Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,949 members • 20,674 posts

All posts for June 2018

Manage and Advocate for yourself from day 1

Good Morning, I hope everything is still working to your satisfaction, and of course, what is not working you have started looking for a way around it. This...

Good Morning, I hope everything is still working to your satisfaction, and of co...

RoyceNewton

•6 years ago

4 Replies

Symptoms Worse After Ocrevus

Received my seond initial dose in May 2018 and my symptoms are worse - balance, walking and pain.

Received my seond initial dose in May 2018 and my symptoms are worse - balance, ...

dallas343

•6 years ago

47 Replies

Gray Hair

People in this world unfortunately are not knowledgeable about a lot of things. We have a lot of challenges but not that one. Glad you found a place. Take...

People in this world unfortunately are not knowledgeable about a lot of things. ...

lbenmaor

•6 years ago

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Hi

Hi everyone!!!oh praise the Lord, im moved everything orgainized,im lovn new place big change without so, kinda upset heard a few family members are saying...

Hi everyone!!!oh praise the Lord, im moved everything orgainized,im lovn new pla...

luvhair

•6 years ago

9 Replies

TO ALL THE NEWBE’S

Hi I’m ssdw1958 I was diagnosed with MS in 2004 I knew something was not right for at thes 9 years until I demanded something be done to let me know what was...

Hi I’m ssdw1958 I was diagnosed with MS in 2004 I knew something was not right f...

ssdw1958

•6 years ago

4 Replies

What a difference 24 hrs and IV steroids can make.

I'm happy to report my body is alive and working again! I get my last of 3 infusions tomorrow. I have no neuropathy and complete body/mind energy. My balance...

I'm happy to report my body is alive and working again! I get my last of 3 infus...

Juliew19673

•6 years ago

10 Replies

Possible MS

Hi, I was diagnosed with possible MS June 2017. I have been on the roller coaster ride of my life! The neuro that I was seeing told me that I do not...

Hi, I was diagnosed with possible MS June 2017. I have been on the roller coast...

Iluvk9s

•6 years ago

20 Replies

New MS Momentum magazine

Allen, I did the exact same thing. I read the magazine and am learning more about MS than ever. Music, MS support groups. Disappointed to learn the one in my...

Allen, I did the exact same thing. I read the magazine and am learning more abo...

lbenmaor

•6 years ago

4 Replies

The Importance of Exercise

I agree wholeheartedly that exercise is so important. Leslie

lbenmaor

•6 years ago

10 Replies

Sativex

I read about this earlier today and wanted to share with everyone- Sativex is a spray used with other medicine to relieve muscle spasms. It has THC and CBD...

I read about this earlier today and wanted to share with everyone- Sativex is a ...

lbenmaor

•6 years ago

2 Replies

Unable to scratch an itch and get relief

My left side is numb, but I still get itches now and then. When I scratch an itch on my left side, I find I have to scratch REALLY hard to even feel the...

My left side is numb, but I still get itches now and then. When I scratch an it...

livewell2

•6 years ago

3 Replies

I must be having an ms moment, what more can I forget

Okay back to the Magnetic Resonance Imaging machine (MRI) feel free to correct me if that is wrong. Anyway, they measure in TESLA, therefore the higher...

Okay back to the Magnetic Resonance Imaging machine (MRI) feel free to correct ...

RoyceNewton

•6 years ago

1 Reply

MS and the Importance of Exercise

Only 23% of Americans say that they exercise on a daily basis. Are you one of them? Exercise can alleviate fatigue, stress, depression, etc. Just Do It! Now...

Only 23% of Americans say that they exercise on a daily basis. Are you one of th...

carolek572

CommunityAmbassador•6 years ago

8 Replies

I forgot this yesterday, sorry

Advice time again, do you have to get an MRI? They actually have open machines. it is like going into 2 slices of bread. Wide open on the sides, makes it...

Advice time again, do you have to get an MRI? They actually have open machines...

RoyceNewton

•6 years ago

16 Replies

Medicine

I have some questions for you guys i was diagnosed with ms may 2011 and i tested positive for the jc virus. I was on rebif rebidose 22mcg but the made me stop...

I have some questions for you guys i was diagnosed with ms may 2011 and i tested...

Jackjosh

•6 years ago

14 Replies

So very tired

So our journey into the land of divorce continues. Up to this point, I have made 57 trips to the storage unit just working to get MY stuff out of the house. I...

So our journey into the land of divorce continues. Up to this point, I have made...

Amore55

•6 years ago

23 Replies

1 month in since Diagnosis - this is the most baffling diease; doesn't help that DR's do not seem to have any answers that are worthwhile.

I have had Ocrevus, IV steroids; Modafinil and Baclofen for PPMS. None of these have helped, I'm still exhausted, have dropped 15 pounds (I didn't have to...

I have had Ocrevus, IV steroids; Modafinil and Baclofen for PPMS. None of these...

Juliew19673

•6 years ago

20 Replies

Whew! I am finally

Back, i couldn't pay for my phone until today... So very glad to be back! Missed U all very much!! 👍🙏😍😁😻💖Love ya all.---Jazzyinco

Back, i couldn't pay for my phone until today... So very glad to be back! Missed...

Jazzyinco

•6 years ago

10 Replies

Earnings lead to self-reliance

Diagnosed in middle age, makes it so hard to accept not working. As for me, what I did and can continue to do, is a great part of who I am. Boggles my mind...

Diagnosed in middle age, makes it so hard to accept not working. As for me, what...

Elodie1886

•6 years ago

5 Replies

Isolation impact on MS

All people who have caretakers or even someone who really cares have been extremely blessed. Unfortunately, as the youngest child by 15 years plus, no extended...

All people who have caretakers or even someone who really cares have been extrem...

Elodie1886

•6 years ago

7 Replies

A tiny itsy bitsy insignificant piece of Practical ADVICE

Yes, you knew I would say it, so what the hell. GET on a DISEASE MODIFYING THERAPY. I am just so predictable :-) Okay as YOU are still here YOU get some...

Yes, you knew I would say it, so what the hell. GET on a DISEASE MODIFYING THE...

RoyceNewton

•6 years ago

4 Replies

WINNER

Very short but I am going to tell You something that You may have forgotten. YOU are the winning sperm. YOU BEAT all the other sperm to the egg. This can...

Very short but I am going to tell You something that You may have forgotten. Y...

RoyceNewton

•6 years ago

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Strength

Good morning. At this challenging moment in YOU'RE illness, YOU may feel weak, I understand. YOU feel scared, I understand. At this moment I...

Good morning. At this challenging moment in YOU'RE illness, YOU may feel weak...

RoyceNewton

•6 years ago

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A Setback

I have been experiencing problems with regulating my body temperature. On Father’s Day, I lost my ability to walk or stand; my legs kept buckling underneath...

I have been experiencing problems with regulating my body temperature. On Father...

TonyiaR7

•6 years ago

21 Replies

DMSO VIDEO TRYING AGAIN

https://www.youtube.com/watch?v=4XEt0n6LPrk&feature=share

dogdaddy

•6 years ago

2 Replies

Benefits of Water

Just wanted to share: The Benefits of drinking a lot of water- 1. It helps wounds to heal. 2. Promotes mental health. 3. Enhances weakening eyesight. 4.Reduces...

Just wanted to share: The Benefits of drinking a lot of water- 1. It helps wound...

lbenmaor

•6 years ago

3 Replies

Physical therapist

Hi ALL this afternoon I have a physical therapist coming to my house. Does anyone have any tips for me so that I can get more out of this visit. Thanks...

Hi ALL this afternoon I have a physical therapist coming to my house. Does anyo...

ssdw1958

•6 years ago

11 Replies

Sending smiles

I am so sorry about your dog. That just sucks. Being a huge animal lover. I know how bad it hurts. It's not just a dog. It's a family member. I had to have my...

I am so sorry about your dog. That just sucks. Being a huge animal lover. I know...

tombouy46

•6 years ago

5 Replies

Vestibular ocular reflex (VOR) rehab

I am starting VOR rehab to rewire my brain (plasticity) to improve my balance. Apparently it's "hot" in brain rehab centers. Essentially, eye movements. Here's...

I am starting VOR rehab to rewire my brain (plasticity) to improve my balance. A...

erash

•6 years ago

20 Replies

DMSO INFORMATIVE VIDEO

https://www.youtube.com/watch?v=4XEt0n6LPrk&feature=share

dogdaddy

•6 years ago

5 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2018

Manage and Advocate for yourself from day 1

Symptoms Worse After Ocrevus

Gray Hair

Hi

TO ALL THE NEWBE’S

What a difference 24 hrs and IV steroids can make.

Possible MS

New MS Momentum magazine

The Importance of Exercise

Sativex

Unable to scratch an itch and get relief

I must be having an ms moment, what more can I forget

MS and the Importance of Exercise

I forgot this yesterday, sorry

Medicine

So very tired

1 month in since Diagnosis - this is the most baffling diease; doesn't help that DR's do not seem to have any answers that are worthwhile.

Whew! I am finally

Earnings lead to self-reliance

Isolation impact on MS

A tiny itsy bitsy insignificant piece of Practical ADVICE

WINNER

Strength

A Setback

DMSO VIDEO TRYING AGAIN

Benefits of Water

Physical therapist

Sending smiles

Vestibular ocular reflex (VOR) rehab

DMSO INFORMATIVE VIDEO

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2018

Manage and Advocate for yourself from day 1

Symptoms Worse After Ocrevus

Gray Hair

Hi

TO ALL THE NEWBE’S

What a difference 24 hrs and IV steroids can make.

Possible MS

New MS Momentum magazine

The Importance of Exercise

Sativex

Unable to scratch an itch and get relief

I must be having an ms moment, what more can I forget

MS and the Importance of Exercise

I forgot this yesterday, sorry​

Medicine

So very tired

1 month in since Diagnosis - this is the most baffling diease; doesn't help that DR's do not seem to have any answers that are worthwhile.

Whew! I am finally

Earnings lead to self-reliance

Isolation impact on MS

A tiny itsy bitsy insignificant piece of Practical ADVICE

WINNER

Strength

A Setback

DMSO VIDEO TRYING AGAIN

Benefits of Water

Physical therapist

Sending smiles

Vestibular ocular reflex (VOR) rehab

DMSO INFORMATIVE VIDEO

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive

I forgot this yesterday, sorry