On Patient Decision Aid in Multiple Sclerosis

[anaishunter]

This topic is the subject of many posts on this forum: which medicine, what treatment, how to decide, when to switch. We have all faced this challenge, especially when you're new to MS and overwhelmed by the choices.

It's good to see that some attention is being put to this. Not sure whether a software app is the right answer, patient<> doctor trust is paramount, but everything probably helps.

The Need for a Patient Decision Aid in Multiple Sclerosis: ajmc.com/newsroom/the-need-...

[jimeka]

Interesting article thank you 😊

[twooldcrows]

what ever helps people make that life changing route with MS or any disease's course...

[DM0329 in reply to twooldcrows]

Thanks for sharing! Boy can I relate, after 22 years on Avonex (with only 2 flares -- optic neuritis after 6 years on tx then left side numbness after 10 years on tx even with stable MRIs -- sometimes I wonder if 25 years after my MS dx (with the 22 years on a DMT) if I should escalate my tx?

But, as I'm in my mid-fifties now, I think "if it's not broken, why fix it" with de-escalation trending with aging MSers rising as more treatment options become available. More risks vs. more rewards? Aging naturally suppresses ms too. My head is spinning!

When I was dx at the young age of 25, Betaseron was on lottery. I didn't start Avonex until 3 years later (six months before my 29th birthday). My follow up MRI showed "silent progression" and my neuro said I was "lucky three times" and to start Avonex now! Sheesh!

Ultimately, I have seen the progress of MS therapies first hand (even though I've been mostly stable with little progression) I am so thankful that so many have options today!!!

[twooldcrows in reply to DM0329]

wow i really don't know what age it really started but i am 67 and i am on OCREVUS and this is the best i have felt since my first flare in 2004 november ....been on two types of shots and pills but this infusion i think is the best thing to come out of any of this....yes i am not back to what i was years before 2004 but it is getting better than ever before ....good luck to all on here for what works for one may not for another but i believe on trying to use what can help me ...love and much happiness....if ya need to talk we all on here are great to listen ...have a great day ....laugh and smile ....

[rjoneslaw]

if it helps u do it