feeling low

[Shelly1960]

hi all I thought brighter weather would make me feel better but cant seem to pick up don't want to go out don't want to be around people feel like have the world on my shoulders fatigue very high any advice to feel better please thank you al so much you will never know how much you have all kept me going xx

[Inca]

Just been the same Shelley,sometimes I feel like giving up ,fatigue really gets me down,extra Hydrea for me at the moment as hct way too high,that makes for depression too.I think we must try to look forward,we all get these awful times,you are not alone,tho it does seem so.....I walk and play with my dogs,get outside as much as poss,energy is low like you,legs difficult to move properly,have to rest.....try to do something you want to do,remember everyone on this site will feel for you and will respond.Keep positive,very best wishes,better times will come.

[Shelly1960 in reply to Inca]

thank you your lovely reply made me cry but also feel better and not alone cuddled up in bed with my assistance dog and amos a jack Russell and pet dog layla a lhaso apso Yorkshire terrier cross xx

[Phelpsy]

Hi just a little warm message to say your not alone , I know how your feeling , I over load on greens & Camamile tea ,

Give yourself a pamper ,also little & often walks , breath in the wonderful fresh air into you lungs thinking about wonderful happy Occasions you've achieved in your life , keep focused , we're all here for you & each other x

Pam x

[Shelly1960 in reply to Phelpsy]

Thank you so much

[Sherry2]

Shelly you are not alone. Put on a comedy, definately go out, do whatever works for you....... it will pass. Summer is almost here and once the warmth arrives it will get better...keep posting here, we are here for you

[Shelly1960 in reply to Sherry2]

I hope soxx

[millycat]

Poor you such a lonely horrible feeling , we've all been there, just listen to your body and rest as much as possible , be totally selfish and put yourself first. Give it a few days and you will start to perk up . I get down for about 10 days and am back on course again. Wish you better we are all here spurring you on x x x

[Shelly1960 in reply to millycat]

ty

[Paul42]

Make today about you, relax, read, pamper yourself. Watch a good movie, something feel good...its not christmas but Love Actually is a good bet!. Hope your feeling better soon

[Shelly1960 in reply to Paul42]

xx

[Helpatlast]

Hi Shelly sorry to hear its a rough patch I do feel for you they come on so quick and so often we can't even pinpoint why we feel so rough compared to the previous week - I so know that feeling of no energy don't want people round just want stare into space no energy to cook or anything - good idea to be tucked up with the beauties that are dogs ( their kind brown eyes always work a treat don't they) and just get a little air and stroll when you can and know it will pass again and you will be able to do a little more - we all "get it" on here and that's the biggest help -.fellow feeling from others that live with MPNs.

Jill x

[Shelly1960 in reply to Helpatlast]

ty

[Janet123]

I really understand how you feel. It does all become overwhelming and we can become in a low down mood. But we have to pull up our bootstraps and press on. It is so very hard but we need to do it for ourselves and also those near to us. I actually went out 2 days this week and I had not driven in a month. I was so proud of myself.

I try and that is the best I can do. Live life and love you. I agree with all the others. ..pamper yourself. Do all the things you always wanted to do. It's time. Blessings, Janet

[Shelly1960 in reply to Janet123]

ty

[Twinkly]

Come on now my little treasure ,,special people need special loves and kisses ,,so I send mine to you ..you need a mum to hold you , tell you it will all be alright ,,lucky you here we are ,,we are that soft security blanket ,,you need when these days come to challenge ,you , Now ,,get out of bed .make some warm tea with honey ,,eat some sweet lovely snax ..turn off the telly ..wrap up and take that little dog out to the grass to pee ..when you come home I guarantee. The cloud will have lifted ..nice warm scented bath ,phone a friend to chat ..meet up if you can my lovely ..long time to rest when the resting time comes ,,but not yet "A ". Too much to do ..... Twinkly. Xx

[Shelly1960 in reply to Twinkly]

xxxxx

[gbeam]

Hi Shelly, sorry to hear you are not feeling good at the moment, as everyone else has said we have all been there. i have been off work since December, suffering mostly with fatigue and there is a difference between feeling tired and having now energy, i deal with that by doing 20/30 mins of activity maybe showering or a little walk etc then i rest before i do another activity, but when the total exhaustion hits me i can not do anything! i mostly sleep, i lose my concentration so tv or reading are even hard to muster the energy to do. i have just come out of 10 days of feeling like this and its always the same, i wake up and its my mind i notice first it seems brighter and i am ready to start building my energy up again. it will pass, dont be hard on yourself, enjoy your cuddles from your dogs and the light will shine soon......

[Shelly1960 in reply to gbeam]

Thank you so much

[Inca]

Told you Shelly,every one of us gets the dreadful depression,look how fellow sufferers responded to you,hope you feel better today,in my thoughts,send love and best wishes.

[Shelly1960 in reply to Inca]

ty

[Hidden]

Hi Shelly yes i have those feelings sometimes i ring a friend to take my mind off how im feeling and maybe meet up for girlie lunch , a good laugh helps me , has i dont work im in house alot most of time with my lovely cats!! hence catwoman haha hubby goes out and does his own thing alot , i also started colouring got books of Amazon there for adults and i find it relaxes me ! people tell me theres alot people worse off ,but i know that but.... we all know we are dealing with us eh and of course things could be worse , im taking a low dose antideppresent that takes edge of , The fatigue doesnt help us to get motivated i know but try eh and think of things you enjoy , i like a good film ,music, clothes shopping on a good day!! keep your chin up 🌺🌼x

[Shelly1960 in reply to Hidden]

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[Aime]

Hi Shelley, you poor soul but you are not alone as you have seen already from the amount of replies! Yes the fatigue is awful but you can fight it. My usual process to fight is: a good howl, chocolate, go out for short walk, speak to my best pal who survived breast cancer, spoil myself - buy something I really want if I can go and get it. I know there are people worse off than me. I post on this forum - that's the best way, as I know there a bunch of lovely people who know exactly how I am feeling! This reply is full of hugs and best wishes. My GP too has been quite sympathetic which does make a difference. XxxxxxxxAime

[Shelly1960 in reply to Aime]

ty so much

[Stevesmum42]

Hi Shelly . I sympathise , this is exactly how I felt for a few days last week, alongside feelings of guilt as I was just doing nothing....this is bad when you can see so many jobs to do in the home.... Then on Monday my energy ( such as it is ! ) returned so I went into the garden and got lots of work done. Don't ask me why this slump of physical and emotional occurs. Take heart that we are all understanding theses feelings and know they will pass . As others have said listen to your body. All the best Sandy x

[Shelly1960 in reply to Stevesmum42]

ty

[Hidden]

I hope you feel brighter soon, so nice to see so many replying to you, this forum allows you to be close to, and be supported by many. x

[Shelly1960 in reply to Hidden]

xxx

[Hidden in reply to Shelly1960]

Are you feeling a little brighter now Shelly ,hope so x

[Shelly1960 in reply to Hidden]

slowly getting there thsnk you had a few rough months that have really knocked the wind out of my sails

[Hidden in reply to Shelly1960]

Oh sorry to hear that, not not nice when we get like that , keep your chin up x💐

[Shelly1960 in reply to Hidden]

had problems with op had probem with social service sand care lost my aunt just before my daughters 18th and lost mmy friend to cancer am sure things will get better just a blip I hope xx

[Hidden in reply to Shelly1960]

oh gosh Shelly , i can relate to losing people, my oldest friend also passed away in Feb to Bladder cancer, and so hard for me to comes to term with it she was always there for me through good times and bad . you have my condolences hun in your losses too , just takes time and will get good and bad days for a while x

[Shelly1960 in reply to Hidden]

i thank everyone here for being there for me sure I will bounce back soon but hope people understand why I have been quiet xxx makes me cry what lovely friends I have on here who I have never met I feel so blessed xx

[linds]

Hello Shelley

A big hug first of all and then words to say that I know exactly how you are feeling. Lucky you having your dogs, I said goodbye to my last dog a few years ago and because we moved to an apartment have never replaced her...miss her so much. When I went through a really bad patch for several months last year I used to pretend she was on the bed with me and it helped, just what you are doing. Thing is going out can be difficult when we are feeling really down but we live overlooking the River Thames and I find watching the swans and geese, not to say the cheeky ducks therapeutic. I find a comfy spot to sit and it is amazing how the time flies as I watch. I talk to them also and tell them how I am feeling - making sure no other human is around!

I also write and find that helps. I write how I am feeling, really feeling and then take a match to the feelings and as the paper burns I imagine my thoughts disappearing in the smoke. (Do this somewhere safe like the kitchen sink) When I feel better, I write that too but keep these thoughts and it reminds me that everything passes. If this feeling goes on without lifting perhaps a word with your GP would be useful - mine was very sympathetic and put me on a mild anti-depressant which I still take. I got so anxious, do you?

Above all else, we care about you even if it is only by e mail. Have you tried sniffing lavender by any chance as I find that tremendously soothing. The fatigue is beastly, seems to go with territory and I dread it, but like I said before it will pass, promise.

Lots of good wishes Shelley

Linds xxx

[Shelly1960 in reply to linds]

ty

[Hidden]

Hi Shelley and all the lovely people who responded to you. Two days ago I had an amazing day loads of energy cleaned the whole house. I am now on my second day of being in a black hole. I understand how you feel as does everyone else on here. I'm trying to learn to make the most of the all too rare good days and accept the bad ones as a time to rest and talk to people in this forum. xx

[Shelly1960 in reply to Hidden]

ty

[Shelly1960]

I would just like to say thank you for all who contributed I have been looking and your support was amazing thank you but I have not been up to talking on the board or meeting people but that is getting better slowly hasn't helped as had an op but because I didn't get the care I needed had to use my right arm to soon and have caused an impingement and inflammation which means I cant transfer at present as left side doesn't work properly but daughter put hot tub up in a bid to help me thank you all once again

[Aime]

Oh you poor soul. Try and remember we are all here for you. Impingement and inflammatory problems are rotten to cope with on top of an MPN. I had my right shoulder and collar bone operated on twice to release an impingement which caused a lot of pain and inflammation. Now after cortisone jabs and a year of pain my left shoulder is needing done. Arm v sore to hold things, lie on and use in general. I now tell surgeons what I want done! I know how you feel, hugs sent with this message and loads of sympathy.xxxxxxxx Aime

[Shelly1960 in reply to Aime]

thank you so much hun you always make me smile and ty fr the sympathy I needed that need a kick up the bum now lol xxx

[Aime]

No you don't need a kick up the bum just a few big hugs!xx

[Shelly1960 in reply to Aime]

ty very true xxx