Second dose of Ocrevus is done.
ssdw19583 hours ago
Hi all I did answer some of you but I would like you all to know how I did.
When I started my second dose I remembered on my first dose I ha...
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Today's Neuro Appt.
CalfeeChick5 hours ago
Began at 2:33AM with Hubby rapping on bedroom door frame saying "Get up, you said you could be ready to roll by 3:00AM! Ok I'm up, putting o...
4 Replies2 Likes
jimeka6 hours ago
Well I went to the opthalmologist today and he had a good look behind my eyes, 3D etc. Yes I have optic neuritis and he said it's just a wai...
3 Replies2 Likes
mrsmike9buffering17 hours ago
My neuro sent me to physical therapy to strengthen my legs awhile back. It worked well! Yeah! This coming Friday is my last appointment a...
12 Replies10 Likes
StacyHayward18 hours ago
Anyone else feel like their bodies hate them? As if MS, thyroid disease and gastritis weren’t enough, now my blood pressure and cholesterol...
10 Replies4 Likes
Morllyn18 hours ago
We got our first frost of the year last night but you can really only see it on the roofs and the collard greens.
Hope everyone has a peacefu...
3 Replies4 Likes
Sggmcswaina day ago
I have been told that all Ocrevus will do is slow down progression. Will it not help with walking and other symptoms.
10 Replies2 Likes
Our sun today and morning visitors.
jimekaa day ago
Due to the hurricane we got a special treat. Being on the east side of the country we did not get the devastation but the picture is what we...
12 Replies9 Likes
My disabilities are weighing me down like a ton of rocks! Fancy1959
Fancy19592 days agoPOPULAR
Everyone's it's Fancy1959. It has been a while since I have posted anything on the site and I wanted to let you know that I'm having a hard ...
21 Replies16 Likes
Negative CSF with MS dx
tenessa242 days ago
Anyone else have negative CSF, but diagnosed with MS because of MRI and “relapses”? I know CSF reliance is a bit “old school” for diagnosis,...
9 Replies4 Likes
Grizzly71682 days agoPOPULAR
I went to my family doctor around the beginning of June because I was having balance and memory loss as well a fatigue issues. She indicate...
22 Replies6 Likes
Decided to try something new and terrifying for me...
Bygonelines3 days ago
Those who know me know that I am terrified of bugs and spiders and other creepy crawlies. Well today at the local Home Show one of the pest...
16 Replies12 Likes
MRI Results are in
I had my MRI's done last Tuesday and got the results yesterday. My MRI's are stable but I am showing some brain shrinkage. Not happy with t...
12 Replies11 Likes
judymax4 days ago
I had my second infusion of round one of Ocrevus on Tuesday and I'm soooo tired! Does this go away after a time? I think it's going to be wo...
5 Replies7 Likes
Always read the label!
jimeka4 days ago
Just a little English humour to all you chocolate lovers. Have a good weekend, blessings Jimeka 🍫🍫🍫
10 Replies16 Likes
Sggmcswain4 days ago
Does anyone else have issues with "restless legs"? Mine were active and kept me awake all night. Guess I need to keep the medicine. Will ...
5 Replies5 Likes
Calling all artists: Time to submit your MSSA artwork for the 2018 showcase
erash4 days ago
ylimem4 days ago
Since I was first diagnosed in April I have been on two aggressive steroid treatments gilenya and received the first full dose of ocrevus. F...
17 Replies11 Likes
A Bump in the Road, Ocrevus Update (Long!)
dianekjs4 days agoPOPULAR
As some of you know, I started Ocrevus infusions several months ago on June 22nd. After making it through infusion reactions and a week of w...
25 Replies13 Likes
Doubled514 days ago
1 Reply6 Likes
More CADES Cove pics
A picture of one of the beautiful mountain views
7 Replies12 Likes
Approved for Ocrevus
Raingrrl4 days ago
Aetna finally approved Ocrevus after an appeal. Their reasons for denying it in the first place were stupid but that's kind of how it goes. ...
19 Replies9 Likes
Family who refuse to accept you have MS and demand you do what they want
rjoneslaw4 days agoPOPULAR
My mother didn't find out until Feb 2016 that I had MS. If I had my way she would never had known. It would've never been discovered if I ha...
41 Replies18 Likes
punterstein5 days ago
Uncomfortable question, but is anyone suffering from bowel incontinence and if so, what are you doing for it or how are you coping with it? ...
14 Replies4 Likes
BigMar7. 13th October. Happy Birthday 🎉 🎂 💐 🍫
jimeka5 days ago
Have a beautiful, fun filled day, from all here on the forum.
12 Replies6 Likes
Diva19765 days ago
Didn’t want to type again. What I wanted to say didn’t post. I don’t think. But I took a picture. Sorry if u get it twice.
11 Replies7 Likes
Amazing virtual webinar on emerging MS treatments
erash5 days ago
I believe this 1 1/2 HR. Scientific Webinar is geared to providers but the info on diet, supplements, stem cells the antihistamine I menti...
2 Replies6 Likes
New 7T MRI
I wonder what this will mean for MS diagnosis and progression determinations?...
14 Replies9 Likes
Finally some good news
melack016 days agoPOPULAR
Found out today my disability has been approved! Not sure when it will start, but just knowing is enough to hang on.
34 Replies19 Likes
IV hard to set?
SlmHarris6 days ago
I went for my MRI yesterday to get new measurements on my brain tumor. I went thru the first section of MRI now it's time for the contrast...
15 Replies5 Likes
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