Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,950 members • 20,667 posts

All posts for October 2017

My MRI

Well I have the results from my MRI. I have 3 new active lessions. I think it's because i went 6 months without any meds to start the Ocrevus. My doctor wants...

Well I have the results from my MRI. I have 3 new active lessions. I think it's ...

Shelly36

•6 years ago

7 Replies

Happy Halloween!

Happy Halloween to you, my family! Have a safe and fun night. I'll send pics of my girls tomorrow. I can't wait!

Happy Halloween to you, my family! Have a safe and fun night. I'll send pics of ...

Shelly36

•6 years ago

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Breathing ? Longish post)

For >1 year I've had trouble breathing. Last year, My PCP thought it might be asthma and gave me an inhaler that might have helped slightly. Chest X-ray, labs...

For >1 year I've had trouble breathing. Last year, My PCP thought it might be a...

erash

•6 years ago

31 Replies

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Anyone with spinal cord stimulator?

I'm considering one for neuropathy in my feet. Not diagnosed with MS yet (going to MS clinic on Thursday, yay!). My pain doc said it might be hard to get...

I'm considering one for neuropathy in my feet. Not diagnosed with MS yet (going ...

Qt314grl

•6 years ago

6 Replies

Prayers please...

Someone I care about, that won't be on this site, is having heart surgery tomorrow. They have asked for prayers. Please prayers, do so for him and the...

Someone I care about, that won't be on this site, is having heart surgery tomorr...

Sggmcswain

•6 years ago

11 Replies

Follow up on Shingles shot

Thanks for the reply’s 😎has anyone got the new shot, Shingrix? I read about it and states it’s two shots 2 to 6 months apart? It is new on the market.

Thanks for the reply’s 😎has anyone got the new shot, Shingrix? I read about it ...

Kenu

•6 years ago

2 Replies

True Health :)

After years as a health care provider...

erash

•6 years ago

6 Replies

Hammertoes

Here is my right foot after 22 years of MS as it has progressed.yes painfull, 😕💩 but there is relive, surgery.🤗

Here is my right foot after 22 years of MS as it has progressed.yes painfull, 😕...

Kenu

•6 years ago

8 Replies

New Posts

New to this starting yesterday and noticed a lot of old posts and not very many new ones🤔 I’m I missing something?

New to this starting yesterday and noticed a lot of old posts and not very many ...

Kenu

•6 years ago

2 Replies

Remember... Disabled people are whole people just like everyone else and don't let anyone treat you as less than whole!

Hello everyone it's Fancy1959 again. I got inspired to write this new post after responding to a post that Jes wrote just a little bit ago. If anyone in this...

Hello everyone it's Fancy1959 again. I got inspired to write this new post after...

Fancy1959

•6 years ago

14 Replies

Curling toes or clubfoot....

Hello everyone it's Fancy1959 . About a year ago someone in this chat room wrote about their toes curling under. At the time my toes were doing great and did...

Hello everyone it's Fancy1959 . About a year ago someone in this chat room wrot...

Fancy1959

•6 years ago

13 Replies

Question about toes 🤣😝🤡

It is a weird topic, but the past few days my toes have been so painful. Does anyone else experience this? Just when I thought nothing else could possibly hurt...

It is a weird topic, but the past few days my toes have been so painful. Does an...

Amore55

•6 years ago

19 Replies

Thanks to Tutu

Perhaps someone has already done this and I missed the post, but I wanted to thank Tutu for all her service to us as ambassador. Great job! You are such an...

Perhaps someone has already done this and I missed the post, but I wanted to tha...

Amore55

•6 years ago

6 Replies

New here-going to MS clinic this week

My Qs: anyone here diagnosed with normal lumbar puncture? Or misdiagnosed with migraine before MS diagnosis? This seems like a lovely community. I'm just going...

My Qs: anyone here diagnosed with normal lumbar puncture? Or misdiagnosed with m...

Qt314grl

•6 years ago

14 Replies

Shingles

Has anyone had the shingles shot? If so any side effects?🤔

Kenu

•6 years ago

14 Replies

Living with MS

New to site, was diagnosed with RRMS in 1996. Have had numerous bad and good things they the years with ms. Hard to believe it’s been 22years and still going....

New to site, was diagnosed with RRMS in 1996. Have had numerous bad and good thi...

Kenu

•6 years ago

25 Replies

Trying to do picture...

Afghan I made...

Sggmcswain

•6 years ago

22 Replies

Dealing with Daily Fatigue

Hi! I am dealing with fatigue and I see people are talking about it, but what can we do? Yeah, I know, there are meds to help, but those don't carry me thru...

Hi! I am dealing with fatigue and I see people are talking about it, but what c...

Friendship2

•6 years ago

23 Replies

Dizziness?

I have had MS since 2001. Things had been great until around 3 years ago. Lately I have been having bouts of dizziness that are bad enough to make me nauseous...

I have had MS since 2001. Things had been great until around 3 years ago. Lately...

tinainsc

•6 years ago

10 Replies

Bewildered~

It seems like my body and mind works for separate teams. I want to do needed chores around the house but I feel overwhelmed.

It seems like my body and mind works for separate teams. I want to do needed c...

raspberrybird50

•6 years ago

13 Replies

Hello

Hi my name is Lisa I was diagnosed in 2014 with MS my doctor wasn't sure which one I have I'm still learning about things and still trying to accept it

Hi my name is Lisa I was diagnosed in 2014 with MS my doctor wasn't sure which o...

Lisajp1018

•6 years ago

35 Replies

Secondary Progressive

1st diagnosed with RRMS 2009 have used Copaxone Rebif and now Avonex. Have been told by doctor that we are now looking at Secondary Progressive. He is not yet...

1st diagnosed with RRMS 2009 have used Copaxone Rebif and now Avonex. Have been ...

chickadee59

•6 years ago

9 Replies

Trying to find help for a MS sister

Hello Everyone, I have a friend, Linda, who has been in the hospital/nursing home since July 12, 2017. She has MS, just turned 60 ye. old and this is the...

Hello Everyone, I have a friend, Linda, who has been in the hospital/nursing ho...

craftygranny

•6 years ago

5 Replies

Changing the timing of your med intake.

When I went to the dr in Sept I was telling her how I would wake up stiff in the morning and I would have a hard time getting started in the morning but by the...

When I went to the dr in Sept I was telling her how I would wake up stiff in the...

rjoneslaw

•6 years ago

5 Replies

Organic muscle relaxer I found that works!!!

I wanted to let you know of an organic muscle relaxer I found it's called Arnica Capsicum. I was looking for something to help relax my muscles and this...

I wanted to let you know of an organic muscle relaxer I found it's called Arnic...

rjoneslaw

•6 years ago

10 Replies

New Community Member

Hello new friends! I am brand new to your community and I look forward to giving and receiving hope, encouragement and support! I was officially diagnosed...

Hello new friends! I am brand new to your community and I look forward to givin...

gaylaortega

•6 years ago

30 Replies

Life after MS is definitely possible!

I just joined 5 minutes ago. Never knew this site existed. I've had MS for about 22 years that I know of. It came on pretty quickly and the diagnosis didn't...

I just joined 5 minutes ago. Never knew this site existed. I've had MS for abou...

Hendlern1

•6 years ago

15 Replies

SSDI new MS listings

I watched a good webinar about updated criteria for SSDI and learned a bunch. Here's the link to the video and a SSDI guidebook...

I watched a good webinar about updated criteria for SSDI and learned a bunch. He...

erash

•6 years ago

3 Replies

New to site & rrms. Thought was just spms. But just had my first relapse in 15 years. 1st Diag 1984. Sugg for Dmt's? Tried Avonx-chest pain

See above

mendo2326

•6 years ago

5 Replies

Primary progressive M.S.

Hi, I was diagnosed in 2007 with PPMS. Since most medicines are designed for RRMS I am not on any MS meds. I take gabapentin for pain. I'm retired and my...

Hi, I was diagnosed in 2007 with PPMS. Since most medicines are designed for RR...

Brigid227

•6 years ago

11 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for October 2017

My MRI

Happy Halloween!

Breathing ? Longish post)

Anyone with spinal cord stimulator?

Prayers please...

Follow up on Shingles shot

True Health :)

Hammertoes

New Posts

Remember... Disabled people are whole people just like everyone else and don't let anyone treat you as less than whole!

Curling toes or clubfoot....

Question about toes 🤣😝🤡

Thanks to Tutu

New here-going to MS clinic this week

Shingles

Living with MS

Trying to do picture...

Dealing with Daily Fatigue

Dizziness?

Bewildered~

Hello

Secondary Progressive

Trying to find help for a MS sister

Changing the timing of your med intake.

Organic muscle relaxer I found that works!!!

New Community Member

Life after MS is definitely possible!

SSDI new MS listings

New to site & rrms. Thought was just spms. But just had my first relapse in 15 years. 1st Diag 1984. Sugg for Dmt's? Tried Avonx-chest pain

Primary progressive M.S.

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