So My Mum had her appointment today. It was horrible because I knew something was up when we were put in a room and the doctor attended with the nurse. He has basically said that Mum's tumour in the upper left has grown but there is also more cancer in the chest area. This means the treatment - immunotherapy/chemo is not working. He talked to us and it came across as very negative even though he was lovely. He was not at all optimistic about second line treatment helping mum but said he would try it. He kept saying that we would have to have a conversation about whether to continue treatment if things continued as they are now and more words to that effect. It really felt like he was basically saying, mum's life was very limited.
At the end it was agreed that mum is going to have 5 sessions of radiotherapy on the main tumour to help shrink it and help with the breathlessness and hoarse voice. He then talked about a chemo drug called Docetaxel. I asked him about Nintedanib combined with Docetaxel and he said that he didn't think it would add any benefits for mum. I just don't understand why he is so pessimistic about it helping.
Mum is still determined that she will be here for a few years yet and happy to go for all the treatment they can throw at her.
I just feel so very scared and want to hang on to any thread of hope I can. Her cancer is still confined to the chest which I thought was a positive, but clearly not. I am also feeling angry that they continued with the same treatment for another 3 rounds (3 months) despite the last scan showing marginal growth. To my mind this should have meant a new treatment plan. Why continue with something if it's not helping?
Sorry for the long post. I am all over the place right now.