Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,679 members•21,563 posts

All posts for January 2025

Whooshing in my ear

Hi Guys After a weird telephone call with my GP which wasn't very helpful, I wanted to see if anyone else experiences a whooshing noise in your ear which feels...

Hi Guys After a weird telephone call with my GP which wasn't very helpful, I wan...

Loveducks

•3 months ago

47 Replies

Not sure if this is ok to ask here, please let me know if it's not...

First a brief introduction from me. My name is Barb, I was diagnosed in 2013 after a long time of trying to figure out what was wrong as so many of us have. I...

First a brief introduction from me. My name is Barb, I was diagnosed in 2013 aft...

ocforme

•3 months ago

17 Replies

Missing

I haven't seen any posts from Royce Newton or Kenu in a while. I hope they are both still all right, I miss hearing from them.

I haven't seen any posts from Royce Newton or Kenu in a while. I hope they are b...

whwiechm

•3 months ago

5 Replies

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Good Morning

Have a wonderful day!

Shellbell77

•3 months ago

22 Replies

Help!

MSAA and HU administrators: all of a sudden, I'm not getting my daily email feed. What's gone wrong?? Please fix it.

MSAA and HU administrators: all of a sudden, I'm not getting my daily email feed...

goatgal

•3 months ago

9 Replies

Study identifies how Epstein-Barr virus triggers multiple sclerosis

A new study found that part of the Epstein-Barr virus mimics a protein made in the brain and spinal cord, leading the immune system to mistakenly attack the...

A new study found that part of the Epstein-Barr virus mimics a protein made in t...

BettysMom

•3 months ago

7 Replies

Reaching out!

Remember me? No support group. Does anyone live in the South Windsor CT or surrounding area?

Remember me? No support group. Does anyone live in the South Windsor CT or surro...

LovetoSalsa

•3 months ago

7 Replies

MS..means multi symptoms...

I put a new label on MS and life....resently taking online classes thru an app on multi subjects. Boundries accross the board, self care(and not feeling guilty...

I put a new label on MS and life....resently taking online classes thru an app o...

jackiesj

•3 months ago

13 Replies

Introduction

Hi my name is Ann and I live in Australia and I have MS

BlueLIKER

•3 months ago

19 Replies

Pain with MS

Hi, my name is Ann and I have been living with MS for nearly 20 years now and I have joined this forum to see if there is anyone else around the world who...

Hi, my name is Ann and I have been living with MS for nearly 20 years now and I ...

BlueLIKER

•3 months ago

14 Replies

Need opinions on Ocrevus!

Hi everyone, I don't write much but I do love reading all your words of wisdom on here! But today I'd really like to ask those of you who've had experience...

Hi everyone, I don't write much but I do love reading all your words of wisdom ...

laurenhc

•3 months ago

17 Replies

New life...a WHEELCHAIR for MS.

i spent 15 days in bed(not sure if something added to MS) i tried to text my husband who hasnt been there anyway for food water etc. finally in the hall i...

i spent 15 days in bed(not sure if something added to MS) i tried to text my hus...

jackiesj

•3 months ago

8 Replies

Epipen Training Video

With all the news about the black box warning due to glatiimerer acetate/Copaxone possibly causing life-threatening reactions, I thought perhaps an...

With all the news about the black box warning due to glatiimerer acetate/Copaxon...

CatsandCars

•3 months ago

3 Replies

Another Item About Glatimerer Acetate and Black Box Warning for Possible Anaphylaxis

This is a blog post from the perspective of a researcher. https://multiple-sclerosis-research.org/2025/01/severe-allergy-with-glatiramer-acetate/#respond I...

This is a blog post from the perspective of a researcher. https://multiple-scle...

CatsandCars

•3 months ago

4 Replies

green juice

hi everyone! I hope this finds you al well! So, I have been making this green juice to give me more energy. It’s also anti-inflammatory, which does help me....

hi everyone! I hope this finds you al well! So, I have been making this green ...

Xvettech

•3 months ago

22 Replies

FDA: Copaxone warning for possible anaphylaxis

The US FDA is adding a boxed warning to Copaxone / glatopa / glatiramer acetate regarding possible anaphylactic reactions. Some people, even after years of...

The US FDA is adding a boxed warning to Copaxone / glatopa / glatiramer acetate ...

Lilith08

•3 months ago

6 Replies

My cats favorite song

Alright, it's mine🤣 https://www.youtube.com/watch?v=lwLLFbC1H0c

falalalala

•3 months ago

19 Replies

Remyelinating medication in trials!

Hi everyone who has damaged nerves with demyelinated nerves (mainly MS patients, me included)! So, I've read this morning that there's a drug in clinical human...

Hi everyone who has damaged nerves with demyelinated nerves (mainly MS patients,...

Cwright170994

•3 months ago

5 Replies

TN sufferers

Well I went to the pain clinic and they immediately wrote me off and told me that there was nothing they could do for me. As I am all allergic to the...

Well I went to the pain clinic and they immediately wrote me off and told me tha...

jimeka

•3 months ago

20 Replies

Intro

Hi everyone. Just found this group and thought I would explore. I was diagnosed 1.5 years ago in my early 50's. In many ways it was a relief. It answered a...

Hi everyone. Just found this group and thought I would explore. I was diagnosed...

FormerClevelander

•3 months ago

12 Replies

Have you seen my poppies?

I really debated about posting this, because I usually don't call attention to my work. I am always amazed when someone likes my art. If you received an...

I really debated about posting this, because I usually don't call attention to m...

NanciG

•3 months ago

30 Replies

I'm not complaining, really!

It's -12F outside in the morning sunshine, and when I woke up the house was 47. It's now dropped to 46. I'm wearing longjohns and multiple layers, but the...

It's -12F outside in the morning sunshine, and when I woke up the house was 47. ...

NorasMom

•3 months ago

32 Replies

florida

you know i lived in florida most of my life and i thought temp in the 30s would be cold, i worked for publix back in the day and their cold storage sucked, but...

you know i lived in florida most of my life and i thought temp in the 30s would ...

qryche71

•3 months ago

8 Replies

A birthday present

A friend here gave me this pillow for my birthday last week. It was just the best thing he could have gotten for me! The woman who makes these does cat pillows...

A friend here gave me this pillow for my birthday last week. It was just the bes...

Amore55

•3 months ago

19 Replies

Neurologist says MS, specialist says not likely

My neurologist thinks I have MS. I certainly have all the symptoms except for the relapse/remitting part. I woke up one day feeling awful and have maintained...

My neurologist thinks I have MS. I certainly have all the symptoms except for th...

SlowbutGoing

•3 months ago

35 Replies

Road rage, anyone?

https://www.youtube.com/watch?v=K0Wix14YTD4 I'm still laughing🤣

falalalala

•3 months ago

16 Replies

hi from florida

just wanted to say hi from Florida. I thought it was cold here..is around 50 degrees. but then i talked with a close friend of mine who lives in Buffalo who...

just wanted to say hi from Florida. I thought it was cold here..is around 50 deg...

qryche71

•3 months ago

21 Replies

help?

hi. i am hoping someone can help. my physical disability with MS is bad enough, but it is the exhaustion that keeps me from being able to work. I can only...

hi. i am hoping someone can help. my physical disability with MS is bad enough, ...

qryche71

•3 months ago

6 Replies

new to site

hi. first time to post so not sure how all of this works. have has ms since 2017. got diagnosed in 2022. am severely handicapped to the point i can't work....

hi. first time to post so not sure how all of this works. have has ms since 2017...

qryche71

•3 months ago

23 Replies

blood test off

anion gap extremely low any one else ?

309Ygi

•3 months ago

5 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for January 2025

Whooshing in my ear

Not sure if this is ok to ask here, please let me know if it's not...

Missing

Good Morning

Help!

Study identifies how Epstein-Barr virus triggers multiple sclerosis

Reaching out!

MS..means multi symptoms...

Introduction

Pain with MS

Need opinions on Ocrevus!

New life...a WHEELCHAIR for MS.

Epipen Training Video

Another Item About Glatimerer Acetate and Black Box Warning for Possible Anaphylaxis

green juice

FDA: Copaxone warning for possible anaphylaxis

My cats favorite song

Remyelinating medication in trials!

TN sufferers

Intro

Have you seen my poppies?

I'm not complaining, really!

florida

A birthday present

Neurologist says MS, specialist says not likely

Road rage, anyone?

hi from florida

help?

new to site

blood test off

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