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My MSAA Community

8,967 members • 20,687 posts

All posts for April 2023

Perfect days

I am letting you know the results of my MRI on my back that I’m having such pain with. It looks the same as the one from two years ago, so there are no...

I am letting you know the results of my MRI on my back that I’m having such pain...

•1 year ago

Little Laughter 😂

Good Morning sunshine ☀️ We have skipped spring and jumped into summer. Now it’s flood time for many in the west. Insurance is so crazy sometimes when they...

Good Morning sunshine ☀️ We have skipped spring and jumped into summer. Now it’s...

•1 year ago

Body Shutdown

I've had two occasions this month where my body has been none responsive! The first one was me climbing some stairs to get to the bathroom at my friend's...

I've had two occasions this month where my body has been none responsive! The fi...

•1 year ago

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2 yrs. ago today!

I can't believe the time has pased so quickly since my accident. I am so grateful that I can walk without a walker and continue to exercise. Leslie

I can't believe the time has pased so quickly since my accident. I am so gratef...

•1 year ago

Ugh! I forgot the step!!!!

live update: I had to make a quick dismount from tractor. Code YELLOW! So I made it without soiling myself BUT I left step stool in tractor cab. Luckily I...

live update: I had to make a quick dismount from tractor. Code YELLOW! So I m...

•1 year ago

28 Jan 2023 Think outside the box

G'day Relapsing Remitting ms (RRms) sisters and brothers. I hope your day is going well and that YOU are getting everything done that YOU wanted to today....

G'day Relapsing Remitting ms (RRms) sisters and brothers. I hope your day is g...

•1 year ago

Neurogenic bladder help!

Hi everyone! Male, looking for some advice on my bladder issues. I've been diagnosed 14 years ago and the last few years my bladder issues have been getting...

Hi everyone! Male, looking for some advice on my bladder issues. I've been diagn...

•1 year ago

A Lot Less Alone

I just want to thank everyone for the very warm welcome. I feel as though I'm meeting long lost family members for the very first time and it's very...

I just want to thank everyone for the very warm welcome. I feel as though I'm m...

•1 year ago

Chick magnet 🐣

I thought this was cute ☺️

I thought this was cute ☺️

•1 year ago

26 Apr 2023 A day like any other

G'day ms Sisters and Brothers. Be happy and content today. Allow your medicine to slow the progression of your illness. Stop when YOU need to, and...

G'day ms Sisters and Brothers. Be happy and content today. Allow your medi...

•1 year ago

Day after day

Really starting to feel like this cat. If I like you fine but if not I may attack, lol. Just feel like I am done with everyone's selfishness. The world needs...

Really starting to feel like this cat. If I like you fine but if not I may attac...

•1 year ago

Little Laughter 😂

Looks like we might get a spring day today finally 🤞🏼. Rough day yesterday but feeling better this morning so far🤞🏼. The crazy journey we live in🤪 Have a...

Looks like we might get a spring day today finally 🤞🏼. Rough day yesterday but...

•1 year ago

Prevent injury

Use the 2 wheeled rollator the next time you hop on the beam! 😫

Use the 2 wheeled rollator the next time you hop on the beam! 😫

•1 year ago

Brand new here

Hi everyone, so far having a difficult time trying to post and navigate, but then when you have ms sometimes you can expect difficulties sometimes! Will keep...

Hi everyone, so far having a difficult time trying to post and navigate, but the...

•1 year ago

New member: Hello!

New to this group, not new to MS. Having my kind-of-yearly MRI tomorrow and nervous as usual. What are some things you do to stay calm before, during, and...

New to this group, not new to MS. Having my kind-of-yearly MRI tomorrow and nerv...

•1 year ago

Getting my dog trained

I HAVE A 11MONTH LABRADOR RETRIEVER THAT I NEED HIM TRAINED

I HAVE A 11MONTH LABRADOR RETRIEVER THAT I NEED HIM TRAINED

•1 year ago

Little laughter 🤭

I woke up this morning at 6 o’clock as usual and I was feeding Rozy a headache was beginning so I took a Nurtec and went back to bed. I got up at 10 o’clock...

I woke up this morning at 6 o’clock as usual and I was feeding Rozy a headache w...

•1 year ago

Undiagnosed for decades

It took me twelve years to take my multiple sclerosis seriously. The only treatment for MS is to catch it early, and it looks like I have had it for decades...

It took me twelve years to take my multiple sclerosis seriously. The only treatm...

•1 year ago

MS relapse indications

Hello all,In the past year I have noticed (paying more attention to) pre relapse indicators/triggers. I realized my relapses have a indicator. It came to me...

Hello all,In the past year I have noticed (paying more attention to) pre relapse...

•1 year ago

24 Apr 2023 Politeness

G'day family. today I am going to lecture YOU on my opinion. That means ignore it if YOU like, it is just my opinion. YOU have ms, this does not give YOU...

G'day family. today I am going to lecture YOU on my opinion. That means ignore...

•1 year ago

NMES and FES units

considering trying a FES like the Bioness unit for foot drop. Downside is high cost and I have heard they don’t loike rain or even humidity. NMES units are...

considering trying a FES like the Bioness unit for foot drop. Downside is high c...

•1 year ago

Dalfpridine

i have not experienced any increased dizziness or spasticity. It improves my alertness and decreaseds fatigue. I definitely get weaker if I miss a dose.

i have not experienced any increased dizziness or spasticity. It improves my ale...

•1 year ago

23 Apr 2023 I got caught and I am sorry

G'Day ms Sisters and Brothers, yesterday I ignored my mail and my box got full, so If YOu wrote to me and I did not reply, the chances are that the system...

G'Day ms Sisters and Brothers, yesterday I ignored my mail and my box got full, ...

•1 year ago

24 Apr 2023 Do not be scared you are okay.

G'day my Relapsing Remitting ms Sisters and Brothers. I am serious, You are going to be okay. Right now this disease seems overwhelming, beyond your...

G'day my Relapsing Remitting ms Sisters and Brothers. I am serious, You are g...

•1 year ago

Little laughter 😂

Rain today and tomorrow but it’s an improvement over snow. Headache is a little less intense but still having dizziness 😵‍💫. Not sure yet about Nurtec will...

Rain today and tomorrow but it’s an improvement over snow. Headache is a little ...

•1 year ago

Upright walkers!

My 1st experience with an upright Walker was when I was rehabilitating after my knee surgery. I only used it once but I loved it because I felt so secure in it...

My 1st experience with an upright Walker was when I was rehabilitating after my ...

CommunityAmbassador•1 year ago

paradoxical dalfampridine/Ampyra effects?

so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very...

so I took my first doses yesterday, felt like I was moving faster, my balance wa...

•1 year ago

Happy Birthday Sandydemop

Let’s all wish Sandy a happy birthday! Sorry Sandy, I am bad at putting neat birthday pictures in the heading! But in my mind I have pictured a nice card with...

Let’s all wish Sandy a happy birthday! Sorry Sandy, I am bad at putting neat bir...

•1 year ago

Little Laughter 😂

Good morning the sun ☀️ is finally shining but watches are out for flooding. Maybe we are going to skip spring and go straight into summer 🤷‍♂️. I got some...

Good morning the sun ☀️ is finally shining but watches are out for flooding. May...

•1 year ago

23 April 2023 the strangeness of RRms

G'Day RRms {Relapsing Remitting ms) Sisters and Brothers. Did I mention that this disease is strange? 20+ years along my RRms journey and today I first...

G'Day RRms {Relapsing Remitting ms) Sisters and Brothers. Did I mention that t...

•1 year ago

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