Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,211 members • 20,958 posts

All posts for July 2024

Crazy week for me and the hubby...

This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was,...

This week started off fairly well, only for it to start going downhill from Wedn...

Cwright170994

•17 hours ago

10 Replies

ouch!! Headaches

Back in May I had horrible headaches and extreme spasticity in my shoulders and neck. After a week I went to instant care. Dr said I most likely had an MS...

Back in May I had horrible headaches and extreme spasticity in my shoulders and ...

StacyHayward

•1 day ago

12 Replies

Pilates for MS

Hello my fellow kind ms community I was thinking of starting pilates since its supposed to help with your core, strength, balance etc. i want to join a class...

Hello my fellow kind ms community I was thinking of starting pilates since its ...

shamoneldy

•1 day ago

20 Replies

Want to take advantage of all our features? Just log in!

Finally I'm no longer homless...

After just 3 months of going from friends houses to roach motels back to friends for a very long week then finally, finally an apartment came available. Ugggg...

After just 3 months of going from friends houses to roach motels back to friends...

Allen5280

•2 days ago

31 Replies

am i overreacting? probably😎lol. but i thought i’d ask

i was texting with a friend about a concert my husband and I went to(it was the Stones-very amazing)and she wanted to know whether or not we used a chair. i...

i was texting with a friend about a concert my husband and I went to(it was the ...

HouseElfWon

•2 days ago

27 Replies

Poor Stormy

My doggy had to have surgery on his front paw today. He injured it about 10 days ago and I took him to the vet that I have used before. They said just let it...

My doggy had to have surgery on his front paw today. He injured it about 10 days...

Amore55

•2 days ago

27 Replies

Medical Appointment Recording Apps

I ran across a blog that was about the Abridge app, and it sounded wonderful. It's an app that, with the doctor's permission, records your appointment, then AI...

I ran across a blog that was about the Abridge app, and it sounded wonderful. It...

MSFlea

•3 days ago

27 Replies

Hello Peeps of MS and beyond...

Oh i miss you all..such a delightful group even in pain life perplexities...we are not JUST MS but a range of lovely differences and alikes....We ALL wish this...

Oh i miss you all..such a delightful group even in pain life perplexities...we a...

jackiesj

•3 days ago

5 Replies

Just Looking to Chat

Hi everyone. I am a 26 yo Jamaican American female who was just recently diagnosed with MS. To be honest, it still hasn't sunk in yet. Back story: I promise...

Hi everyone. I am a 26 yo Jamaican American female who was just recently diagnos...

Karynjynel

•3 days ago

20 Replies

Weird symptoms / Is this related to MS?

BACKGROUND: Dx in 2012 and on Tecfidera since 2013. No relapses since, thank God! But I have experienced some weird things -some recently and some for a long...

BACKGROUND: Dx in 2012 and on Tecfidera since 2013. No relapses since, thank God...

Klclippert

•4 days ago

9 Replies

We Can’t Allow These Things To Happen! Step Therapy Fail First?

Does anyone receive emails from the different Multiple Sclerosis Foundations with the latest updates concerning policies affecting medications, coverages co...

Does anyone receive emails from the different Multiple Sclerosis Foundations wit...

stepsforNeeC

•4 days ago

11 Replies

raynaud's

hello all. i'm struggling with raynaud's, sometimes daily. oddly, sulphates trigger it with me, though i'm mostly reading about temp changes and things like...

hello all. i'm struggling with raynaud's, sometimes daily. oddly, sulphates trig...

Blanketttime1

•4 days ago

6 Replies

Sale on Emergency Medical ID Items

Do you need an emergency medical ID? There are a lot of them out there, from simple dog tags at GetMyID.com, to new items with a QR code that can be scanned by...

Do you need an emergency medical ID? There are a lot of them out there, from sim...

CatsandCars

•6 days ago

3 Replies

Good Morning Everyone 🥰

Hope everyone is doing well and staying cool in this heat wave 🥵 Been in the 💯’s here in Idaho. Poor Rozy was outback asleep on the lawn when sprinkler’s...

Hope everyone is doing well and staying cool in this heat wave 🥵 Been in the 💯...

Kenu

•6 days ago

18 Replies

eye issue

hello, so glad to have found you! I have been trying to deal with this diagnosis myself due to my doctor saying “get over yourself, you’re disease is not life...

hello, so glad to have found you! I have been trying to deal with this diagnosi...

Hjgarden

•6 days ago

11 Replies

Possible Anaphylaxis with Glatimirer Acetate

The MS Blog is kind of a technical blog written by a researcher. But the gist of this post is that in Europe they are putting a warning on generic copaxone...

The MS Blog is kind of a technical blog written by a researcher. But the gist of...

CatsandCars

•6 days ago

19 Replies

I'm back!

For some reason, I got logged out of my account and could not find my account info. So I created a new account because I cannot live through MS without this...

For some reason, I got logged out of my account and could not find my account in...

Anais_Hunter

•6 days ago

9 Replies

Kenu where are you?

Hi Kenu I don’t know you but I miss you and your inspirational words. I also miss updates and pictures of Rozy!

Hi Kenu I don’t know you but I miss you and your inspirational words. I also mis...

Xvettech

•7 days ago

14 Replies

Heat cause vomiting?

Does anyone vomit when they get too warm? Even having a fever causes me to vomit.

Does anyone vomit when they get too warm? Even having a fever causes me to vomit...

Jogibby

•9 days ago

15 Replies

Heat and MS

I would like to know how Heat affects the MSers on this site. It can make me slow and sluggish but in all I think I handle heat fairly well. I use cooling...

I would like to know how Heat affects the MSers on this site. It can make me sl...

MSCoach50

•12 days ago

29 Replies

How does this happen when I haven't walked for 4 months?

My husband threatened to call a farrier!🤣

falalalala

•12 days ago

21 Replies

Brain Fog and Words

Do any of you have a very hard time with finding the exact word you want to use? You know, like the above meme about the humming bird, which shall forever to...

Do any of you have a very hard time with finding the exact word you want to use?...

MSFlea

•12 days ago

75 Replies

Zeposia experience?

I am starting this medication next week (it arrives tomorrow and I want to prepare myself for it). I don't see any recent posts about people who are taking it,...

I am starting this medication next week (it arrives tomorrow and I want to prepa...

Roamerwithroots

•12 days ago

10 Replies

Future plans

I like this idea even more than the bee filled pinata.😀

falalalala

•13 days ago

17 Replies

electric toothbrush, and Trigeminal Neuralgia

hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the...

hello everyone, does anyone use an electric toothbrush and they also have trige...

MSbeGone

•13 days ago

19 Replies

Back in the Pacific Northwest!

Well, so far, so good other than this crazy heat (we know what that does to us MSers). In Nashville, having HVAC systems is a must by codes. It's not required...

Well, so far, so good other than this crazy heat (we know what that does to us M...

drumbugg

•13 days ago

2 Replies

Restless Legs Syndrome

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell my MS doctor and all he does is put me on more pills and when I tell him that...

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell...

Gunner15

•14 days ago

15 Replies

Has anyone tried a motorized pedal exerciser?

Not sure if it will work for someone with limited leg strength (no ability to keep feet on the pedals). Have you found one that can secure the feet well...

Not sure if it will work for someone with limited leg strength (no ability to ke...

green244

•14 days ago

7 Replies

Any recommendations for AFO

I have somer serious foot drop and weakness. My physical therapist and spine doctor both recommended an AFO. I do not wear sneakers or boots, but penny loafer...

I have somer serious foot drop and weakness. My physical therapist and spine do...

Brindisi1

•15 days ago

8 Replies

Kesimpta Question

I alternate which leg I do my Kesimpta injection on, and this month (month 6) was my left leg's turn. Which is also my weaker, more painful leg. And it has...

I alternate which leg I do my Kesimpta injection on, and this month (month 6) wa...

MSFlea

•18 days ago

24 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for July 2024

Crazy week for me and the hubby...

ouch!! Headaches

Pilates for MS

Finally I'm no longer homless...

am i overreacting? probably😎lol. but i thought i’d ask

Poor Stormy

Medical Appointment Recording Apps

Hello Peeps of MS and beyond...

Just Looking to Chat

Weird symptoms / Is this related to MS?

We Can’t Allow These Things To Happen! Step Therapy Fail First?

raynaud's

Sale on Emergency Medical ID Items

Good Morning Everyone 🥰

eye issue

Possible Anaphylaxis with Glatimirer Acetate

I'm back!

Kenu where are you?

Heat cause vomiting?

Heat and MS

How does this happen when I haven't walked for 4 months?

Brain Fog and Words

Zeposia experience?

Future plans

electric toothbrush, and Trigeminal Neuralgia

Back in the Pacific Northwest!

Restless Legs Syndrome

Has anyone tried a motorized pedal exerciser?

Any recommendations for AFO

Kesimpta Question

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