Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,963 members • 20,684 posts

All posts for May 2017

Cooling vest review

90+ degrees is still 90+ degrees but the Polar Koolmax vest does give me some relief and is better than my other vest...

90+ degrees is still 90+ degrees but the Polar Koolmax vest does give me some re...

erash

•7 years ago

10 Replies

Doctor Delimma

Just spent all day trying to find a PCP for my Medicaid--AARRGH!! The care providers listed on the BC/BS Complete website (all 200 of them in my area) said...

Just spent all day trying to find a PCP for my Medicaid--AARRGH!! The care provi...

Bamfan1442

•7 years ago

32 Replies

Some good information -

In this article - "Protecting Against Progression"...

BillD999

•7 years ago

4 Replies

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Memorial weekend

What a wonderful weekend! I was able to stay up and active 4 days in a row! A friend and I drove over Donner Summit and saw deep snow ❄️ on the higher mtns. We...

What a wonderful weekend! I was able to stay up and active 4 days in a row! A fr...

CalfeeChick

CommunityAmbassador•7 years ago

12 Replies

My Scariest Symptom So Far

Awhile back, thankfully it's over, I started getting symptoms that made me question my sanity. More than the confusion and lack of focus I've already been...

Awhile back, thankfully it's over, I started getting symptoms that made me quest...

melack01

•7 years ago

24 Replies

Let's hear it for the caretakers...

My wife is my caretaker, She has a full time job that allows her to work from home. (more than 60 hours a week) I'm confined to a wheel chair and don't live...

My wife is my caretaker, She has a full time job that allows her to work from h...

downrigger

•7 years ago

8 Replies

Sad!

I was diagnosed back in '01 and just moved into a new house with my 12 year old daughter and my really good friend but tonight hasn't been a good night for me...

I was diagnosed back in '01 and just moved into a new house with my 12 year old ...

txcg152

•7 years ago

11 Replies

Hello

Hello. I am a 44 year old woman living with MS since 2002. I don't know what else to say.

Hello. I am a 44 year old woman living with MS since 2002. I don't know what els...

BerniceIsTired

•7 years ago

9 Replies

Trying to keep myself together!!

I restarted Tysabri almost 2 months ago. (Next infusion this Friday!) My JC went down enough that my Dr feels that it is safe for me again. I am so glad to be...

I restarted Tysabri almost 2 months ago. (Next infusion this Friday!) My JC wen...

DianneB

•7 years ago

12 Replies

Tecfidera

I started taking Tecfidera 2 weeks ago and felt very minimal side effects, slight nausea and mild headache. Last Saturday I began having explosive diarrhrea,...

I started taking Tecfidera 2 weeks ago and felt very minimal side effects, sligh...

kyaro123

•7 years ago

19 Replies

I'm new here

Hi, My name is DJ. I'm new to the community. I am a caretaker of a family member with progressive MS. I have been a caretaker for over 9 years now and I have...

Hi, My name is DJ. I'm new to the community. I am a caretaker of a family member...

Ddjohnso

•7 years ago

13 Replies

Thoughts or Experience with Lemtrada?

Thinking of trying this. Ive tried injectable and oral. My body did not tolerate either. Thanks for any input. 😄

Thinking of trying this. Ive tried injectable and oral. My body did not tolerate...

rgdickson10

•7 years ago

Be the first to reply

MS balance control through ball throwing

I think either Fancy1959 or WAshingtongirl mentioned they were doing this...

erash

•7 years ago

35 Replies

Here we go again! This time Chocolate!!

I have never been a person to enjoy sweets, just not a sugary sweets kind of person. So recently I have noticed that I have insatiable cravings for chocolate....

I have never been a person to enjoy sweets, just not a sugary sweets kind of per...

GerriG

•7 years ago

7 Replies

wheel chair transfer aide

First of all let me say I am not associated with this company in any way. I urge you to do your own research on this or any product. I recently found this...

First of all let me say I am not associated with this company in any way. I urg...

downrigger

•7 years ago

5 Replies

Remember

Happy Memorial Day weekend (and "raceday" to those of you who are fans)! Anyone watch the awesome Indy 500 race? Lots of wrecks, just glad no one was...

Happy Memorial Day weekend (and "raceday" to those of you who are fans)! Anyone ...

Bamfan1442

•7 years ago

1 Reply

Hello everyone

I was just checking in for some reason I haven't gone any post from the site.

rjoneslaw

•7 years ago

11 Replies

Ocrevus

Ok, So I know we have beat this subject to death. I have decided that after reading results and study after study results that a 2.3% chance of cancer is too...

Ok, So I know we have beat this subject to death. I have decided that after read...

rlh1974

•7 years ago

27 Replies

Today's plan of action

Yep, that's pretty much it. Lots of swelling the last few days, so up they go and up with the air, it's going to be a scorcher! At least the view is nice!...

Yep, that's pretty much it. Lots of swelling the last few days, so up they go...

GerriG

•7 years ago

7 Replies

Greaterexp... half way there

We moved out of our home Wednesday and Thursday. Everything's in a storage warehouse. Settlement was Friday. We're living in a corporate apartment for 5 weeks...

We moved out of our home Wednesday and Thursday. Everything's in a storage ware...

Juleigh21

•7 years ago

23 Replies

Still waiting

Hello everyone, I have not posted for a while but have been reading many of your posts. I have been stressed with not knowing what the next step will be in...

Hello everyone, I have not posted for a while but have been reading many of you...

lexsarset

•7 years ago

18 Replies

For Copaxone Users

I'm sure you already have a handle on site reactions, but thought I'd share what has worked best for me during the 4 months of trial and error. I follow the...

I'm sure you already have a handle on site reactions, but thought I'd share what...

greaterexp

•7 years ago

18 Replies

What a feeling

Wow. Had a new symptom yesterday that set me wondering what happened. Was doing a little stuff with my son and would have sworn I was drugged or drunk. It was...

Wow. Had a new symptom yesterday that set me wondering what happened. Was doing ...

Doubled51

•7 years ago

26 Replies

Newly Diagnosed

After a year of testing, I have been diagnosed with MS. Not a shock since for the last six months of that I was pretty sure I had it. The more I read, the more...

After a year of testing, I have been diagnosed with MS. Not a shock since for th...

melack01

•7 years ago

17 Replies

Sleep Position(s) Humph :-(

Hello everyone, I know this is an odd subject to bring up but after several sleepless nights lately, I'm over and done with trying to find a comfortable...

Hello everyone, I know this is an odd subject to bring up but after several slee...

Bamfan1442

•7 years ago

11 Replies

Shingles vaccine (Zostavax)?

I had a routine visit with my PCP yesterday. She recommended I get Zostavax 2 mos. before considering Ocrevus or any of the other newer meds. Yrs. ago, my...

I had a routine visit with my PCP yesterday. She recommended I get Zostavax 2 mo...

erash

•7 years ago

12 Replies

Ocrevus news...this confirms my fears

I was just looking for the latest Ocrevus news because I had a voicemail from my neuro's office regarding Ocrevus. I had thought we were going to discuss it...

I was just looking for the latest Ocrevus news because I had a voicemail from my...

Raingrrl

•7 years ago

25 Replies

New emphasis spinal tap (again) to diagnose MS

This is likely most relevant to those in limbo withOut a diagnosis. Reading this article it sounds as if there is still much confusion...

This is likely most relevant to those in limbo withOut a diagnosis. Reading this...

erash

•7 years ago

9 Replies

Allergies

My friends, do allergies have the same impact on MS SYMPTOMS as viruses, fevers, infections? Seems that it would as allergies activate the immune system? Or is...

My friends, do allergies have the same impact on MS SYMPTOMS as viruses, fevers,...

Karen-x

•7 years ago

12 Replies

Isolation: How are you dealing with it?

I've been spending the better part of a week or so reading the comments to the question of how family took the news. Many great stories as well as...

I've been spending the better part of a week or so reading the comments to the q...

GerriG

•7 years ago

20 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2017

Cooling vest review

Doctor Delimma

Some good information -

Memorial weekend

My Scariest Symptom So Far

Let's hear it for the caretakers...

Sad!

Hello

Trying to keep myself together!!

Tecfidera

I'm new here

Thoughts or Experience with Lemtrada?

MS balance control through ball throwing

Here we go again! This time Chocolate!!

wheel chair transfer aide

Remember

Hello everyone

Ocrevus

Today's plan of action

Greaterexp... half way there

Still waiting

For Copaxone Users

What a feeling

Newly Diagnosed

Sleep Position(s) Humph :-(

Shingles vaccine (Zostavax)?

Ocrevus news...this confirms my fears

New emphasis spinal tap (again) to diagnose MS

Allergies

Isolation: How are you dealing with it?

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