Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,494 members•21,325 posts

All posts for September 2023

Exercise Bike!

I used my Exercise Bike yesterday. I am so lucky I can use it.😀 Leslie

lbenmaor

•1 year ago

11 Replies

29 Sep 2023 Any sleep suggestions

G'Day family. Has anybody got any good sleep suggestions. I think I have done most of the usual stuff, now I need some pharma ideas. So if YOU have a...

G'Day family. Has anybody got any good sleep suggestions. I think I have don...

RoyceNewton

•1 year ago

10 Replies

29 Sept 2023 Good Morning Everybody

G'day, how are YOU today? Serious question, how are YOU? No reason to be scared. It is just Relapsing-Remitting ms (RRms). You can live with this and...

G'day, how are YOU today? Serious question, how are YOU? No reason to be sc...

RoyceNewton

•1 year ago

5 Replies

Want to take advantage of all our features? Just log in!

Vaccines

Has anyone receiving Ocrevus get a flu or covid vaccine? I have been advised to get them at the same time,, at least a month prior to my next infusion. Just...

Has anyone receiving Ocrevus get a flu or covid vaccine? I have been advised to...

GoingCrazy_

•1 year ago

11 Replies

Anxiety

Does anyone have any recommendations for dealing with anxiety?

GoingCrazy_

•1 year ago

10 Replies

28 Sep 2023 Have a great day

G'day ms family, especially YOU newly diagnosed (newbies). Remember it is not as bad as YOU think, or as much as they say. Odds are that YOU will not be in...

G'day ms family, especially YOU newly diagnosed (newbies). Remember it is not ...

RoyceNewton

•1 year ago

2 Replies

Breast Cancer and MS

SO I have lurked here on occasion, but I have very recently been diagnosed with Breast Cancer. It has been caught really early, so I feel good about that, but...

SO I have lurked here on occasion, but I have very recently been diagnosed with ...

mintlatte

•1 year ago

7 Replies

Hi There

Does anyone know how KenU is? I miss his posts, his upbeat attitude, and his jokes.

Does anyone know how KenU is? I miss his posts, his upbeat attitude, and his jok...

Rubybegonia

•1 year ago

1 Reply

Update on Kenu

Just a quick update on Kenu. I saw him last night and he looks good. He is just as mischievous as ever! I mentioned that everyone here has been concerned. I...

Just a quick update on Kenu. I saw him last night and he looks good. He is just ...

Amore55

•1 year ago

22 Replies

I really do want to know 7!

It is a crazy world! And as you can see, l have been left to my own devices... Sooooo .... Where is everybody from? 🤔 (didnt expect that did ya??) 🙃🤣😂 I...

It is a crazy world! And as you can see, l have been left to my own devices... ...

Jesmcd2

CommunityAmbassador•1 year ago

85 Replies

Further delays in next Ocrevus infusion

Just FYI. I did another round of blood tests prior to scheduling the next O infusion. Neuro says my immune system has not bounced back enough so he wants to...

Just FYI. I did another round of blood tests prior to scheduling the next O infu...

anaishunter

•1 year ago

12 Replies

26 Sep 2023 streamed for npc good reason

G'day ms family, yes that does include YOU Newly Diagnosed (Newbies). I am stressed for no good reason. 25ish years of this ms adventure, YOU would think I...

G'day ms family, yes that does include YOU Newly Diagnosed (Newbies). I am str...

RoyceNewton

•1 year ago

5 Replies

Who has the cookies?

See carolek572 ! 😂🤣😂 But, seriously. Who has the cookies? 🤔 🤗💕🌠

Jesmcd2

CommunityAmbassador•1 year ago

24 Replies

Interesting Time in My Life

I have been caregiving for the spouse of a dear friend for the past month. She has dementia and the spouse is in the hospital. I will be doing this for at...

I have been caregiving for the spouse of a dear friend for the past month. She h...

Amore55

•1 year ago

26 Replies

Ocrevus?

I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they...

I just had my first visit with an MS specialist at a teaching hospital in Califo...

Szs3eb

•1 year ago

27 Replies

Kenu, We All Miss You 🧐

Amore55mentioned that your migraines are not leaving you alone! Everyone on this forum is hoping that you feel better soon! 🙏🙏🙏

Amore55mentioned that your migraines are not leaving you alone! Everyone on this...

carolek572

CommunityAmbassador•1 year ago

15 Replies

What's New in MS Research

The latest edition of “What’s New in MS Research” features a wide variety of topics and recent research findings. Read it now:...

The latest edition of “What’s New in MS Research” features a wide variety of top...

MSAA_archived

•1 year ago

2 Replies

Pain Medication Question

Any advice for pain medication. Husband is on hospice and bedridden. Leg muscles have atrophied. He experiences pain when he is moved by caregiver....

Any advice for pain medication. Husband is on hospice and bedridden. Leg muscl...

EVuser

•1 year ago

20 Replies

Sunday Sept 4 2023

G'day ms family, cheer up. smile. Do not look at this as the end of your dreams. YOU are a strong Homo Sapien (Human Being) YOU can get through this,...

G'day ms family, cheer up. smile. Do not look at this as the end of your dream...

RoyceNewton

•1 year ago

4 Replies

Stable MRIs, worsening pain/spasticity and leg weakness.

I had to change neurologists a few years ago due to insurance, which has been really unfortunate since my MS seems to be getting worse and my neuro and his...

I had to change neurologists a few years ago due to insurance, which has been re...

CatsandCars

•1 year ago

15 Replies

hair shedding/breaking

I know this is an old post but have anyone suffering with this hair shedding/breaking found a remedy? Besides getting off Ocrevus (which I believe is also the...

I know this is an old post but have anyone suffering with this hair shedding/bre...

Plantmom15

•1 year ago

15 Replies

Kenu?

Has anyone heard from Kenu? It’s been a long time since he’s posted anything. I hope and pray that he’s okay.

Has anyone heard from Kenu? It’s been a long time since he’s posted anything. I...

Kitsey

•1 year ago

6 Replies

23 Sept 2023 Topsy Turvey, inside out twisted

G'day ms family. What did I just describe, if YOU said "my life with ms", You got it right. Stop expecting A to B to C, this is NOT your life anymore....

G'day ms family. What did I just describe, if YOU said "my life with ms", You...

RoyceNewton

•1 year ago

1 Reply

My day! 🤣

This is pretty much how my day is adding up! 🙃🤣😂🤣Hope yall are having a great day! 🤗💕🌠

This is pretty much how my day is adding up! 🙃🤣😂🤣Hope yall are having a grea...

Jesmcd2

CommunityAmbassador•1 year ago

16 Replies

lifewave patching

ive started using life-wave patches. Has anyone heard of this? Now I’m seeing ads for tao patches that are similar.

ive started using life-wave patches. Has anyone heard of this? Now I’m seeing a...

Neworleanslady

•1 year ago

10 Replies

Newly Diagnosed with PPMS

I'm 70 years old and have been diagnosed for less than a year. Mobility problems, cognitive issues and fatigue have all gotten worse over the last few years....

I'm 70 years old and have been diagnosed for less than a year. Mobility problem...

alsorenson

•1 year ago

19 Replies

To soon?🎃

Thats a whole lotta sheet! 🎃 (sheet larger than the person!) Can you think of more? AND you have describe the costume!🙂🎃 🤗💕🌠

Thats a whole lotta sheet! 🎃 (sheet larger than the person!) Can you think of ...

Jesmcd2

CommunityAmbassador•1 year ago

27 Replies

Does anyone...

Drink Ensure or Boost? 🤔 Inquiring mind wants to know🙂 Do you find it makes a difference? As in energy, feel better, blah blah blah 🤣😂🤣 and this question...

Drink Ensure or Boost? 🤔 Inquiring mind wants to know🙂 Do you find it makes a ...

Jesmcd2

CommunityAmbassador•1 year ago

12 Replies

21 SEP2023 TRY TRY TRY HARDER TRY SMARTER BUT TRY

G'day Relapsing-Remitting ms (RRms) family. I hope YOU all are well rested and ready to engage in the joys that today brings. Let YOU in on a secret. WE...

G'day Relapsing-Remitting ms (RRms) family. I hope YOU all are well rested an...

RoyceNewton

•1 year ago

4 Replies

Ha! Pandemic is over right?

Guess what?!? 🤣🤣🤗💕🌠

Jesmcd2

CommunityAmbassador•1 year ago

16 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2023

Exercise Bike!

29 Sep 2023 Any sleep suggestions

29 Sept 2023 Good Morning Everybody

Vaccines

Anxiety

28 Sep 2023 Have a great day

Breast Cancer and MS

Hi There

Update on Kenu

I really do want to know 7!

Further delays in next Ocrevus infusion

26 Sep 2023 streamed for npc good reason

Who has the cookies?

Interesting Time in My Life

Ocrevus?

Kenu, We All Miss You 🧐

What's New in MS Research

Pain Medication Question

Sunday Sept 4 2023

Stable MRIs, worsening pain/spasticity and leg weakness.

hair shedding/breaking

Kenu?

23 Sept 2023 Topsy Turvey, inside out twisted

My day! 🤣

lifewave patching

Newly Diagnosed with PPMS

To soon?🎃

Does anyone...

21 SEP2023 TRY TRY TRY HARDER TRY SMARTER BUT TRY

Ha! Pandemic is over right?

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive