Posts - My MSAA Community | HealthUnlocked

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All posts for June 2024

Starting Mavenclad!

I've been on Ocrevus since early 2022, and I really do believe that it's a great drug. But when I started it, I could walk around the block, and my relapses...

I've been on Ocrevus since early 2022, and I really do believe that it's a great...

CatsandCars

•17 hours ago

10 Replies

Day 5 of walking w/o a cane

I am walking better but am finding my limits. Bec of a train blocking the way. I wound up walking 5 miles. 1fall w/limited damage. Actually kind of impressed I...

I am walking better but am finding my limits. Bec of a train blocking the way. I...

Equitube

•22 hours ago

8 Replies

I've got a date with a surgeon

for August 12th! Another 2 months of sitting on my broken butt. I think I can do this.😅😅 That's him on the right.

for August 12th! Another 2 months of sitting on my broken butt. I think I can ...

falalalala

•22 hours ago

55 Replies

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Happy Juneteeth Day!

We are so lucky to be free!!😀 Leslie

lbenmaor

•24 hours ago

4 Replies

Medical Alert Necklace and a Fun Baclofen Fact

I finally got a medical alert ID necklace saying that I have MS and a baclofen pump. I'm not crazy about things hanging around my neck, and the one I picked is...

I finally got a medical alert ID necklace saying that I have MS and a baclofen p...

CatsandCars

•1 day ago

8 Replies

Which shows/movies do you stream the most?

I always enjoy rewatching things and seeing another perspective., Game of Thrones is a good example. Sopranos of course. The Wire is not easy to get in to but...

I always enjoy rewatching things and seeing another perspective., Game of Throne...

PSNuser

•2 days ago

14 Replies

Finding A New PT (Venting and Question)

Sorry for the vent post. I know you guys will be understanding. 🧡 It took me 3 weeks to get in with this PT place. The first visit went great, the first...

Sorry for the vent post. I know you guys will be understanding. 🧡 It took me 3...

MSFlea

•2 days ago

25 Replies

Colonoscopy

I am worried about anesthesia causing exacerbation. The last time I was put under I was out of it for 2 months (according to my husband). I had ill effects...

I am worried about anesthesia causing exacerbation. The last time I was put und...

Chief2024

•2 days ago

9 Replies

I saw my Neuro

Well not as bad as I thought it would be. I have to get blood work before my next infusion to see what my B cell count is, if it is too low I have to wait a...

Well not as bad as I thought it would be. I have to get blood work before my ne...

kycmary

•2 days ago

5 Replies

Now you know

what to blame your good mood on.😀

falalalala

•2 days ago

29 Replies

Doing much better now.

My flare continues to improve. Day 3 of walking w/o a cane now. Still having to self cath. Not crazy abt it, but it's kind of nice choosing when to go and not...

My flare continues to improve. Day 3 of walking w/o a cane now. Still having to ...

Equitube

•3 days ago

9 Replies

I made another MS video….

Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust!...

Hi everybody! I made a review video of my favorite MS related creators on YouTu...

irhunter

•3 days ago

6 Replies

Record 🥵 Heat Coming Our Philly Almost 2 Weeks!

Yup, 2 weeks of high 90’s with humidity feeling like near 100 a couple of days; lifetime Movies and a good book for me! I will do church, since we get out...

Yup, 2 weeks of high 90’s with humidity feeling like near 100 a couple of days;...

stepsforNeeC

•3 days ago

13 Replies

What is your day like?

So I’m curious. How much does the severity of your MS symptoms vary throughout the day? I can start the day able to shower and get dressed etc. on my own...

So I’m curious. How much does the severity of your MS symptoms vary throughout t...

Corran731

•5 days ago

35 Replies

Not crying today. lol

So, I'm sitting here minding my own business and I get a text from an unknown number. "Will you be home? I want to drop off some blueberries." Now, I...

So, I'm sitting here minding my own business and I get a text from an unknown nu...

NorasMom

•6 days ago

22 Replies

MS flare

I am in the midst of a major flare that started abt 10 days ago. It began with increasing numbness, affecting my hands even. It also majorly affected my...

I am in the midst of a major flare that started abt 10 days ago. It began with i...

Equitube

•6 days ago

22 Replies

Been a while!

Pickles says hello! He's about 13 years old and a Beagle/Corgi/? mix! I've been a little on the melancholy side of late, and that tends to make me not reach...

Pickles says hello! He's about 13 years old and a Beagle/Corgi/? mix! I've bee...

MSFlea

•7 days ago

13 Replies

Hello, Looking for a MS support group.

PugLuva

•7 days ago

19 Replies

My how things change

I went for another doctor appointment this afternoon and was told that I should have surgery on my hip. Partial hip, no socket. After looking at the x ray, it...

I went for another doctor appointment this afternoon and was told that I should ...

falalalala

•8 days ago

53 Replies

Keep Moving!

Its been a while. I hope you all are well! Busy busy preparing for another cross country family relocation. My wife works for a tech company. Encouragement for...

Its been a while. I hope you all are well! Busy busy preparing for another cross...

drumbugg

•8 days ago

13 Replies

Can I cry?

So, this is all pretty petty compared with what many are dealing with, but it's been one of those days. Yesterday was wonderful but incredibly active. I was...

So, this is all pretty petty compared with what many are dealing with, but it's ...

NorasMom

•9 days ago

24 Replies

checked off 1 of 2 goals for this summer

Just got back from a week in London. I worried about this trip for months wondering if I could hack it. The week was very enjoyable, got to visit with my...

Just got back from a week in London. I worried about this trip for months wonde...

Elizt3

•9 days ago

24 Replies

Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS

Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s...

Music plays an important role in our lives. Research also suggests that music ca...

DanaMSAA

Partner•10 days ago

1 Reply

Good Morning!!!

Hi everyone just checking in with the gang haven’t posted for a while. Been commenting on posts. Had a heck of a hail storm ⛈️ last night. Started getting warm...

Hi everyone just checking in with the gang haven’t posted for a while. Been comm...

Kenu

•10 days ago

24 Replies

has anyone tried knix underwear?

weird question- sorry! I was wondering if they are worth trying? I had two days of embarrassing accidents. Trying to stop that thank you in advance for your...

weird question- sorry! I was wondering if they are worth trying? I had two day...

Xvettech

•11 days ago

23 Replies

Help please

Hi all , if you have a high jcv is kesimpta ok to take? Anyone on kesimpta, would love dome feedback 🙂 🧡 any symptoms? I'm terrified of getting heart pslps...

Hi all , if you have a high jcv is kesimpta ok to take? Anyone on kesimpta, wou...

anetap4545

•12 days ago

13 Replies

do people really leave because you’re sick?

first i will say that i am grateful to be able to come here and vent❤️. i am lucky because i know it didn’t have to be as good as it is. i’m a little sad today...

first i will say that i am grateful to be able to come here and vent❤️. i am luc...

HouseElfWon

•12 days ago

25 Replies

You are a MSer women now

Ladies, not to embarrass anyone, but remember when you had your first menses and was declared a women? Last week I had a urodynamic test after spending years...

Ladies, not to embarrass anyone, but remember when you had your first menses an...

Brindisi1

•12 days ago

7 Replies

MSAA Complimentary Walker

Hi All, Can you please remind me how to access the wonderful items MSAA makes available to folks with MS? I think it's time for me to get the little walker...

Hi All, Can you please remind me how to access the wonderful items MSAA makes...

donna0329

•13 days ago

7 Replies

Investigational MS Med Nearly Eliminates Disease Activity on MRI

NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high...

NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppre...

BettysMom

•14 days ago

6 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2024

Starting Mavenclad!

Day 5 of walking w/o a cane

I've got a date with a surgeon

Happy Juneteeth Day!

Medical Alert Necklace and a Fun Baclofen Fact

Which shows/movies do you stream the most?

Finding A New PT (Venting and Question)

Colonoscopy

I saw my Neuro

Now you know

Doing much better now.

I made another MS video….

Record 🥵 Heat Coming Our Philly Almost 2 Weeks!

What is your day like?

Not crying today. lol

MS flare

Been a while!

Hello, Looking for a MS support group.

My how things change

Keep Moving!

Can I cry?

checked off 1 of 2 goals for this summer

Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS

Good Morning!!!

has anyone tried knix underwear?

Help please

do people really leave because you’re sick?

You are a MSer women now

MSAA Complimentary Walker

Investigational MS Med Nearly Eliminates Disease Activity on MRI

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