Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,351 members • 21,119 posts

All posts for June 2024

rn or lpn tampa needed p/t

looking for lpn or rn to catheterize brother w ms inTampa, Florida. if you know/have someone please send contact info🙏

looking for lpn or rn to catheterize brother w ms inTampa, Florida. if you know...

browms

•3 months ago

3 Replies

Different Types of MS

I was reading a post on another online group earlier today and realized I really needed this for clarity. Maybe you do too. Robbie Multiple sclerosis (MS) is...

I was reading a post on another online group earlier today and realized I really...

robster1

•3 months ago

15 Replies

Terrified Before Appointment

Hey all! I’m a female, in my 30s and looking for a little support as I freak out about an upcoming doctor appointment. Long story short, I have diagnosed...

Hey all! I’m a female, in my 30s and looking for a little support as I freak ou...

Totmama

•3 months ago

78 Replies

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I don't know what to write.

I was diagnosed in 4 and a 1/2 almost 5 years ago and don't know exactly which type of MS I have, but the symptoms are so different all the time. I wouldn't...

I was diagnosed in 4 and a 1/2 almost 5 years ago and don't know exactly which t...

NicoleWard529

•3 months ago

14 Replies

Anyone have a g-tube or feeding tube?

I have one because I can’t swallow. It has been good to not be malnourished or dehydrated. Would love to talk to someone who uses. No one around me knows...

I have one because I can’t swallow. It has been good to not be malnourished or d...

Kellygrn

•3 months ago

8 Replies

daily pain

My MS affect my feet and ankles with constant pain. How am I supposed to lead a productive life I am fatigued with the disease, the Rx, the heat, and age....

My MS affect my feet and ankles with constant pain. How am I supposed to lead a ...

AllDayPain

•3 months ago

23 Replies

joining community

Hello everyone, just joined the community after to many years sitting on the sidelines.

Hello everyone, just joined the community after to many years sitting on the sid...

Dolphin02

•3 months ago

13 Replies

whill electric wheelchair for sale cheap $200 left-hand toggle lithium battery text:7602146475

whill heavy duty, four wheel wheelchair, left-hand toggle for sale, Ocala, Florida text 760-214-7475

whill heavy duty, four wheel wheelchair, left-hand toggle for sale, Ocala, Flori...

Farfalla47

•3 months ago

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Hello 👋🏿

Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of...

Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multip...

RessieBare02

•3 months ago

30 Replies

I have PPMS.

I have PPMS. I take stock every year of what I've lost since the previous year. It's been 20 years since I noticed the progression, but ignored it for years....

I have PPMS. I take stock every year of what I've lost since the previous year...

MrB51

•3 months ago

21 Replies

MS Community

Hi Everyone, i am happy i was able to find and connect with this community of folks dealing with MD. I was diagnosed in 2018 snd started treatment in 2022....

Hi Everyone, i am happy i was able to find and connect with this community of...

shamoneldy

•3 months ago

27 Replies

Is it needed?

Hi everyone, to all diagnosed with ms think a lumbar puncture is necessary for diagnosis?

Hi everyone, to all diagnosed with ms think a lumbar puncture is necessary for ...

anetap4545

•3 months ago

76 Replies

Free Medical ID items for those in need

I came across this and thought I would post in case anyone is interested....

CatsandCars

•3 months ago

2 Replies

new treatment

My neurologist has let me know that I have an “aggressive and advanced” MS based on my age (28) and time since diagnosis. (7 months) Steroids were the only...

My neurologist has let me know that I have an “aggressive and advanced” MS based...

LakerLi14

•3 months ago

22 Replies

new treatment

My neurologist has let me know that I have an “aggressive and advanced” MS based on my age (28) and time since diagnosis. (7 months) Steroids were the only...

My neurologist has let me know that I have an “aggressive and advanced” MS based...

LakerLi14

•3 months ago

4 Replies

Just Left My Doctor’s Office

I told everyone I would follow - up with you in reference to strange “stabbing “ sensations in my ears! The Neuro wants me to get a MRI and a (3) day round of...

I told everyone I would follow - up with you in reference to strange “stabbing “...

stepsforNeeC

•3 months ago

29 Replies

Shift Needed in Research, Treatment, Care for Aging MS Population

NASHVILLE, Tennessee — For the first time, the majority of patients with multiple sclerosis (MS) in the United States are, or soon will be, over age 55, a...

NASHVILLE, Tennessee — For the first time, the majority of patients with multipl...

BettysMom

•3 months ago

7 Replies

Update on Pelvic Floor Botox Injections!

As many of you know, I've been struggling with a lot of pain from tight pelvic floor muscles, so I got botox trigger point injections back in mid May. At...

As many of you know, I've been struggling with a lot of pain from tight pelvic f...

CatsandCars

•3 months ago

36 Replies

Mavenclad

My boyfriend is starting his first round of Mavenclad tomorrow morning. I am anxious and scared. Him even more so and so worried and apprehensive. I'm playing...

My boyfriend is starting his first round of Mavenclad tomorrow morning. I am anx...

TeacherAssistant

•3 months ago

10 Replies

DMTs in Aging MS Patients: When and How to Stop

The efficacy of disease-modifying therapies (DMTs) goes down with advancing age. One meta-analysis of 38 randomized trials and 13 therapies found that...

The efficacy of disease-modifying therapies (DMTs) goes down with advancing age....

BettysMom

•3 months ago

22 Replies

Bike!

Yesterday I used my indoor bike. I was so happy to be able to accomplish that.😀 Leslie

Yesterday I used my indoor bike. I was so happy to be able to accomplish that...

lbenmaor

•3 months ago

29 Replies

Why rush to the bathroom

when it can rush to you......at 70 MPH.😅😅

falalalala

•3 months ago

22 Replies

Here's to friends

Thank God for friends. At least twice now, Bruce & his wonderful grandma June have given me a beautiful place to live right on the river, and welcomed me into...

Thank God for friends. At least twice now, Bruce & his wonderful grandma June ha...

Equitube

•3 months ago

24 Replies

Excruciating pain with secondary progressive ms

Husband has been in excruciating pain for about six weeks unable to sleep. Well bomb dropped today not his MS causing it but cancer and has secondaries in his...

Husband has been in excruciating pain for about six weeks unable to sleep. Well...

mathematics

•3 months ago

46 Replies

Starting Mavenclad!

I've been on Ocrevus since early 2022, and I really do believe that it's a great drug. But when I started it, I could walk around the block, and my relapses...

I've been on Ocrevus since early 2022, and I really do believe that it's a great...

CatsandCars

•3 months ago

51 Replies

Day 5 of walking w/o a cane

I am walking better but am finding my limits. Bec of a train blocking the way. I wound up walking 5 miles. 1fall w/limited damage. Actually kind of impressed I...

I am walking better but am finding my limits. Bec of a train blocking the way. I...

Equitube

•3 months ago

13 Replies

Happy Juneteeth Day!

We are so lucky to be free!!😀 Leslie

lbenmaor

•3 months ago

5 Replies

Medical Alert Necklace and a Fun Baclofen Fact

I finally got a medical alert ID necklace saying that I have MS and a baclofen pump. I'm not crazy about things hanging around my neck, and the one I picked is...

I finally got a medical alert ID necklace saying that I have MS and a baclofen p...

CatsandCars

•3 months ago

18 Replies

Which shows/movies do you stream the most?

I always enjoy rewatching things and seeing another perspective., Game of Thrones is a good example. Sopranos of course. The Wire is not easy to get in to but...

I always enjoy rewatching things and seeing another perspective., Game of Throne...

PSNuser

•4 months ago

22 Replies

Finding A New PT (Venting and Question)

Sorry for the vent post. I know you guys will be understanding. 🧡 It took me 3 weeks to get in with this PT place. The first visit went great, the first...

Sorry for the vent post. I know you guys will be understanding. 🧡 It took me 3...

MSFlea

•4 months ago

26 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2024

rn or lpn tampa needed p/t

Different Types of MS

Terrified Before Appointment

I don't know what to write.

Anyone have a g-tube or feeding tube?

daily pain

joining community

whill electric wheelchair for sale cheap $200 left-hand toggle lithium battery text:7602146475

Hello 👋🏿

I have PPMS.

MS Community

Is it needed?

Free Medical ID items for those in need

new treatment

new treatment

Just Left My Doctor’s Office

Shift Needed in Research, Treatment, Care for Aging MS Population

Update on Pelvic Floor Botox Injections!

Mavenclad

DMTs in Aging MS Patients: When and How to Stop

Bike!

Why rush to the bathroom

Here's to friends

Excruciating pain with secondary progressive ms

Starting Mavenclad!

Day 5 of walking w/o a cane

Happy Juneteeth Day!

Medical Alert Necklace and a Fun Baclofen Fact

Which shows/movies do you stream the most?

Finding A New PT (Venting and Question)

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