Posts - My MSAA Community | HealthUnlocked

My MSAA Community

8,967 members • 20,687 posts

All posts for September 2023

Exercise Bike!

I used my Exercise Bike yesterday. I am so lucky I can use it.😀 Leslie

I used my Exercise Bike yesterday. I am so lucky I can use it.😀 Leslie

•7 months ago

29 Sep 2023 Any sleep suggestions

G'Day family. Has anybody got any good sleep suggestions. I think I have done most of the usual stuff, now I need some pharma ideas. So if YOU have a...

G'Day family. Has anybody got any good sleep suggestions. I think I have don...

•7 months ago

29 Sept 2023 Good Morning Everybody

G'day, how are YOU today? Serious question, how are YOU? No reason to be scared. It is just Relapsing-Remitting ms (RRms). You can live with this and...

G'day, how are YOU today? Serious question, how are YOU? No reason to be sc...

•7 months ago

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Vaccines

Has anyone receiving Ocrevus get a flu or covid vaccine? I have been advised to get them at the same time,, at least a month prior to my next infusion. Just...

Has anyone receiving Ocrevus get a flu or covid vaccine? I have been advised to...

•7 months ago

Anxiety

Does anyone have any recommendations for dealing with anxiety?

Does anyone have any recommendations for dealing with anxiety?

•7 months ago

28 Sep 2023 Have a great day

G'day ms family, especially YOU newly diagnosed (newbies). Remember it is not as bad as YOU think, or as much as they say. Odds are that YOU will not be in...

G'day ms family, especially YOU newly diagnosed (newbies). Remember it is not ...

•7 months ago

Breast Cancer and MS

SO I have lurked here on occasion, but I have very recently been diagnosed with Breast Cancer. It has been caught really early, so I feel good about that, but...

SO I have lurked here on occasion, but I have very recently been diagnosed with ...

•7 months ago

Hi There

Does anyone know how KenU is? I miss his posts, his upbeat attitude, and his jokes.

Does anyone know how KenU is? I miss his posts, his upbeat attitude, and his jok...

•7 months ago

Update on Kenu

Just a quick update on Kenu. I saw him last night and he looks good. He is just as mischievous as ever! I mentioned that everyone here has been concerned. I...

Just a quick update on Kenu. I saw him last night and he looks good. He is just ...

•7 months ago

I really do want to know 7!

It is a crazy world! And as you can see, l have been left to my own devices... Sooooo .... Where is everybody from? 🤔 (didnt expect that did ya??) 🙃🤣😂 I...

It is a crazy world! And as you can see, l have been left to my own devices... ...

CommunityAmbassador•7 months ago

Further delays in next Ocrevus infusion

Just FYI. I did another round of blood tests prior to scheduling the next O infusion. Neuro says my immune system has not bounced back enough so he wants to...

Just FYI. I did another round of blood tests prior to scheduling the next O infu...

•7 months ago

26 Sep 2023 streamed for npc good reason

G'day ms family, yes that does include YOU Newly Diagnosed (Newbies). I am stressed for no good reason. 25ish years of this ms adventure, YOU would think I...

G'day ms family, yes that does include YOU Newly Diagnosed (Newbies). I am str...

•7 months ago

Who has the cookies?

See carolek572 ! 😂🤣😂 But, seriously. Who has the cookies? 🤔 🤗💕🌠

See carolek572 ! 😂🤣😂 But, seriously. Who has the cookies? 🤔 🤗💕🌠

CommunityAmbassador•7 months ago

Interesting Time in My Life

I have been caregiving for the spouse of a dear friend for the past month. She has dementia and the spouse is in the hospital. I will be doing this for at...

I have been caregiving for the spouse of a dear friend for the past month. She h...

•7 months ago

Ocrevus?

I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they...

I just had my first visit with an MS specialist at a teaching hospital in Califo...

•7 months ago

Kenu, We All Miss You 🧐

Amore55mentioned that your migraines are not leaving you alone! Everyone on this forum is hoping that you feel better soon! 🙏🙏🙏

Amore55mentioned that your migraines are not leaving you alone! Everyone on this...

CommunityAmbassador•7 months ago

What's New in MS Research

The latest edition of “What’s New in MS Research” features a wide variety of topics and recent research findings. Read it now:...

The latest edition of “What’s New in MS Research” features a wide variety of top...

Partner•7 months ago

Pain Medication Question

Any advice for pain medication. Husband is on hospice and bedridden. Leg muscles have atrophied. He experiences pain when he is moved by caregiver....

Any advice for pain medication. Husband is on hospice and bedridden. Leg muscl...

•7 months ago

Sunday Sept 4 2023

G'day ms family, cheer up. smile. Do not look at this as the end of your dreams. YOU are a strong Homo Sapien (Human Being) YOU can get through this,...

G'day ms family, cheer up. smile. Do not look at this as the end of your dream...

•7 months ago

Stable MRIs, worsening pain/spasticity and leg weakness.

I had to change neurologists a few years ago due to insurance, which has been really unfortunate since my MS seems to be getting worse and my neuro and his...

I had to change neurologists a few years ago due to insurance, which has been re...

•7 months ago

hair shedding/breaking

I know this is an old post but have anyone suffering with this hair shedding/breaking found a remedy? Besides getting off Ocrevus (which I believe is also the...

I know this is an old post but have anyone suffering with this hair shedding/bre...

•7 months ago

Kenu?

Has anyone heard from Kenu? It’s been a long time since he’s posted anything. I hope and pray that he’s okay.

Has anyone heard from Kenu? It’s been a long time since he’s posted anything. I...

•7 months ago

23 Sept 2023 Topsy Turvey, inside out twisted

G'day ms family. What did I just describe, if YOU said "my life with ms", You got it right. Stop expecting A to B to C, this is NOT your life anymore....

G'day ms family. What did I just describe, if YOU said "my life with ms", You...

•7 months ago

My day! 🤣

This is pretty much how my day is adding up! 🙃🤣😂🤣Hope yall are having a great day! 🤗💕🌠

This is pretty much how my day is adding up! 🙃🤣😂🤣Hope yall are having a grea...

CommunityAmbassador•7 months ago

lifewave patching

ive started using life-wave patches. Has anyone heard of this? Now I’m seeing ads for tao patches that are similar.

ive started using life-wave patches. Has anyone heard of this? Now I’m seeing a...

•7 months ago

Newly Diagnosed with PPMS

I'm 70 years old and have been diagnosed for less than a year. Mobility problems, cognitive issues and fatigue have all gotten worse over the last few years....

I'm 70 years old and have been diagnosed for less than a year. Mobility problem...

•7 months ago

To soon?🎃

Thats a whole lotta sheet! 🎃 (sheet larger than the person!) Can you think of more? AND you have describe the costume!🙂🎃 🤗💕🌠

Thats a whole lotta sheet! 🎃 (sheet larger than the person!) Can you think of ...

CommunityAmbassador•7 months ago

Does anyone...

Drink Ensure or Boost? 🤔 Inquiring mind wants to know🙂 Do you find it makes a difference? As in energy, feel better, blah blah blah 🤣😂🤣 and this question...

Drink Ensure or Boost? 🤔 Inquiring mind wants to know🙂 Do you find it makes a ...

CommunityAmbassador•7 months ago

21 SEP2023 TRY TRY TRY HARDER TRY SMARTER BUT TRY

G'day Relapsing-Remitting ms (RRms) family. I hope YOU all are well rested and ready to engage in the joys that today brings. Let YOU in on a secret. WE...

G'day Relapsing-Remitting ms (RRms) family. I hope YOU all are well rested an...

•7 months ago

Ha! Pandemic is over right?

Guess what?!? 🤣🤣🤗💕🌠

Guess what?!? 🤣🤣🤗💕🌠

CommunityAmbassador•7 months ago

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