Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,964 members • 20,688 posts

All posts for April 2019

I am my responsibility

I am my responsibility. I have to live with every me moment of every day. At night when I lay in bed unable to sleep. My thoughts and fears are mine...

I am my responsibility. I have to live with every me moment of every day. At...

•5 years ago

Update on Dermatologist appt

I keep forgetting to post an update. The appt went great, she checked out the mole on my toe and said it looked fine and hasn't grown or anything. It is a flat...

I keep forgetting to post an update. The appt went great, she checked out the mo...

•5 years ago

My Cat Moby

I don’t think Moby can handle anymore stress today...Lol.

I don’t think Moby can handle anymore stress today...Lol.

•5 years ago

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MSAA Online Focus Group: Day 2

Thank you so much for all your thoughtful contributions yesterday! Today's question is about the concept of ‘Shared Decision Making’. Have you heard of this...

Thank you so much for all your thoughtful contributions yesterday! Today's quest...

•5 years ago

Early morning surprise

Woke up at 4 am when the wife was getting ready for work to see this. I remember knocking it over in the middle of the night. I'm totally shocked my drink is...

Woke up at 4 am when the wife was getting ready for work to see this. I remember...

•5 years ago

Frost warning, Idaho and in the heart....

Yes, plants down and frost warning..Look out the window and see the beauty of grandma's quilts arrayed on the lawn...Colors of the past and future...One from...

Yes, plants down and frost warning..Look out the window and see the beauty of gr...

•5 years ago

Question 1

Hi everyone! I am Jean. Diagnosed in 1995, I was 45. When drugs were available it was betaseron on lottery. Waited until choices were ABC. Chose A. On it...

Hi everyone! I am Jean. Diagnosed in 1995, I was 45. When drugs were available ...

•5 years ago

Remember it could be worse 😢

Stay strong and positive attitude 👍🙏😉🐾🐾 Ken 😜

Stay strong and positive attitude 👍🙏😉🐾🐾 Ken 😜

•5 years ago

MSAA Online Focus Group: Day 1

Welcome to Day 1's question! Thank you for all the interest in this focus group, we look forward to hearing form you. Today’s main question is about how your...

Welcome to Day 1's question! Thank you for all the interest in this focus group,...

•5 years ago

thank you all

in the abyss of any illness disease trial it makes us dig deep, sometimes it has us flat hopping someone will hit the superhero button and save us.In this...

in the abyss of any illness disease trial it makes us dig deep, sometimes it has...

•5 years ago

Treatment / Ocrevus and Health Insurance

I saw the recent post from greaterexp There can't be anything more frustrating than deciding on a new treatment but not being able to get on it because of...

I saw the recent post from greaterexp There can't be anything more frustrating t...

•5 years ago

Devil's claw root

Just curious has anyone ever used devil's claw root for their pain and if so was it successful?

Just curious has anyone ever used devil's claw root for their pain and if so was...

•5 years ago

Self confidence, self worth. SELF

Hmm it is Sunday afternoon and she who must be obeyed is watching Sister Wives, which I think is garbage, and I watched most of Deadpool 2 earlier, which I...

Hmm it is Sunday afternoon and she who must be obeyed is watching Sister Wives, ...

•5 years ago

Chatroom

Is there a chat room available to talk with others who also have MS?

Is there a chat room available to talk with others who also have MS?

•5 years ago

Under the weather

I have a cold and I am in pain. My back is hurting so bad. The next MS 150 bike ride I need to ride a bike. I can not swim but I am getting in that swimming...

I have a cold and I am in pain. My back is hurting so bad. The next MS 150 bike...

•5 years ago

Avonex vs OCREVUS

My neurologist says no but does anyone know if you can go back to Avonex after the doctor put you on Ocrevus and you don’t feel comfortable with it???

My neurologist says no but does anyone know if you can go back to Avonex after t...

•5 years ago

Balance Exercises

Good Morning! Can someone please send me the link for the Balance Exercises. Thank you. Best Wishes, Leslie

Good Morning! Can someone please send me the link for the Balance Exercises. Tha...

•5 years ago

Urinary tract infections

do any of you have urinary tract infections frequently while on Ocrevus?? I believe I’m having one due to pain, was wondering if anyone mostly females do and...

do any of you have urinary tract infections frequently while on Ocrevus?? I beli...

•5 years ago

Mirapex to replace Horizant.

Well. I believe I have a winner. I'm taking the minimum dose right now .125 mgs and I was told by the pain drs RN I can raise it upto .250 mgs. Monday if I...

Well. I believe I have a winner. I'm taking the minimum dose right now .125 mgs ...

•5 years ago

MS Bike run

To all the bike riders who left yesterday headed to Austin Thank You

To all the bike riders who left yesterday headed to Austin Thank You

•5 years ago

New Doctor

I located a new doctor he came in and started the exam, he is very forthright and to the point. He also told me to hold nothing back when he ask a question...

I located a new doctor he came in and started the exam, he is very forthright an...

•5 years ago

A couple of things came up today

A couple of things came up today and I thought it might be prudent to clarify my position. Firstly, wear protective underwear, bladder and bowel issues may not...

A couple of things came up today and I thought it might be prudent to clarify my...

•5 years ago

Alyssia vs her legs

So as the title explains, my legs an I have been in a constant battle. I believe it’s spasticity whose responsible for this madness! I now have a 4 legged...

So as the title explains, my legs an I have been in a constant battle. I believe...

•5 years ago

why do you care what anybody says?

Why do you care, seriously why? Is there a good realistic reason? I do not know them or why they ask or look at me strangely. I do not control there...

Why do you care, seriously why? Is there a good realistic reason? I do not k...

•5 years ago

Okay, last night before I went to bed

Okay last night before I went to bed, I was checking my mail as I do, and I came across a young lady newly diagnosed (Dx’d) with the JC virus. This upset me...

Okay last night before I went to bed, I was checking my mail as I do, and I came...

•5 years ago

Bottom lip ulcers

I recently been getting tiny little white lesions on my bottom lip there not painful at all just weird want to know if anyone has experienced this? not sure...

I recently been getting tiny little white lesions on my bottom lip there not pai...

•5 years ago

A Little Help From My Friends

Yes, I know vintage Joe Cocker; my musical genre goes from Will Downing and Jill Scott to those sixties hits. Here's the question, I stepped out on faith and...

Yes, I know vintage Joe Cocker; my musical genre goes from Will Downing and Jill...

•5 years ago

Looking for last meal

Well I finished my last painting. It's a 11 x 14 oil painting on canvas. I called this looking for last meal or my bust from the hospital home sweet home.

Well I finished my last painting. It's a 11 x 14 oil painting on canvas. I calle...

•5 years ago

You look so good, are you fixed?

“YOU” look so good I thought “YOU were sick.” Ever had that statement made to “YOU” by a friend or a stranger ?? I wonder sometimes what the inappropriate...

“YOU” look so good I thought “YOU were sick.” Ever had that statement made to ...

•5 years ago

For you cat 🐈 people 👍

😁😆🤣😂☺️😉🐾🐾. Ken

😁😆🤣😂☺️😉🐾🐾. Ken

•5 years ago

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