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My MSAA Community

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All posts for November 2018

Weekend

Weekend. I hope everyone has a good Shabbos and a great weekend!! Warm Wishes, Leslie

Weekend. I hope everyone has a good Shabbos and a great weekend!! Warm Wishes, L...

lbenmaor

•6 years ago

6 Replies

Balance exercises jimeka asked about as well as other exercises in pdf that you can download

Balance exercises Here is a link to various PDFs for exercises to help with various ms issues Here is the link exercisewithms.com For video for ms gym with...

Balance exercises Here is a link to various PDFs for exercises to help with var...

rjoneslaw

•6 years ago

4 Replies

Lipoid Acid supplements 👍

For those taking or considering ALA supplements. https://www.ncbi.nlm.nih.gov/pubmed/30477834

For those taking or considering ALA supplements. https://www.ncbi.nlm.nih.gov/pu...

erash

•6 years ago

8 Replies

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FALLING

Well I was doing pretty good today I took a shower that went well. I went to put my coffee in the basket of my ROLLATOR and as I was turning I turned to far...

Well I was doing pretty good today I took a shower that went well. I went to pu...

ssdw1958

•6 years ago

31 Replies

10 tips to protect your vibe

Saw this on another site

rjoneslaw

•6 years ago

9 Replies

Your body v your brain

We all have days when the brain wins. For me my brain drains me to the point where I can’t function and I have to go to sleep. Then there are days I close my...

We all have days when the brain wins. For me my brain drains me to the point wh...

rjoneslaw

•6 years ago

7 Replies

Clomping along

Well, forum friends, it's time for another update. My foot/ankle are still badly swollen, but the ortho boot is looser around the calf so though I can't see...

Well, forum friends, it's time for another update. My foot/ankle are still badly...

goatgal

•6 years ago

40 Replies

Good news

My MRI report was every thing looks stable no noticeable changes. I had the last one in July & no changes since then I'll find out in Dec. If I can go back to...

My MRI report was every thing looks stable no noticeable changes. I had the last...

kycmary

•6 years ago

18 Replies

ACA Adventures

So it is that time again to choose our health plan for the coming year. But the Healthcare.gov site keeps listing the meds we need as not covered thru our...

So it is that time again to choose our health plan for the coming year. But the ...

pmbevac

•6 years ago

7 Replies

What’s New in MS Research: Highlights from the 2018 ECTRIMS Annual Meeting

Received this in an email today, interesting: https://mymsaa.org/news/2018-ectrims-annual-meeting/?utm_source=ms_research&utm_medium=email Jessie

Received this in an email today, interesting: https://mymsaa.org/news/2018-ectri...

bxrmom

•6 years ago

13 Replies

Emotion wheel - explain how you really feel

I've been looking for this for quite a while: a list of emotions. I have always found it hard to put refined words next to my emotions and it seems even more...

I've been looking for this for quite a while: a list of emotions. I have always ...

anaishunter

•6 years ago

9 Replies

MS Reminder

With MS we might bend but we don’t break, we just keep going forward 👍🙏😁. Ken 🐾

With MS we might bend but we don’t break, we just keep going forward 👍🙏😁. Ken...

Kenu

•6 years ago

7 Replies

Guess What, Great News....

Thanks to all of you Praying🙏💗💚💙 Our Approval came through, Whew!((wipes forehead))), I was so nervous, but inn control! No Relapsing here!!! YAY! A nice...

Thanks to all of you Praying🙏💗💚💙 Our Approval came through, Whew!((wipes for...

Jazzihorsecat

•6 years ago

20 Replies

Tecfidera

I have been on tecfidera since April. I have been gaining weight since I’ve been on it. Or I feel like I have I do not own a scale but my pants don’t seem...

I have been on tecfidera since April. I have been gaining weight since I’ve be...

Smartcloud1981

•6 years ago

13 Replies

FDA Warns of Possible Dangers of Stopping Gilenya

Just received this email today: The FDA issued a safety alert saying that this only happens rarely, but when it does, the disease could become “much worse than...

Just received this email today: The FDA issued a safety alert saying that this o...

bxrmom

•6 years ago

9 Replies

I am going on holiday for two weeks or so

I love you all, but it is the 50th, so I have a holiday I have been saving for. Saving very badly but hey I like toys, and they have had some good ones in...

I love you all, but it is the 50th, so I have a holiday I have been saving for. ...

RoyceNewton

•6 years ago

16 Replies

Symptoms changing

Hi my name is Phyllis Lee I have had ms since 1976 but didn'tget officially diagnosed until many years later. My question is while I have been managing it with...

Hi my name is Phyllis Lee I have had ms since 1976 but didn'tget officially diag...

PhyllisLee

•6 years ago

9 Replies

And yet more on MRI contrast - sorry for beating the dead horse

https://multiplesclerosisnewstoday.com/2018/11/28/artificial-intelligence-can-reduce-dosage-of-gadolinium-for-mri-scans/?utm_source=Multiple+Sclerosis&utm_campa

https://multiplesclerosisnewstoday.com/2018/11/28/artificial-intelligence-can-re...

IFwczs

•6 years ago

10 Replies

Thought everyone would like this 👍

This would be nice 😁😆🤣😂😅☺️. Ken 🐾

Kenu

•6 years ago

13 Replies

Nuero appt

Headed to Pittsburgh for a dr appt with the nueros PA to check how the Ocrevus is working for me. Normally a 2 1/2 hr trip. Could be longer with the snow...

Headed to Pittsburgh for a dr appt with the nueros PA to check how the Ocrevus ...

dailygrump40

•6 years ago

9 Replies

Melatonin: 10 Melatonin Side Effects

My PCP put me on melatonin. Even though it helps me sleep, I was shocked to read this article and will only take it from now on if I can't sleep in the middle...

My PCP put me on melatonin. Even though it helps me sleep, I was shocked to rea...

IFwczs

•6 years ago

11 Replies

Wonky Eyes

Was wondering if anyone else has experienced this? My eyes have been acting weird lately. Lots of twitching in my eyelids and frequent tearing, but not from...

Was wondering if anyone else has experienced this? My eyes have been acting weir...

Bamfan1442

•6 years ago

6 Replies

LDN

I can't find the post I was looking for where someone told me about low dose naltrexone for fatigue, focus and energy level. I asked my neuro about it and...

I can't find the post I was looking for where someone told me about low dose nal...

Ikeeptrying

•6 years ago

5 Replies

Are my symptoms MS?

I’ve been experiencing symptoms for the past 10 years but they are becoming more prominent. B12 deficiency (awaiting PA tests), night sweats, chills, fever,...

I’ve been experiencing symptoms for the past 10 years but they are becoming more...

Maggie333

•6 years ago

14 Replies

Tumefactive multiple sclerosis Have you heard of it? Do you have it?

Have you heard of it? Do you have it? Here is a link to an article about it...

Have you heard of it? Do you have it? Here is a link to an article about it....

rjoneslaw

•6 years ago

3 Replies

Here is another site for accessible travel of the disabled

This site is from MS focus vol 20 issue 4 fall 2018 page 42 The article is "6 Thanksgiving Travel Tips." Here is the link to the site...

This site is from MS focus vol 20 issue 4 fall 2018 page 42 The article is "6 T...

rjoneslaw

•6 years ago

Be the first to reply

Setting ONE goal for MS as a disease in 2019: NEDA

Sorry in advance if this post seems too brash for some. But I work in an industry (high tech) where an upcoming new year generates a plethora of predictions,...

Sorry in advance if this post seems too brash for some. But I work in an industr...

anaishunter

•6 years ago

9 Replies

A Blessing To All

May Gods love surround YOU! May Gods light shine upon YOU! May Gods power protect YOU!

May Gods love surround YOU! May Gods light shine upon YOU! May Gods power prote...

kycmary

•6 years ago

12 Replies

I do not understand

Why anybody with Relapsing-Remitting ms (RRms) would not lead a happy and fulfilling life. Come to think of it anybody with RRms today in 2018 particularly....

Why anybody with Relapsing-Remitting ms (RRms) would not lead a happy and fulfil...

RoyceNewton

•6 years ago

6 Replies

Just keep shining on matter what

Just keep shining

rjoneslaw

•6 years ago

2 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for November 2018

Weekend

Balance exercises jimeka asked about as well as other exercises in pdf that you can download

Lipoid Acid supplements 👍

FALLING

10 tips to protect your vibe

Your body v your brain

Clomping along

Good news

ACA Adventures

What’s New in MS Research: Highlights from the 2018 ECTRIMS Annual Meeting

Emotion wheel - explain how you really feel

MS Reminder

Guess What, Great News....

Tecfidera

FDA Warns of Possible Dangers of Stopping Gilenya

I am going on holiday for two weeks or so

Symptoms changing

And yet more on MRI contrast - sorry for beating the dead horse

Thought everyone would like this 👍

Nuero appt

Melatonin: 10 Melatonin Side Effects

Wonky Eyes

LDN

Are my symptoms MS?

Tumefactive multiple sclerosis Have you heard of it? Do you have it?

Here is another site for accessible travel of the disabled

Setting ONE goal for MS as a disease in 2019: NEDA

A Blessing To All

I do not understand

Just keep shining on matter what

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