Posts - My MSAA Community | HealthUnlocked

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9,494 members•21,325 posts

All posts for January 2024

Interesting Podcast

This morning I listened to an interesting New York Times podcast that talked about how recent archeological discoveries are revealing the genetic component of...

This morning I listened to an interesting New York Times podcast that talked abo...

Corran731

•11 months ago

6 Replies

Crazy Winter in Idaho

This winter is another crazy one for snow and cold. Less snow than normal and was colder, but the last week warmer than normal. My back yard was a mess because...

This winter is another crazy one for snow and cold. Less snow than normal and wa...

Kenu

•11 months ago

24 Replies

Scooters

I am nearing the time when I may need a powered scooter. Recently in the mail, I received ads for two. One is a Solite Scooter, the other is a Zoomer Power...

I am nearing the time when I may need a powered scooter. Recently in the mail, I...

whwiechm

•11 months ago

7 Replies

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The Temperature “Flip Flop.”

Hello Community Fam, I have a question for anyone experiencing the winter chill. PA is inconsistent with temperatures right now. We melted away the snow from...

Hello Community Fam, I have a question for anyone experiencing the winter chill....

stepsforNeeC

•11 months ago

43 Replies

Physio and rollator!

So, I saw a physio last Monday, and she recommended I go from being unsteady with my stick to going onto a rollator (the one thats like a zimmer frame with...

So, I saw a physio last Monday, and she recommended I go from being unsteady wit...

Cwright170994

•11 months ago

22 Replies

Home at last!

After 2 months (!) in hospital I finally got home on Friday. My hands were very stiff one day, the next I couldn't move them at all. That was very scary....

After 2 months (!) in hospital I finally got home on Friday. My hands were very...

Kit10

•11 months ago

19 Replies

MS Caregiver Tips?

My partner has MS and struggles with a lot of things; sleep (of course), pain in her feet (really bad neuropathy), pain in her back, and has massive fatigue...

My partner has MS and struggles with a lot of things; sleep (of course), pain in...

CGWest

•11 months ago

15 Replies

It's been a long time...

I posted on here briefly a while back, but at the time I was pretty stable and I fell out of touch on here. Now, I am progressing pretty rapidly. I had a...

I posted on here briefly a while back, but at the time I was pretty stable and I...

nexttothesalt

•11 months ago

19 Replies

This is a day of winning 💪

Brief background of me: I have epilepsy and RRMS. The epilepsy was my 1st symptom, back in 2013/2014 when it was just simple partial temporal lobe seizures. I...

Brief background of me: I have epilepsy and RRMS. The epilepsy was my 1st sympto...

Cwright170994

•11 months ago

17 Replies

hard time but manageable thanks to all you!

hi everyone! I have had a relapse that lasted 2 months. Then as soon as I was feeling better I started doing more. I washed my face and brushed my teeth. As I...

hi everyone! I have had a relapse that lasted 2 months. Then as soon as I was f...

Xvettech

•11 months ago

37 Replies

how to get energy & sleep

I have been so tired everyday and it’s hard to get out of bed, and when I finally get up, I so tired that I don’t have the energy to do Anything!!! This has...

I have been so tired everyday and it’s hard to get out of bed, and when I finall...

Lakiee

•11 months ago

12 Replies

it’s been a rough six months.

I’m tired of winning the sickness lottery. I swear it’s been one thing after another for five months. Bad cold, chronic inflammation of my eyes (non-ms)...

I’m tired of winning the sickness lottery. I swear it’s been one thing after an...

StacyHayward

•11 months ago

21 Replies

MS...how nutrtion plays a role in MS

I notice that if i am off my vitamins and nutritional routine..MS is more severe. Stress is a major killer and sleep. is it the MS or visa versa>

I notice that if i am off my vitamins and nutritional routine..MS is more severe...

jackiesj

•11 months ago

9 Replies

Sleep

my nephew has MS. He has a difficult time with sleep and RLS. Think he’s tried a lot of stuff. States not much to be done because some the lesions are in...

my nephew has MS. He has a difficult time with sleep and RLS. Think he’s tried ...

LKB55

•11 months ago

17 Replies

Fatigue with MS

I'm pretty sure we have all had it. And there is nothing on this earth that can wake you up! Or lift the remote. Or move. It's just not happening. What are...

I'm pretty sure we have all had it. And there is nothing on this earth that can ...

Jesmcd2

CommunityAmbassador•11 months ago

25 Replies

Safe way to get laundry up and down the stairs?

Hi, I wonder how you take laundry up and down the stairs, if this is something you do? I try to have my significant other do this as much as possible, but I...

Hi, I wonder how you take laundry up and down the stairs, if this is something y...

Elizt3

•11 months ago

39 Replies

I want to thank....

I am thankful for HealthUnlocked and for the welcoming of the MS group...it has been a blessing in my life in darkest hours and sharing sunshine also...i am so...

I am thankful for HealthUnlocked and for the welcoming of the MS group...it has ...

jackiesj

•11 months ago

7 Replies

My latest favorite toy

I'd asked for a sandwich maker for Christmas, and Santa didn't disappoint me! I finally used it today, and I'm in love. 🤪 I've always been partial to...

I'd asked for a sandwich maker for Christmas, and Santa didn't disappoint me! I...

NorasMom

•11 months ago

29 Replies

Insurance question: UHC & Ocrevus?

I'm about to take a new job (yeah!). Have you had a positive or negative experience with United Healthcare and getting Ocrevus treatment approved? (I was...

I'm about to take a new job (yeah!). Have you had a positive or negative exper...

anaishunter

•11 months ago

8 Replies

Sensory Overload

How many of you deal with this? What bothers you the most? How do you handle it?🤔🤗💕🌠

How many of you deal with this? What bothers you the most? How do you handle it?...

Jesmcd2

CommunityAmbassador•11 months ago

49 Replies

french polynesia

G'day, I for got your site and they do not speak english, BUT they may a tropical solution for your move. Royce

G'day, I for got your site and they do not speak english, BUT they may a tropica...

RoyceNewton

•11 months ago

3 Replies

MS Winter cold...yikes...

I send my thoughts prayers and hope this winter craziness you have the shelter and love you need. Ideas for comfort are so individual. One month Im lidocaine...

I send my thoughts prayers and hope this winter craziness you have the shelter a...

jackiesj

•11 months ago

11 Replies

I do!

I do! I do! It's warmed up here, in itty-bitty place NY, to 15°. Feels like freezing to me when I'm shoveling, I tell you what 😐🤣 What's the temp where you...

I do! I do! It's warmed up here, in itty-bitty place NY, to 15°. Feels like free...

Jesmcd2

CommunityAmbassador•1 year ago

42 Replies

ms gym website

I cannot find, can you help, thanks. Royce

RoyceNewton

•1 year ago

3 Replies

Insurance Disaster!

Hello. I have been on this site for years and find the exchange of information so helpful, as well as reading about the struggles we all seem to share, but I...

Hello. I have been on this site for years and find the exchange of information ...

elaineinqueens

•1 year ago

46 Replies

Choices

My doctor has recommended Kesimpta (Ofatumumalb) and for me to start as soon as possible. Between my recent contrast and no contrast MRIs there were no active...

My doctor has recommended Kesimpta (Ofatumumalb) and for me to start as soon as ...

Jenjus

•1 year ago

6 Replies

So I guess I wasn't quite back yet...

I thought i was back, I wanted to be back, but I just took longer to get over O. Then I had to get rid of the Christmas stuff! 🤣 I hope everyone is...

I thought i was back, I wanted to be back, but I just took longer to get over O...

Jesmcd2

CommunityAmbassador•1 year ago

20 Replies

15 Jan 2024 getting along with it

G'day Sisters and brothers and family. I was informed yesterday that we are learning to get along with our Relapsing Remitting ms (RRms). I Had not...

G'day Sisters and brothers and family. I was informed yesterday that we are l...

RoyceNewton

•1 year ago

4 Replies

low low low WBC woes

I’ve been on Aubagio/generic Aubagio for 10 months. I just had bloodwork done and my WBC count is 2.42 (low end of normal is 4.3). This is even lower than it...

I’ve been on Aubagio/generic Aubagio for 10 months. I just had bloodwork done an...

Roamerwithroots

•1 year ago

12 Replies

14 Jan 2024 Newbies mostly

G'day friends and family. Good Sunday morning to you, if it is Monday good week to you. Any other day, well enjoy. Actually ENJOY, yes ENJOY for the...

G'day friends and family. Good Sunday morning to you, if it is Monday good we...

RoyceNewton

•1 year ago

8 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for January 2024

Interesting Podcast

Crazy Winter in Idaho

Scooters

The Temperature “Flip Flop.”

Physio and rollator!

Home at last!

MS Caregiver Tips?

It's been a long time...

This is a day of winning 💪

hard time but manageable thanks to all you!

how to get energy & sleep

it’s been a rough six months.

MS...how nutrtion plays a role in MS

Sleep

Fatigue with MS

Safe way to get laundry up and down the stairs?

I want to thank....

My latest favorite toy

Insurance question: UHC & Ocrevus?

Sensory Overload

french polynesia

MS Winter cold...yikes...

I do!

ms gym website

Insurance Disaster!

Choices

So I guess I wasn't quite back yet...

15 Jan 2024 getting along with it

low low low WBC woes

14 Jan 2024 Newbies mostly

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