Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,963 members • 20,684 posts

All posts for August 2018

A lack of motivation

Woke up, got out of bed, took my morning Tecfidera. Made a phone call, just said no gym today see you Sunday and went back to bed until 11 am. I am not...

Woke up, got out of bed, took my morning Tecfidera. Made a phone call, just sa...

RoyceNewton

•6 years ago

20 Replies

Sweating my @#$$ off

I'm oma and have been dx since 2001. One of my main symptoms is sweating from my forehead. I can't get botox because they don't do it for medical reasons. Even...

I'm oma and have been dx since 2001. One of my main symptoms is sweating from my...

Hidden

•6 years ago

5 Replies

Hiya

While my husband is away at work I get the whole queen size mattress to myself

tiffie07

•6 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Have you taken your needs assessment?

This keeps popping up every time I log in to the site. I did mine today, have you done yours? Jessie

This keeps popping up every time I log in to the site. I did mine today, have yo...

bxrmom

•6 years ago

1 Reply

Tecfidera, Gilenya Equally Effective, But More MS Patients Stop Tecfidera, Real-World Study Shows

Thought this was interesting:...

bxrmom

•6 years ago

Be the first to reply

So it looks like they now think I am PPMS

I always thought it was odd that my MRIs have never changed since I was first diagnosed. While I thought I had a lot of brain and a fewer number of c-spine...

I always thought it was odd that my MRIs have never changed since I was first di...

erash

•6 years ago

39 Replies

MS specialist

They called this afternoon I have an appointment with an MS specialist over in Cincinnati Ohio Sept 28th. I never thought it would happen Wow! I'm spinning...

They called this afternoon I have an appointment with an MS specialist over in C...

kycmary

•6 years ago

11 Replies

Finally

I don’t know how i did it but I finally managed to take my first copaxone injection. And of course it went really well just minor stinging which was gone...

I don’t know how i did it but I finally managed to take my first copaxone inject...

Jeremyhess1980

•6 years ago

14 Replies

Website

For Information on LDN go to: www.lowdosenaltrexone.org I'm still in the trial phase myself, but I hope this will help answer questions.

For Information on LDN go to: www.lowdosenaltrexone.org I'm still in the trial p...

mrshaney

•6 years ago

3 Replies

Finally

I don’t know how i did it but I finally managed to take my first copaxone injection. And of course it went really well just minor stinging which was gone...

I don’t know how i did it but I finally managed to take my first copaxone inject...

Jeremyhess1980

•6 years ago

2 Replies

Thank you for...

I need to say this more often. I thank my women and my joint dog, but I should make an effort to thank others more often. Perhaps my motivation is partly...

I need to say this more often. I thank my women and my joint dog, but I should...

RoyceNewton

•6 years ago

12 Replies

WOW! Stem Cell Therapy For our M.ons.ter!👍

Well, this sure looks Promising, it has helped this guy out! 📦💝👍👍Love Ya'all!🌹 https://youtu.be/mpWmlw7ojys

Well, this sure looks Promising, it has helped this guy out! 📦💝👍👍Love Ya'all...

Jazzyinco

•6 years ago

8 Replies

Massage

Been really rough for me getting all stress out as everyone knows brings horrible symptoms,but i was reading about massage therapist it sounds awesom im n...

Been really rough for me getting all stress out as everyone knows brings horribl...

luvhair

•6 years ago

10 Replies

My stupid Labor Day weekend and "stay-cation"...

My Labor Day weekend will be doing a prep for my colonoscopy on Tues. morning. They still haven't figured out why I've had diarrhea for 26 days straight....

My Labor Day weekend will be doing a prep for my colonoscopy on Tues. morning. ...

mrsmike9

•6 years ago

21 Replies

July 4 2018

I updated my picture with my honey.

mrshaney

•6 years ago

7 Replies

Great, simple exercises for your feet

These seem so simple yet beneficial that I thought I would share: https://www.youtube.com/watch?v=y6ex3QWdg_c It feels really good if you do the exercise with...

These seem so simple yet beneficial that I thought I would share: https://www.yo...

anaishunter

•6 years ago

8 Replies

Be mindful

rjoneslaw

•6 years ago

7 Replies

Drug side effects

rjoneslaw

•6 years ago

11 Replies

Generosity

Think about it for 2 seconds. "YOU" and I are now chronically disabled, for the rest of our lives. The average age expectancy I believe is 80ish, give...

Think about it for 2 seconds. "YOU" and I are now chronically disabled, for...

RoyceNewton

•6 years ago

4 Replies

Low Dose Naltrexone (LDN)

I've been away (from this site) for awhile and, I'll play catch up later. I started taking LDN 2 weeks ago, so far so good. If anyone has taken LDN, please...

I've been away (from this site) for awhile and, I'll play catch up later. I star...

mrshaney

•6 years ago

14 Replies

Help paying Dr. Bills

Does anyone know if I can get help paying my Chiropractor's Bills and how? I see him every 2 weeks and it's very expensive. Thanks! Leslie

Does anyone know if I can get help paying my Chiropractor's Bills and how? I se...

lbenmaor

•6 years ago

16 Replies

New Video - Yoga and MS: Start Where You Are

Hello everyone! I wanted to share with you the latest video from MSAA, which is a webcast called, "Yoga and MS: Start Where You Are" featuring yoga therapist...

Hello everyone! I wanted to share with you the latest video from MSAA, which is ...

MSAA_Staff

•6 years ago

3 Replies

Labor Day

It's fast approaching! Many of us have traditional activities and foods we love to make for this weekend. Would you share what yours are? If you have a...

It's fast approaching! Many of us have traditional activities and foods we love...

greaterexp

•6 years ago

26 Replies

responsibility

Thinking about it as I do. it is not now nor has it ever been mine or your responsibility to make somebody comfortable with ms. I am not responsible, but is...

Thinking about it as I do. it is not now nor has it ever been mine or your res...

RoyceNewton

•6 years ago

2 Replies

Tia Chi on Amazon for free for prime members

Anna York is a certified instructor who was recommended by the MS society has posted one of her videos on Amazon Prime to be viewed for free. I do personally...

Anna York is a certified instructor who was recommended by the MS society has po...

rjoneslaw

•6 years ago

8 Replies

Ocrevus 1st infusion scheduled!

O-day is Sept 14th. P.S. B/C I missed the opportunity for the Shingrix (shingles vaccine) and b/c O can increase risk of shingles/herpes, and after discussion...

O-day is Sept 14th. P.S. B/C I missed the opportunity for the Shingrix (shingle...

erash

•6 years ago

14 Replies

5 Activities for People with Primary Progressive MS

5 Activities for People with Primary Progressive MS I thought this would of interest to those with PPMS. I will later do a post for a Tia Chi class that you...

5 Activities for People with Primary Progressive MS I thought this would of inte...

rjoneslaw

•6 years ago

2 Replies

Ocrevus OMG

So for those of you that know I started OK best back in May and my next treatment should be in November . In addition my symptoms have not gotten better they...

So for those of you that know I started OK best back in May and my next treatme...

dallas343

•6 years ago

8 Replies

Not really a question

Just got out of the hospital I have pneumonia. Found out because my whole body went to a spasm fell out of bed had to call nine-one-one just got home today...

Just got out of the hospital I have pneumonia. Found out because my whole body ...

REDLIPS44

•6 years ago

22 Replies

Lift Chair

Is there any Ms site that helps with the finances for a lift chair

REDLIPS44

•6 years ago

3 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2018

A lack of motivation

Sweating my @#$$ off

Hiya

Have you taken your needs assessment?

Tecfidera, Gilenya Equally Effective, But More MS Patients Stop Tecfidera, Real-World Study Shows

So it looks like they now think I am PPMS

MS specialist

Finally

Website

Finally

Thank you for...

WOW! Stem Cell Therapy For our M.ons.ter!👍

Massage

My stupid Labor Day weekend and "stay-cation"...

July 4 2018

Great, simple exercises for your feet

Be mindful

Drug side effects

Generosity

Low Dose Naltrexone (LDN)

Help paying Dr. Bills

New Video - Yoga and MS: Start Where You Are

Labor Day

responsibility

Tia Chi on Amazon for free for prime members

Ocrevus 1st infusion scheduled!

5 Activities for People with Primary Progressive MS

Ocrevus OMG

Not really a question

Lift Chair

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