Hey there,
I am looking for some advice and information on Mavenclad. My boyfriend is about to start taking it, and although we have read and found so many resources online we are looking to find information from people who are currently or have taken it.
This is a confusing journey, with a lot of tough decisions to make and never ending questions.
Thank you
Welcome! I am currently in year 2. There's a Facebook page dedicated to users with years of posts and replies you can scroll through, but the same 5 questions are asked regularly.
The side effects are different for pill weeks and for low lymphocytes weeks, if any happen at all. I have made a few life updates while on it sharing my experience with the forum. My biggest tips are to take it with glass of water after a large dinner, and go to bed early on those 10 pill days. The rules are no other medications or supplements 3 hours before or after the dose, and no immune stimulating supplements during the treatment course.
I am happy to answer any specific questions you may have, or if something comes up during treatment and you want to send me a direct message, feel free to do so! The resource in the US for users is called MSLifelines, and they provide education and monitoring also. I'm not sure if it is the same in Canada.
I took 7 pills over 5 days for year 1, month 1 and 2. Same for year 2 course. I took with lunch meal, as I take other meds both AM and PM. Glad to report I had zero side effects. All days were just 'normal' days. Had MRIs after year one, no new lesions. Had recent blood work andy lymphocytes are low, but still within range.
Hi, TeacherAssistant! Sorry, I do not have any experience with Mavenclad. Is he newly diagnosed? Rough time there! Check YouTube to see if Dr. Aaron Boster has a Mavenclad video. He answered a ton of my questions through watching his videos. If I lived closer to Ohio, I would be one of his patients.
Mavenclad Year 1 complete
