Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,257 members • 21,034 posts

Treatments posts

Sort posts by:

Zeposia experience?

I am starting this medication next week (it arrives tomorrow and I want to prepare myself for it). I don't see any recent posts about people who are taking it,...

I am starting this medication next week (it arrives tomorrow and I want to prepa...

Roamerwithroots

•2 months ago

10 Replies

Mavenclad

Hey there, I am looking for some advice and information on Mavenclad. My boyfriend is about to start taking it, and although we have read and found so many...

Hey there, I am looking for some advice and information on Mavenclad. My boyfr...

TeacherAssistant

•4 months ago

3 Replies

MS Treatment

I have been on Tysabri and will be changing medication. My Dr suggested either Mavenclad or Zeposia. Is anyone on either of these medications, and if so, can...

I have been on Tysabri and will be changing medication. My Dr suggested either ...

janetdm

•2 years ago

17 Replies

Want to take advantage of all our features? Just log in!

like live FREE yoga?

if you are interested in a zoom chair, yoga class, my teacher is looking for students for a free class because she could lose her grant if she doesn’t have...

if you are interested in a zoom chair, yoga class, my teacher is looking for st...

Sandydemop

•2 years ago

8 Replies

Gentle Iron

The Gentle Iron I ordered came in today. I read all your advice about taking it and thought the advice was to take it at night. To my surprise, it has B12 in...

The Gentle Iron I ordered came in today. I read all your advice about taking it ...

agapepilgrim

•2 years ago

14 Replies

Which to choose?

Trying to get real world pros and cons of Tysabri vs Mavenclad. If bloodwork all comes back fine, I will have to decide on one of these. Currently on Aubagio...

Trying to get real world pros and cons of Tysabri vs Mavenclad. If bloodwork all...

Cheerio_100

•2 years ago

8 Replies

Alternative/complementary treatments for MS

https://www.verywellhealth.com/cam-for-ms-2440488 i found this article interesting so i thought i would share. I've never tried magnets or tai chi. Any of you...

https://www.verywellhealth.com/cam-for-ms-2440488 i found this article interest...

Sandydemop

•2 years ago

6 Replies

Ocrevus Day!

Hello! I'm new here and relatively new to MS. I was diagnosed in September of 2021 and started treatment with Ocrevus in November on 2021! Anyways, tomorrow is...

Hello! I'm new here and relatively new to MS. I was diagnosed in September of 20...

Mialynn2019

•2 years ago

10 Replies

Tecfidera vs generic Tecfidera

I just found out that my insurance company is refusing to renew my Vumerity perscription and is forcing me to take the generic of Tecfidera. (also found out is...

I just found out that my insurance company is refusing to renew my Vumerity pers...

MElovesthesnow

•2 years ago

24 Replies

Infusion/Spa day

It's Rituxan time 😴 nothing like relaxing in a recliner not having to do anything while amazing nurses take care of you ❤️

It's Rituxan time 😴 nothing like relaxing in a recliner not having to do anythi...

Ellmom

•3 years ago

12 Replies

Prescriptions

Does anyone use GoodRX or SingleCare for their prescriptions? It seems that it would cost me less than my insurance copays. I am worried about transferring...

Does anyone use GoodRX or SingleCare for their prescriptions? It seems that it ...

Lizard50

•3 years ago

14 Replies

MRI Thursday

I finally got my MRI scheduled. My neuro prescribed a brain & cervical spine with & without contrast for both. It's going to be a long MRI this time. Most of...

I finally got my MRI scheduled. My neuro prescribed a brain & cervical spine wit...

hairbrain4

•3 years ago

25 Replies

Lyrica for pain

I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. While it's not perfect, it does take the edge off the pain. Especially sitting...

I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. Whil...

palomino27

•3 years ago

12 Replies

Mavenclad Year 1 complete

Well, it looks like I've been quite fortunate: Cycles 1 and 2 of Year 1 have been completed without noticeable side effects. Phew! Cycle 2 offered a couple of...

Well, it looks like I've been quite fortunate: Cycles 1 and 2 of Year 1 have bee...

Lilith08

•3 years ago

9 Replies

Ocrevus - balance worse 2 months in. Did it improve for you?? What did you do?

Hi all - I am really scared, have finished first 2 sets of Ocrevus on 3rd Sept 2020. Since then my balance has gotten worse (ankles feel like they are...

Hi all - I am really scared, have finished first 2 sets of Ocrevus on 3rd Sept 2...

Megan33

•4 years ago

24 Replies

Ocrevus

Has anyone been on Ocrevus for 2+ years? Do you notice any changes? How are you doing?

Has anyone been on Ocrevus for 2+ years? Do you notice any changes? How are yo...

mamaknits

•4 years ago

19 Replies

Has anyone gotten worse since starting Ocrevus?

I got worse on Ocrevus. I walked into the center to get my first two half doses. Six months later, I had to walk in using a walker. Fast forward another six...

I got worse on Ocrevus. I walked into the center to get my first two half doses....

raegun67

•4 years ago

19 Replies

Homeopathy

Hi, does anyone take homeopathic remedies ? What is your experience with them? Not necessarily for MS but in general. Thanks

Hi, does anyone take homeopathic remedies ? What is your experience with them? N...

Sandydemop

•4 years ago

17 Replies

Is there age discrimination in treatment of MS once you are over 65? Why do doctors want to stop DMTs @ 65-68? Is Medicare causing it?

Does anyone out there have an experience or know of a valid reason why doctors seem to want to stop DMTs for MS once you reach your mid-60s? It's happening to...

Does anyone out there have an experience or know of a valid reason why doctors s...

Sabs2

•5 years ago

23 Replies

Facial numbness - my new normal...

The whole left side of my face is numb from the bottom of my jaw to the top of my cheek bone and it extends to the exact middle of my nose. This numbness...

The whole left side of my face is numb from the bottom of my jaw to the top of m...

lsawyer9971

•5 years ago

12 Replies

Nerve test and it's eye opening!

I had a nerve test yesterday, this after being DXED a year and half ago. Was very eye opening. My Vagus nerve is badly damaged and wonder why it took this...

I had a nerve test yesterday, this after being DXED a year and half ago. Was ve...

Juliew19673

•5 years ago

11 Replies

Great appt with the neuro today

He ran through the same old tests. Everything is stable. Ocrevus is doing its job - no new lesion, no active lesion. I feel much better than prior to DX 18...

He ran through the same old tests. Everything is stable. Ocrevus is doing its jo...

anaishunter

•5 years ago

9 Replies

On Patient Decision Aid in Multiple Sclerosis

This topic is the subject of many posts on this forum: which medicine, what treatment, how to decide, when to switch. We have all faced this challenge,...

This topic is the subject of many posts on this forum: which medicine, what trea...

anaishunter

•5 years ago

5 Replies

All MS sessions (ECTRIMS) now accessible online

If you're up for it, you can access all the sessions from the recent European Committee for Treatment and Research of MS. It's a medical and scientific...

If you're up for it, you can access all the sessions from the recent European Co...

anaishunter

•5 years ago

5 Replies

New data on Ocrevus

this is out of the recent MS congress in Sweden. It's from the pharma company. Hopefully, the full paper will soon be available....

this is out of the recent MS congress in Sweden. It's from the pharma company. H...

anaishunter

•5 years ago

5 Replies

Ritalin + Modafinil?

I've been,"Gone" for awhile but I'm back. I've been dealing with the horrid "Cog Fog." I went to a Neuropsychologist for testing last week (base line test)...

I've been,"Gone" for awhile but I'm back. I've been dealing with the horrid "Co...

Juliew19673

•5 years ago

9 Replies

1st full Ocrevus infusion today - all good

After all the pain to get the treatment approved by my new health care insurance, it finally happened. Nothing to report, it all went fine: - I drove myself...

After all the pain to get the treatment approved by my new health care insurance...

anaishunter

•5 years ago

10 Replies

busy week: MRI, spinal tab, scheduling Ocrevus and more

After all the stress and runaround of trying to get insurance approval to schedule my 2nd Ocrevus treatment, I finally had a week with some good news and...

After all the stress and runaround of trying to get insurance approval to schedu...

anaishunter

•5 years ago

7 Replies

MRI: how yoga & meditation helped

I had an MRI yesterday. I must say it was a lot easier to handle the close to 2 hours process than a year+ ago when I first was diagnosed. I do attribute this...

I had an MRI yesterday. I must say it was a lot easier to handle the close to 2 ...

anaishunter

•5 years ago

5 Replies

US Cancer Patent

For those with cancer, please read the information in the research that supports the patent. I know multiple individuals who have had various types of cancer...

For those with cancer, please read the information in the research that supports...

TracyBelle

•5 years ago

8 Replies

Write a post or ask a question

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

Treatments posts

Zeposia experience?

Mavenclad

MS Treatment

like live FREE yoga?

Gentle Iron

Which to choose?

Alternative/complementary treatments for MS

Ocrevus Day!

Tecfidera vs generic Tecfidera

Infusion/Spa day

Prescriptions

MRI Thursday

Lyrica for pain

Mavenclad Year 1 complete

Ocrevus - balance worse 2 months in. Did it improve for you?? What did you do?

Ocrevus

Has anyone gotten worse since starting Ocrevus?

Homeopathy

Is there age discrimination in treatment of MS once you are over 65? Why do doctors want to stop DMTs @ 65-68? Is Medicare causing it?

Facial numbness - my new normal...

Nerve test and it's eye opening!

Great appt with the neuro today

On Patient Decision Aid in Multiple Sclerosis

All MS sessions (ECTRIMS) now accessible online

New data on Ocrevus

Ritalin + Modafinil?

1st full Ocrevus infusion today - all good

busy week: MRI, spinal tab, scheduling Ocrevus and more

MRI: how yoga & meditation helped

US Cancer Patent

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive