Temperatures whilst on Hydroxycarbamide

[valdowning]

I am on Hydroxycarbamide for high platelets and are JK2 positive,I have been told by my specialist that if I get a temperature I have to go to the hospital right away,has anybody else been told this and has anybody been ? And what where they told.

[Hidden]

Hi valdowning, yes I too was told the same before I went on hydroxy, I've never had a temperature and have been on hydroxy for 7 months , I think it's because if our white cell's drop to low it's harder to fight of infection .

[valdowning in reply to Hidden]

Thank you Jase I haven't been ill either fingers crossed it carries on and we can both be healthy bye for now.

[hackett]

hi Valdowning . I have PV and am JaK 2 pos. A few years ago was taking Hydroxy and after a while it became "toxic" or that is how it was described to me. A few hours after taking it I would get feverish and would have to go to Accident and Emergency where, upon immediate admission they would intravenously run a saline solution into me until the fever dissipated. This was i gather to flush the Hydrox out of the system. Shortly after this I had to change to Anagrelide. I gather intolerance of Hydrox is not that uncommon. It worked well whilst I could tolerate it. I hope that is of some assistance. I wish you well in your journey. Jan of Hackett

[valdowning]

Thank you for letting me know your experiences I have been taking Hydroxycarbamide for about 5 years and have never had a high temperature so just preparing myself incase,I have only joined this group a couple of days ago but can tell it is going to be most helpful,thank you for your kind wishes and sending back mine to you also.

[blulou]

Please do not confuse fever with temperature. Everyone has a temperature even if it is 'ambient' or 'room'. And, yes, early in my treatment of ET, Hydrea caused quite a bit of discomfort. Agrylin (anagrelide) was new then and expensive, but worth it.