Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,963 members • 20,684 posts

All posts for August 2016

New to the site, new symptoms

Hi everyone, My name is Danielle and I was diagnosed with RRMS at 16 in 2011. I recently relapsed and now have nerve pain through out all of my body but last...

Hi everyone, My name is Danielle and I was diagnosed with RRMS at 16 in 2011. ...

Dpaige

•8 years ago

25 Replies

Newbie saying Hello😄

Hi, New to the site and just diagnosed a month ago. Interested in chatting about treatments and results.. Hoping to start infusion treatments soon. I'm 68 any...

Hi, New to the site and just diagnosed a month ago. Interested in chatting about...

CalfeeChick

CommunityAmbassador•8 years ago

16 Replies

Let's talk steroids

My 1st infusion was this past Memorial Day wkend. When my neorolgost called and told me that l needed to have it done in the emergency rm, or ck myself in the...

My 1st infusion was this past Memorial Day wkend. When my neorolgost called and...

Jesmcd2

CommunityAmbassador•8 years ago

16 Replies

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Newbie saying hello

Hi, I am Kevin's MeowMeow but you can call me Robin :)

Hidden

•8 years ago

23 Replies

Reactions to Copaxone

I was just diagnosed in May 2016 and have started using Copaxone 40mg 3 times a week. Every time I give myself an injection it immediately burns and swells up...

I was just diagnosed in May 2016 and have started using Copaxone 40mg 3 times a...

37kf80

•8 years ago

28 Replies

nutritional supplement query

the response to my nutritional supplement query has been wonderful.. I will research them all ... thank you all for sharing :)

the response to my nutritional supplement query has been wonderful.. I will rese...

SherylAnne

•8 years ago

3 Replies

REBIF 1st shot yesterday UPDATE

I know it was just my 1st injection and I was so worried about the pain from more injections and the flu-like symptoms. I was on Avonex years ago and they were...

I know it was just my 1st injection and I was so worried about the pain from mor...

dar58

•8 years ago

8 Replies

Aubagio

My husband switched to Aubagio a few years ago from Rebif and has been satisfied with it. I haven't met anyone else who takes it. Anyone out there?

My husband switched to Aubagio a few years ago from Rebif and has been satisfied...

Joalyn

•8 years ago

13 Replies

Here you are folks...

Pic of foot brace. Not too costly, and it works! Blessings. Oh...Amazon.com

Kj9681

•8 years ago

9 Replies

What works for me

I have found a company that makes health and wellness products all natural, non-GMO, and they actually work. This one, Relief, is the greatest thing ever, as...

I have found a company that makes health and wellness products all natural, non-...

Kawigma

•8 years ago

8 Replies

AFO use...anyone else out there?

I was placed in an extremely useful, yet bulky AFO in Jan '16. It gave me some peace because I'd no idea that I'd be dealing with foot drop. Over the months, I...

I was placed in an extremely useful, yet bulky AFO in Jan '16. It gave me some p...

Kj9681

•8 years ago

22 Replies

Fun, morale boosting poll!

Hi, it's Fancy1959. I thought we could support one another while sharing antidotes and fun stories while taking this stupid little poll. Oh, and by the way...

Hi, it's Fancy1959. I thought we could support one another while sharing antidot...

Fancy1959

•8 years ago

25 Replies

In need of answers.. Relatable symptoms.. Anyone? Please. I'm desperate to find someone like me.

All right I got diagnosed May 2016.. But I always knew I had something ever since I was 14 years old.. Any way my symptoms came back worse.i look down and get...

All right I got diagnosed May 2016.. But I always knew I had something ever sinc...

Jcalderon95__

•8 years ago

26 Replies

Anyone have a service dog?

I was wondering if anyone here has or has had a service dog to help them with getting around and doing things in the home. If you have, how did you obtain the...

I was wondering if anyone here has or has had a service dog to help them with ge...

Bygonelines

•8 years ago

21 Replies

New to the community but not to MS

Hi! My name is Jacqui. I am 52 yrs old for another month. :-) I was diagnosed with MS in 2012 but we figure I had my first episode in the late 80's. I always...

Hi! My name is Jacqui. I am 52 yrs old for another month. :-) I was diagnosed w...

Bygonelines

•8 years ago

8 Replies

Relapsing MS with side effect treatment . Probably Relapsing Secondary Progressive MS now.

Hi. I started my first medication treatment for Relapsing MS with Tecfidera 2 years ago at age 54. Besides the gastric side effects and flush,recently caused...

Hi. I started my first medication treatment for Relapsing MS with Tecfidera 2 ye...

Miriade

•8 years ago

4 Replies

Rebif

I am starting Rebif on Monday. Just want to know experiences others have had, either positive or negative. Side effects etc. Thank you.

I am starting Rebif on Monday. Just want to know experiences others have had, ei...

dar58

•8 years ago

12 Replies

Just saying hi

Just saying hi and reaching out to you all.

Sleek78

•8 years ago

2 Replies

Siponimod for SPMS

I just read an email about encouraging results with this drug. It was from the MSAA so you can go find the information.

I just read an email about encouraging results with this drug. It was from the M...

Lisacpa

•8 years ago

7 Replies

Old-timer sick of being sick.

I was diagnosed in 1991, when there were no DMTS at all. I managed pretty well until 2012-2013. Now, I am beginning to feel helpless. I never had any pain...

I was diagnosed in 1991, when there were no DMTS at all. I managed pretty well u...

Lisacpa

•8 years ago

24 Replies

Dutchie here, soon moving to Atlanta, GA

Hi! I will be moving to Atlanta later this year, but I really don't know what it's like to live with MS in the US. Health care etc. is covered, but i'm...

Hi! I will be moving to Atlanta later this year, but I really don't know what it...

Hidden

•8 years ago

4 Replies

NMO

Is anyone here dealing with NMO (Neuromyelitis Optica aka Devic's)?

lauranell2u

•8 years ago

19 Replies

Hot flashes

To the women out there. Is it MS or hot flashes because of menopause? Are you going through the same thing? Having both at the same time just sucks (excuse...

To the women out there. Is it MS or hot flashes because of menopause? Are you go...

Jesmcd2

CommunityAmbassador•8 years ago

11 Replies

Wahls Protocol

Anyone else following the Wahls Protocol? I've had good results but keep falling off the wagon due to a well meaning spouse, poor self control and life stress....

Anyone else following the Wahls Protocol? I've had good results but keep falling...

erash

•8 years ago

39 Replies

I'm New to THIS Site...

Hi ALL!! I'm new to THIS site, I have been on other MS sites tho. Probably most recognizable is "Patients Like Me", I really enjoyed that site. I joined in...

Hi ALL!! I'm new to THIS site, I have been on other MS sites tho. Probably most...

Tracy_M

•8 years ago

7 Replies

Sensory Issues

Has anyone experienced sensory issues? Feeling like things are crawling on your face and body, can't stand to be touched or hugged, feel overheated when...

Has anyone experienced sensory issues? Feeling like things are crawling on your...

Judi4

•8 years ago

24 Replies

About time!!!

Yay I finally got approved for my surgery!! It will be Sunday! I'm excited cause I will finally be able to start MS treatment! Hopefully It will help me!

Yay I finally got approved for my surgery!! It will be Sunday! I'm excited cause...

Froggiechick

•8 years ago

6 Replies

Bladder infections

I have been fighting bladder issues for years. Sometimes I get an infection from incomplete voiding and Dr prescribes antibiotics which don't always work. My...

I have been fighting bladder issues for years. Sometimes I get an infection from...

Vlbrown57

•8 years ago

7 Replies

I'm new to this site and would like to talk with others

Hello everyone! I'm new to this site and I am looking for new people who are affected by Ms like me. I was diagnosed about 2 years ago and I would like to talk...

Hello everyone! I'm new to this site and I am looking for new people who are aff...

Shelly36

•8 years ago

7 Replies

Done being tired

So after reading and writing back to ppl, l to took some advice and called my Dr. I explained to him that l couldn't handle how much I was sleeping and l...

So after reading and writing back to ppl, l to took some advice and called my Dr...

Jesmcd2

CommunityAmbassador•8 years ago

13 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2016

New to the site, new symptoms

Newbie saying Hello😄

Let's talk steroids

Newbie saying hello

Reactions to Copaxone

nutritional supplement query

REBIF 1st shot yesterday UPDATE

Aubagio

Here you are folks...

What works for me

AFO use...anyone else out there?

Fun, morale boosting poll!

In need of answers.. Relatable symptoms.. Anyone? Please. I'm desperate to find someone like me.

Anyone have a service dog?

New to the community but not to MS

Relapsing MS with side effect treatment . Probably Relapsing Secondary Progressive MS now.

Rebif

Just saying hi

Siponimod for SPMS

Old-timer sick of being sick.

Dutchie here, soon moving to Atlanta, GA

NMO

Hot flashes

Wahls Protocol

I'm New to THIS Site...

Sensory Issues

About time!!!

Bladder infections

I'm new to this site and would like to talk with others

Done being tired

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