1st full Ocrevus infusion today - all good

[anaishunter]

After all the pain to get the treatment approved by my new health care insurance, it finally happened.

Nothing to report, it all went fine:

- I drove myself to and back, about an hour each way - in by 7:30am, our by 1:15pm.

- I did take advantage of the Benadryl to nap and it went really fast.

I'm expecting a "high" tomorrow because of the steroids, but I'll enjoy that too...

Now I wonder whether Ocrevus for me will be once every 12 months.

[greaterexp]

Hurrah!

[rjoneslaw]

that's great

[Kenu]

That is Great 👍. Hope it works Wonders for you 🙏😉 Ken 🐾🐾

[jimeka]

Glad it went well, let’s hope you can have it twice a year 👍

[carolek572 CommunityAmbassador]

Hooray! So happy that you had your O infusion. Your experience was similar to mine. You mentioned that your infusion schedule will be yearly? And not every 6 months. That sounds fantastic. Keep Smiling

[erash]

👍 glad it went well 😊

Why yearly rather than every 6 mos?

[pamgarner]

glad it went well for you,it is always easy-peasey for me,the hard part is the insurance,you are correct.I think it is a master plan for us to give up! no way

[Elizt3]

Great news! I had my first full dose about a month ago and I’m feeling fine.

Did your doctor say you might be able to go to once a year? Just curious.

[anaishunter in reply to Elizt3]

I don't know yet. I will see my neuro in Oct and this is one of my questions: do I expect Ocrevus to deplete my T-cells at every infusion?

I suspect he will ask me to do blood test in 6 months (Jan.2020) and we will monitor after that when my immune system has recovered and can handled the next infusion.

(BTW, I'm doing great 48hr after the first full dose, not tired.)

[kycmary]

That is great I had my 1st full dose in June I get my next in Dec. Just take each month 1 day at a time, I'm doing great too & so will you. Think positive it helps. Mary