Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,494 members•21,325 posts

All posts for August 2023

31 Aug 2023 G'day to everybody

G'day ms family. I hope YOU all are doing well on your lifelong journey with me. Find your best Disease-Modifying Therapy (DMT), stick to it and make the...

G'day ms family. I hope YOU all are doing well on your lifelong journey with m...

RoyceNewton

•1 year ago

3 Replies

Hurricane idalia

This hurricane hit me as a catagory 2. It was the scariest thing I have ever been through. I am living in Valdosta Georgia and we are pretty far a ways from...

This hurricane hit me as a catagory 2. It was the scariest thing I have ever bee...

Turtlepie

•1 year ago

43 Replies

Donation of Permobile 300 ritght hand toggle for female

I live in the San Fernando Valley, California, and I have progressive MS and feel more comfortable with a scooter than a heavy electric wheelchair. The...

I live in the San Fernando Valley, California, and I have progressive MS and fe...

Farfalla47

•1 year ago

5 Replies

Want to take advantage of all our features? Just log in!

Long time no see

Sorry I'm not that active just busy alot I've been dealing with alot right now

Jackjosh

•1 year ago

8 Replies

Lyrica taper awful...advice please

Hi folks. I sure could use some advice. Three weeks ago, I apparently lost my mind, and agreed to try Lyrica for pain relief. Well, three weeks in, I had all...

Hi folks. I sure could use some advice. Three weeks ago, I apparently lost my mi...

Helpmeup

•1 year ago

13 Replies

Farming and MS

I was diagnosed with RRMS in 2006. My husband told me if we wanted to farm let's do it. My goats have been my herd of therapists. I believe that having the...

I was diagnosed with RRMS in 2006. My husband told me if we wanted to farm let's...

Curlygoats

•1 year ago

42 Replies

Survey (that pays!)

I just received this message from Emily. It is legit, it takes an hour, and it pays $125.

I just received this message from Emily. It is legit, it takes an hour, and it ...

mrsmike9

•1 year ago

4 Replies

Learning to be a "Fall Risk!!"

I haven't been on here much because I've had some small falls and a couple of more serious falls. A knot on my fore head, 3 times I landed on my left Elbow....

I haven't been on here much because I've had some small falls and a couple of mo...

CalfeeChick

CommunityAmbassador•1 year ago

30 Replies

Cooling Equipment

I'm so excited yesterday I got some cooling equipment! I'd been meaning to apply for it for a couple years, but oh life and the many things that come with...

I'm so excited yesterday I got some cooling equipment! I'd been meaning to apply...

jcol2436-

•1 year ago

17 Replies

feeling numb

I am a mother of 3 kids and a wife. been diagnosed in March. a roller-coaster of being off work from my job to finding another job that I can work with no...

I am a mother of 3 kids and a wife. been diagnosed in March. a roller-coaster ...

RedBookWorm

•1 year ago

13 Replies

30 Aug 2023 Never give up on yourself

G'day ms family. I seem to have a theme today, never give up on yourself. Try, try, and try again If YOU give up on YOU why should anybody else make an...

G'day ms family. I seem to have a theme today, never give up on yourself. T...

RoyceNewton

•1 year ago

4 Replies

question

hello friends, I am in a wheelchair and also have a Foley catheter. That means that I have a leg bag during the day. Since this is new to me I’m trying to...

hello friends, I am in a wheelchair and also have a Foley catheter. That mean...

calcman

•1 year ago

14 Replies

I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!

After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned...

After my initial diagnosis on my next visit I asked my neurologist how many les...

Mark1499

•1 year ago

20 Replies

Can anyone give me some guidance to reduce the pain

In 2010, at the age of 23, MS appeared in me. I am 36 years old now and I am not married, but I am in an activity where I must always be active I have severe...

In 2010, at the age of 23, MS appeared in me. I am 36 years old now and I am no...

nsad100

•1 year ago

16 Replies

MS & Me

MS does not define me, I do!

Nanilove

•1 year ago

9 Replies

I'm new

I was diagnosed with Relapsing Remitting MS in 2004 at the age of 33. I'm 52 now, and noticed changes since I've gotten older, but managing.I have a husband...

I was diagnosed with Relapsing Remitting MS in 2004 at the age of 33. I'm 52 now...

King1971

•1 year ago

10 Replies

Brain Fog

I want to share what I have learned about brain fog. With me it has seemed to come & go. Over the past year I've been very careful what I eat & paying close...

I want to share what I have learned about brain fog. With me it has seemed to co...

hairbrain4

•1 year ago

23 Replies

28 Aug 2023 It is a good day to be alive

G'day my ms family. I just thought I would state the obvious. TODAY of all the days that have ever been, perhaps today is the very best. The sun is...

G'day my ms family. I just thought I would state the obvious. TODAY of all t...

RoyceNewton

•1 year ago

23 Replies

Good Monday 😜

The daylight is getting shorter and fall is just around the corner 👀. Beautiful morning here in Pocatello Idaho ☀️ Rozy and I are plugging away and doing okay...

The daylight is getting shorter and fall is just around the corner 👀. Beautiful...

Kenu

•1 year ago

11 Replies

Just a reminder!

Keep that Smile Smiling! If nothing else, it makes ppl wonder what your up to! 😁🤗💕🌠

Keep that Smile Smiling! If nothing else, it makes ppl wonder what your up to! �...

Jesmcd2

CommunityAmbassador•1 year ago

14 Replies

Shiatsu massage chair pad review and comparison with heating or vibrating pads:

IMPORTANT NOTE: If your body is fragile or you are extremely sensitive, this may not be the product for you. The knobs are NOT gentle. In your situation, I...

IMPORTANT NOTE: If your body is fragile or you are extremely sensitive, this ma...

NorasMom

•1 year ago

14 Replies

Productive Summer

I have spent many of my days this summer canning yummy foods. I have made roughly 120 half pints of jam, strawberry-rhubarb, blueberry, raspberry,...

I have spent many of my days this summer canning yummy foods. I have made roughl...

Amore55

•1 year ago

33 Replies

For the new members

They are offering that 6-week free course on M.S. again at https://ms.mooc.utas.edu.au/ It starts 9/11, and is only offered twice a year. Lots of folks here...

They are offering that 6-week free course on M.S. again at https://ms.mooc.utas....

Mollyabigail

•1 year ago

6 Replies

I know I'm impatient...

but does anyone have updates on Jimeka or Kenu? I know they're both dealing with a lot and don't have time to sit on the computer all day like I do. 😉 I...

but does anyone have updates on Jimeka or Kenu? I know they're both dealing wit...

NorasMom

•1 year ago

10 Replies

Enjoy!

I hope all my friends have a great weekend and a beautifulSabbath.😀🌺 Leslie

lbenmaor

•1 year ago

17 Replies

25 Aug 2023 What I know about Ocrevus

G'Day ms. Friends and Family. I hope YOU are all well and coping in your own way with this, incurable progressive disease that we all have. I have learned...

G'Day ms. Friends and Family. I hope YOU are all well and coping in your own w...

RoyceNewton

•1 year ago

9 Replies

Honor your friends and family

I saw this on Reddit and will be gifting my loved ones with a commemorative lesion: "Ive named my most recent set of lesions after people in my office....

I saw this on Reddit and will be gifting my loved ones with a commemorative lesi...

falalalala

•1 year ago

23 Replies

Stair lift

We are investing in a stair lift for the house and having it fitted hopefully next week as my husband's mobility is becoming worse. We have been looking at...

We are investing in a stair lift for the house and having it fitted hopefully ne...

mathematics

•1 year ago

15 Replies

Lost a few years this morning

So, Charlemagne's a mid-sized shepherd mutt. Poorly trained, boisterous, and the love of my life. Courtesy of unleashed neighbor dogs, Charlie doesn't like...

So, Charlemagne's a mid-sized shepherd mutt. Poorly trained, boisterous, and th...

NorasMom

•1 year ago

7 Replies

I am not sure about Ocrevus

Hello everyone!! Has been long time!! But finally I got a different insurance and different Dr to treat my MS!! After having problems with Kaiser and Dr told...

Hello everyone!! Has been long time!! But finally I got a different insurance an...

Marlennewilliamson

•1 year ago

25 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2023

31 Aug 2023 G'day to everybody

Hurricane idalia

Donation of Permobile 300 ritght hand toggle for female

Long time no see

Lyrica taper awful...advice please

Farming and MS

Survey (that pays!)

Learning to be a "Fall Risk!!"

Cooling Equipment

feeling numb

30 Aug 2023 Never give up on yourself

question

I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!

Can anyone give me some guidance to reduce the pain

MS & Me

I'm new

Brain Fog

28 Aug 2023 It is a good day to be alive

Good Monday 😜

Just a reminder!

Shiatsu massage chair pad review and comparison with heating or vibrating pads:

Productive Summer

For the new members

I know I'm impatient...

Enjoy!

25 Aug 2023 What I know about Ocrevus

Honor your friends and family

Stair lift

Lost a few years this morning

I am not sure about Ocrevus

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