Target Therapy for NSCLC stage 3 with EGFR mutation ?

[e-priestman]

My husband recently had results confirming the re-occurrence of his lung cancer.

As a second line treatment he is being offered a target treatment. His oncologist is trying to get a new treatment funded for him called Dacomitinib.

Is anyone using this new drug, and if so how is it going so far? We have been told that there are quite a few possible side effects. He is due to find out and possibly start treatment this Thursday.

If funding can not be sort then I think Afatinib will be offered, again has anyone got any experience of using this drug etc.

Thank you for your time and trouble in reading my post.

Emma

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hi Emma,

This is a new treatment so very few people prescribed and interestingly I have been speaking to a gentleman this morning who has been using Dacomitiniib since July 2018(for first line treatment).He said side effects"were next to nothing".He had mouth ulcers which disappeared after 3 months and only side effect which is troublesome is a mild rash and itch on his abdomen.He has been using Aveno cream with some effect.His results showed a marked reduction on his tumor size after two months treatment. He is sharing this information with the Scottish Medicines Consortium.Hope this helps. I have sent you a private message.

Kind regards,

All the team at the Roy Castle Helpline

[e-priestman in reply to RoyCastleHelpline]

Thank you so very much for your reply. It’s so good to hear some positive information.

I will keep you updated on my husbands treatment etc. Hopefully some type of treatment plan should start tomorrow.

Thank you x

[RoyCastleHelpline Partner Ask the Nurse Roy Castle in reply to e-priestman]

Many thanks Emma for agreeing to keep us updated with your husbands progress.You can contact us on our Helpline 0800 358 7200 or email [e-mail]

Wishing him all the best for tomorrow.