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My MSAA Community

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All posts for March 2024

Happy Easter from Wyoming!

Still waiting for spring!

Raingrrl

•26 days ago

5 Replies

Happy Easter 🐣 😉

Another dreary rainy day here in Pocatello Idaho. Still pretty sore from fall and been using my cane 🦯 this week 🤞🏼. Rozy is doing better and gets stitches...

Another dreary rainy day here in Pocatello Idaho. Still pretty sore from fall an...

Kenu

•27 days ago

18 Replies

It's not April 1st yet

My kids like to remind me every now and then about the time I worked so hard to make green tomato mincemeat pies completely from scratch. And then forgot the...

My kids like to remind me every now and then about the time I worked so hard to ...

NorasMom

•27 days ago

14 Replies

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Good Thursday!

Hi everyone it’s a rainy, windy day today and snow in the mountains 🏔️. Hope everyone is doing well and dealing with there life best you can 🙏 I took Rozy in...

Hi everyone it’s a rainy, windy day today and snow in the mountains 🏔️. Hope ev...

Kenu

•30 days ago

18 Replies

Happy Resurrection Sunday (in advance) and Rahmadan! Does anyone else experience this?

The world of MS can make the most simplest things in life so “dog done” difficult it’s frustrating! A small treat like a manicure/pedicure can turn out to be...

The world of MS can make the most simplest things in life so “dog done” difficul...

stepsforNeeC

•1 month ago

15 Replies

DIARREA

I have primary progressive, so I have only two relapses since 2009.Last month I had explosive diarrea for about three weeks, it came on as quickly as it left....

I have primary progressive, so I have only two relapses since 2009.Last month I ...

timberriver

•1 month ago

9 Replies

Info about my B cells following 3 1/2 yrs off Ocrevus

Hi, I saw an immunologist at the Mayo clinic and finally got some answers as to why my B cells did not come back 3 1/2 yrs since my last O infusion. She sees a...

Hi, I saw an immunologist at the Mayo clinic and finally got some answers as to ...

erash

•1 month ago

50 Replies

Very sad day for me.

I recently(October) survived a bad apartment fire. I was helicoptered to Chicago for hyperbaric chamber treatment. I lost all of my possessions, but my cat...

I recently(October) survived a bad apartment fire. I was helicoptered to Chicag...

ElvisScooter

•1 month ago

26 Replies

Thank you!!

Bill has pneumococcal pneumonia & a secondary infection, Major organ failure. Today they took 1 of the BP meds off & turned off the sedation. Thank you all...

Bill has pneumococcal pneumonia & a secondary infection, Major organ failure. T...

kycmary

•1 month ago

24 Replies

Is it just me?

Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing...

Wondering if anyone else isn't sold on the concept of taking a sledgehammer to t...

By-Design-1000

•1 month ago

26 Replies

Tonight! Webinar: "Elevating Your Well-Being"

Join Dr. Barry Hendin and Dr. Holly Hendin TONIGHT, March 25, at 8:00 PM Eastern, for a webinar dedicated to the conversation about MS and mental health....

Join Dr. Barry Hendin and Dr. Holly Hendin TONIGHT, March 25, at 8:00 PM Eastern...

DanaMSAA

Partner•1 month ago

4 Replies

Walking Speed

I know our bodies are different, but we all have something in common. Has anyone done or tried something besides ampyra that increased the speed that you walk?...

I know our bodies are different, but we all have something in common. Has anyone...

Diva1976

•1 month ago

20 Replies

GOOD SUNDAY MORNING GANG 🙏👍🏼

Just checking in haven’t been hear for a while, but I’m still upright and on the grass side🤪 Been busy with AA and NA program and sponsees and lots of...

Just checking in haven’t been hear for a while, but I’m still upright and on the...

Kenu

•1 month ago

29 Replies

No aubagio for a month

I'm still waiting for my aubagio even though I haven't called the specialty pharmacy back. I'm tired and my legs feel weak all the time. I know I need to get...

I'm still waiting for my aubagio even though I haven't called the specialty phar...

Axel_4233

•1 month ago

2 Replies

COVID

I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie...

I've had COVID for a few days so have not been in touch. Thank G-D I am not thro...

lbenmaor

•1 month ago

25 Replies

Diagnosing

My neurologists suspects MS or another auto immune condition based on my symptoms history. Has anyone been diagnosed with MS even of your blood tests did not...

My neurologists suspects MS or another auto immune condition based on my symptom...

ChronicJazzHands

•1 month ago

13 Replies

Hello MS family

I have just come from the hospital where the love of my live is fighting for his life. He was fine Tuesday normal Bill helped a friend load several bales of...

I have just come from the hospital where the love of my live is fighting for hi...

kycmary

•1 month ago

38 Replies

numbness in face here and there

hi everyone I was diagnosed with MS back in 2018 I am currently 31 years old. I recently started feeling numbness in the left side of my face. It’s not always...

hi everyone I was diagnosed with MS back in 2018 I am currently 31 years old. I...

Jellybeanxo

•1 month ago

15 Replies

Mobility

For those of you in wheelchairs, do you have handicapped assessable vans?

ganna64

•1 month ago

7 Replies

New Podcast Series from MSAA!

MSAA is pleased to present a three-part podcast series entitled “Finding Joy in the Process: Managing Mental Health in the MS Journey.” This program is part of...

MSAA is pleased to present a three-part podcast series entitled “Finding Joy in ...

DanaMSAA

Partner•1 month ago

8 Replies

New to this community, DX in 2017, RRMS

Hello I am new here! I was dx in 2017 and have been on Gilyena and a few other things for some minor symptoms. Recently seem to have developed spasticity, and...

Hello I am new here! I was dx in 2017 and have been on Gilyena and a few other t...

Katreetree

•1 month ago

23 Replies

MS need only a treatment in the Present.

it is necessary , as diabetes, only a pill for MS

Writter

•1 month ago

7 Replies

side pain.

I read this morning about someone with side pain. I have had intense side pain for 11 years I take hydrpmorphone every day with disapam for my spasms in my...

I read this morning about someone with side pain. I have had intense side pain ...

Momjules

•1 month ago

10 Replies

DMT Info Cards

These DMT info cards were designed by British neurologist Gavin Giovannoni and his team to help patients discuss DMT choices with their neurologists. I found...

These DMT info cards were designed by British neurologist Gavin Giovannoni and h...

CatsandCars

•1 month ago

17 Replies

How did you hurt yourself?

Oh, I tried to pull my pants up and fell on my hip...😜 I did this yesterday and had to have my hub help me with everything, basically carrying me to the...

Oh, I tried to pull my pants up and fell on my hip...😜 I did this yesterday an...

falalalala

•1 month ago

72 Replies

had me in tears 😢

https://youtu.be/5Sh7TAtnxKM?si=Tlhbwvi7uhHX50wJ Podcast MeSsy coming Monday

erash

•1 month ago

1 Reply

gabapentin

interesting adventure. I saw my neuro in February. He liked everything he saw but wanted to reduce my spasticity. So he increased my gabapentin dose from 400...

interesting adventure. I saw my neuro in February. He liked everything he saw bu...

StacyHayward

•1 month ago

32 Replies

OMG: I just sh** my pants

Has this happened to anyone else here? It seems my morning coffee combined with my Aubagio had me running for the bathroom, but I seemed to not make it in...

Has this happened to anyone else here? It seems my morning coffee combined with...

donna0329

•2 months ago

27 Replies

Treadmill suggestions?

Ok, good folks. Does anyone have a treadmill you recommend? I sold one of those huge, programmable treadmills 3 years ago. Now, I realize I need (smaller?) one...

Ok, good folks. Does anyone have a treadmill you recommend? I sold one of those ...

Mollyabigail

•2 months ago

16 Replies

Forward-thinking NHS

Last week I received a letter giving me a neuro appointment in June2025. I thought that was remarkable. I have just received another letter giving me another...

Last week I received a letter giving me a neuro appointment in June2025. I thoug...

Kit10

•2 months ago

9 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for March 2024

Happy Easter from Wyoming!

Happy Easter 🐣 😉

It's not April 1st yet

Good Thursday!

Happy Resurrection Sunday (in advance) and Rahmadan! Does anyone else experience this?

DIARREA

Info about my B cells following 3 1/2 yrs off Ocrevus

Very sad day for me.

Thank you!!

Is it just me?

Tonight! Webinar: "Elevating Your Well-Being"

Walking Speed

GOOD SUNDAY MORNING GANG 🙏👍🏼

No aubagio for a month

COVID

Diagnosing

Hello MS family

numbness in face here and there

Mobility

New Podcast Series from MSAA!

New to this community, DX in 2017, RRMS

MS need only a treatment in the Present.

side pain.

DMT Info Cards

How did you hurt yourself?

had me in tears 😢

gabapentin

OMG: I just sh** my pants

Treadmill suggestions?

Forward-thinking NHS

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive