I was admitted to hospital with a severe migraine and vomiting which started early morning. Mum and sister was extremely worried so decided to call an ambulance as I couldn't even keep water down. Until now I had managed my PV fairly well, although regular venesections had left me anaemic and hydroxy no longer worked for me. I have been a part of the Majic Trial for about 4 weeks. The guys in the ambulance had never heard of my condition and decided not to treat me.
Fast forward - four/five hours later (went into hospital at about 2.00pm) and I still had not been seen by a doctor. My sister was getting frustrated with having to repeat herself all the time about my condition and to make things even worse, I started to experience chest pains. We could see that A&E at Whipps was extremely busy so my sister decided that it was necessary to become a little more 'assertive' and this seemed to work! I was immediately treated for the chest pains, dehydration, migraine and a high temperature.
The next day I was told that I had a heart attack, possibly caused by mayocarditis. I am waiting for some further tests. The experience has left me shaken, shocked and frustrated with the number of times my sister and I had to explain the details of PV. Some of the consultants/nurses at Whipps Cross had never heard of it!!
On Tuesday 7th April I managed to buy the Daily Mail which contained an excellent copy of an article written by Dr Phil Hammond entitled "Survival Guide all NHS Patients Must Read". I don't believe in coincidences and I share this with you all because I think that it is of vital importance to us. Here's the link for those of you who are interested in this. dailymail.co.uk/health/arti...
Hope the link works as I'm not too good at this!
Nowadays I try to stay as positive as I can. I'm still on the Rux which we feel was not responsible for this episode and I'm recovering fairly well. When I was first diagnosed I think that I was in denial and refused to let this condition beat me. Now I'm not sure how I feel. I thank the consultants and nurses for the quality of care given to me at Guys Hospital and I am totally confident that they do the very best they can for me. Let me know what your views are on the article.