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Looking for Interviews!

Hi everyone! I am looking for individuals living with MS that would be willing to share their story! I am a senior at Purdue University in Product Design. I am...

Hi everyone! I am looking for individuals living with MS that would be willing t...

acheckle

•3 months ago

13 Replies

Happy 59 th birthday to me!

I would like to say hello to everyone! I have been missing in action! I hope everyone is well. All I can say is be careful what you ask for.😂 I wanted to be...

I would like to say hello to everyone! I have been missing in action! I hope eve...

lexsarset

•3 months ago

21 Replies

Happy 4th MSers.

Havent been on,,,A dear friend had said when i stated i wrote poetry when it wasnt so bad....she pointed out....you ARE a poet, not WAS... Who are you? The 4th...

Havent been on,,,A dear friend had said when i stated i wrote poetry when it was...

jackiesj

•5 months ago

10 Replies

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Be Kind

Years of untouched rage may be meant for specific people and not random passerby’s on the internet. So be kind. Not as a pleasant “be kind and I’ll fart...

Years of untouched rage may be meant for specific people and not random passerby...

SuperMom1921s

•6 months ago

8 Replies

MS Navigation for Young Adults

Hello everyone! I’m a MS Warrior from Texas. I was diagnosed with MS in 2016 and been living with it for 8 years. When I was first diagnosed, I couldn’t...

Hello everyone! I’m a MS Warrior from Texas. I was diagnosed with MS in 2016 a...

EmpressArtist

•6 months ago

24 Replies

First MS Neuro Appointment!

Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am...

Neuro confirmed in person that I have MS. I have RRMS. To get me out of the cu...

MSFlea

•10 months ago

34 Replies

New and terrified

Just diagnosed and joined this community. I know nothing about MS. No treatment yet. In a lot of pain, insomnia, etc. Getting worse especially at night....

Just diagnosed and joined this community. I know nothing about MS. No treatment...

LogansMamaLlama

•10 months ago

46 Replies

When MS has you hunkered down...any hobbies to share or things that help the funk.

The last week i thought this was a "oh it too shall pass" ..but hanging on.Then Addey Mae started being my nurse and tried to give me a grooming...everytime i...

The last week i thought this was a "oh it too shall pass" ..but hanging on.Then ...

jackiesj

•1 year ago

19 Replies

1st Ocrevus infusion today!

I'm sitting in the infusion center having just finished my first half dose of Ocrevus. Now I just am getting the flush so I get every single drop of medicine...

I'm sitting in the infusion center having just finished my first half dose of Oc...

Szs3eb

•1 year ago

12 Replies

Living with MS

I have MS for 23 years. I was in a wheelchair for a few years in terrible pain, but now I'm much better. I'm disabled, but I have use of my arms and legs...

I have MS for 23 years. I was in a wheelchair for a few years in terrible pain,...

BABYFACE3

•1 year ago

26 Replies

Just ranting...

I'm supposed to start on DMT. Generic tecfidera was called in to Walgreens. Two Rx's as you need to titrate up in dosage. First the app said it was out of...

I'm supposed to start on DMT. Generic tecfidera was called in to Walgreens. Two ...

Szs3eb

•1 year ago

15 Replies

I had my first (hoping the last) pity party yesterday...

After my first symptoms started 3 weeks ago and diagnosed with MS two weeks ago, I was being so positive and yesterday just sucked so I sat in my bed and felt...

After my first symptoms started 3 weeks ago and diagnosed with MS two weeks ago,...

Szs3eb

•1 year ago

19 Replies

Learning to be a "Fall Risk!!"

I haven't been on here much because I've had some small falls and a couple of more serious falls. A knot on my fore head, 3 times I landed on my left Elbow....

I haven't been on here much because I've had some small falls and a couple of mo...

CalfeeChick

CommunityAmbassador•1 year ago

30 Replies

Shin Splints

Hi. I've been having pain in my shins for a year or so, when I wake up, if I try getting out of bed by leaning on my feet, they hurt. Walking hurts. Standing,...

Hi. I've been having pain in my shins for a year or so, when I wake up, if I try...

ekelks

•1 year ago

4 Replies

Sue Lawrence- August Artist of the Month!

Congratulation Sue! This painting is Fabulous & if I saw it in a San Francisco Gallery I would not hesitate to buy it! I love the technique. To read more...

Congratulation Sue! This painting is Fabulous & if I saw it in a San Francisco G...

CalfeeChick

CommunityAmbassador•1 year ago

1 Reply

I feel like I was mistreated with little representation!!!

Hey guys I’m new here and a little nervous. I wanted to share one of my stories, in hopes that someone with more experience than myself will comment. Long...

Hey guys I’m new here and a little nervous. I wanted to share one of my stories,...

Purple12300123

•1 year ago

18 Replies

neuroplasticity

hi again group, still not getting any notifications! last time i was here was 8 long days ago. i miss your funnies! anyway i came across this article and...

hi again group, still not getting any notifications! last time i was here was 8 ...

Sandydemop

•1 year ago

10 Replies

Join MSAA for a live webinar on June 14th

Wednesday, June 14th at 8:00 PM Eastern, join Dr. William Conte for a conversation and understanding about living with MS as an LGBTQ+ individual and how an MS...

Wednesday, June 14th at 8:00 PM Eastern, join Dr. William Conte for a conversati...

MSAA_archived

•1 year ago

Be the first to reply

Join MSAA for an upcoming webinar!

Hello, everyone! On Tuesday, May 23rd at 8:00 PM Eastern, join MSAA and Dr. Amy Sullivan for a discussion on the impact of stress on multiple sclerosis. Dr....

Hello, everyone! On Tuesday, May 23rd at 8:00 PM Eastern, join MSAA and Dr. Amy ...

MSAA_archived

•2 years ago

1 Reply

shift how you view yourself and value yourself

hi everyone, came across this today. what's it like to believe you deserve unconditional love? and treated accordingly (mostly by ourselves)?

hi everyone, came across this today. what's it like to believe you deserve unco...

Sandydemop

•2 years ago

29 Replies

The struggle is real 😂

I’m sure my HVAC is pretty confused 🫤

Corran731

•2 years ago

8 Replies

Spring thing, MS and another happy Easter!How are you?

I have been on trying to catch up...i have loved you all so dearly and appreciate the mix of people ideas info and HEART.I am thankful to see another Easter...

I have been on trying to catch up...i have loved you all so dearly and appreciat...

jackiesj

•2 years ago

17 Replies

Gratitude

Hey MS friends, i want to start by saying i have a lot to be grateful for. And some days are better than others. Today i forgot to take my...

Hey MS friends, i want to start by saying i have a lot to be grateful for. And...

Sandydemop

•2 years ago

37 Replies

freeszing in Colorado

good morning snowing cold my body has hard spasm . We hardly ever get snow and bam here it is . Sadly I keep the electric very low I dress in heavy sweats and...

good morning snowing cold my body has hard spasm . We hardly ever get snow and b...

309Ygi

•2 years ago

25 Replies

gabapentin 600 mg for sudden twinges of possible trigeminal neuralgia (tgn) but mouth has gone ok, stupid me. not ALL GONE

I wear an upper denture & felt the first twinge in my upper left jaw, the place where my tng usually starts spreading from. Was doing laundry when i felt...

I wear an upper denture & felt the first twinge in my upper left jaw, the p...

ekelks

•2 years ago

18 Replies

Webinar: Shared Decision Making & Adherence/Seminario Web: La toma de decisiones compartida y la adherencia al tratamiento

Join MSAA on February 9 at 8:00 p.m. Eastern Time for our webinar on Shared Decision-Making and Adherence presented by Dr. Gabriel Pardo and EM Community...

Join MSAA on February 9 at 8:00 p.m. Eastern Time for our webinar on Shared Deci...

MSAA_archived

•2 years ago

Be the first to reply

MS and Iron deficiency anemia

on Jan 1 2023 I was taken to emergency room. I was barely able to do anything. I short of breath, heart pounding and extremely exhausted. I would be in bed for...

on Jan 1 2023 I was taken to emergency room. I was barely able to do anything. I...

SaraSmile2021

•2 years ago

16 Replies

Avonex

hi My name is Mara I took Avonex when I was first diagnosed in 2000. I was only able to handle the pain of the side effects for about a year before I had...

hi My name is Mara I took Avonex when I was first diagnosed in 2000. I was o...

Msyogamovements

•2 years ago

17 Replies

Dalfampridine or Ampyra

hi group! i could use some support around this issue. My insurance refuses to pay for this mediclne anymore so it will have to be appealed. I think/believe it...

hi group! i could use some support around this issue. My insurance refuses to pa...

Sandydemop

•2 years ago

27 Replies

December 2022 Artist of the Month is Vanessa W!

A very interesting photograph. At first I couldn't tell if it was snow on the beach and the realized it was foam. Congratulations Vanessa. To read a little...

A very interesting photograph. At first I couldn't tell if it was snow on the b...

CalfeeChick

CommunityAmbassador•2 years ago

2 Replies

Write a post or ask a question

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

Living with MS posts

Looking for Interviews!

Happy 59 th birthday to me!

Happy 4th MSers.

Be Kind

MS Navigation for Young Adults

First MS Neuro Appointment!

New and terrified

When MS has you hunkered down...any hobbies to share or things that help the funk.

1st Ocrevus infusion today!

Living with MS

Just ranting...

I had my first (hoping the last) pity party yesterday...

Learning to be a "Fall Risk!!"

Shin Splints

Sue Lawrence- August Artist of the Month!

I feel like I was mistreated with little representation!!!

neuroplasticity

Join MSAA for a live webinar on June 14th

Join MSAA for an upcoming webinar!

shift how you view yourself and value yourself

The struggle is real 😂

Spring thing, MS and another happy Easter!How are you?

Gratitude

freeszing in Colorado

gabapentin 600 mg for sudden twinges of possible trigeminal neuralgia (tgn) but mouth has gone ok, stupid me. not ALL GONE

Webinar: Shared Decision Making & Adherence/Seminario Web: La toma de decisiones compartida y la adherencia al tratamiento

MS and Iron deficiency anemia

Avonex

Dalfampridine or Ampyra

December 2022 Artist of the Month is Vanessa W!

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