Mavenclad Year 1 complete

[Lilith08]

Well, it looks like I've been quite fortunate: Cycles 1 and 2 of Year 1 have been completed without noticeable side effects. Phew! Cycle 2 offered a couple of small things that made me wonder if they were side effects: 1) what looked like a small cold sore on my lip; I've never had one before, and it only lasted about three days, so I'm not sure. Could have just been chapped; and 2) trouble sleeping during the time I was taking the pills; this could be purely coincidental, as insomnia comes around every now and then.

Next steps: new baseline MRI next week, followed by blood work two months after last dose, and again six months after first dose. I gather that for the next couple months I'm still at increased risk of infection while my immune system rebuilds itself. Am crossing my fingers that my good fortune holds!

[jimeka]

Pleased that it is going well for you. 👍

[kdali]

Hooray!! I hope your second round is uneventful and then you get to be DONE! 🎉

[Kenu]

Nice to hear no real side effects 🤞 Sounds like it’s going well 👍🙏😉🐾 Ken 🐾🐾🐾🐾

[Goldilockssearching]

🎉👏🏻

[bxrmom]

So glad to hear you didn't have too bad of side effects. Thanks for keeping us updated.

[greaterexp]

Hurrah! Thanks for the update!

[FindingAnswersMaccy]

How have you been doing on Mavenclad

[Lilith08 in reply to FindingAnswersMaccy]

I’ve just completed Round 1 of Year 2–just two days ago! This time I had a slight stomach ache on the first three nights, even though I had taken the pills after dinner.

Over the past year I’ve done pretty well, I’d say—didn’t have any illnesses, but of course I haven’t been around people as much as in the past. I have had increased spasticity in my legs but that started before the Mavenclad. I also feel sure that the spasticity is made worse by the junk food I’ve been eating since the pandemic started, so I don’t think Mavenclad has anything to do with it.

I had brain and cervical MRIs in June, no changes, and my blood work was unremarkable.

[kdali in reply to Lilith08]

Ty for the update! 🎉