My consultant has prescrib...

•9 years ago

Events coming up, Chicago and London

I am excited to tell our US and Canadian friends that there will be a new "town meeting" for MPN patients and family members coming up on June 27th at...

I am excited to tell our US and Canadian friends that there will be a new "town ...

•9 years ago

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Do I have mpn?

I have been having my white blood cell count going back & court for the last year between 12,000 & 21,000 I have been seeing a himotologist. I have no...

I have been having my white blood cell count going back & court for the last yea...

•9 years ago

Tattoos

Can I get a tattoo if I av high platelettes?

Can I get a tattoo if I av high platelettes?

•9 years ago

ADMITTED TO HOSPITAL ON GOOD FRIDAY

I was admitted to hospital with a severe migraine and vomiting which started early morning. Mum and sister was extremely worried so decided to call an...

I was admitted to hospital with a severe migraine and vomiting which started ear...

•9 years ago

Insomnia

Okay I stepping out and posting another question and hoping to get some advice. I have never been a normal sleeper and it has always been an issue with my...

Okay I stepping out and posting another question and hoping to get some advice....

•9 years ago

feeling low

hi all I thought brighter weather would make me feel better but cant seem to pick up don't want to go out don't want to be around people feel like have the...

hi all I thought brighter weather would make me feel better but cant seem to pic...

•9 years ago

cook book ideas

Any suggestions on cooks books. with meals that help with MPDs or foods to avoid i want to help myself as much as possible like all i us x

Any suggestions on cooks books. with meals that help with MPDs or foods to avoid...

•9 years ago

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