Mavenclad : Hey there, I am looking for... - My MSAA Community

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Mavenclad

TeacherAssistant profile image
7 Replies

Hey there,

I am looking for some advice and information on Mavenclad. My boyfriend is about to start taking it, and although we have read and found so many resources online we are looking to find information from people who are currently or have taken it.

This is a confusing journey, with a lot of tough decisions to make and never ending questions.

Thank you

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TeacherAssistant profile image
TeacherAssistant
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7 Replies
Willcar profile image
Willcar

I took 7 pills over 5 days for year 1, month 1 and 2. Same for year 2 course. I took with lunch meal, as I take other meds both AM and PM. Glad to report I had zero side effects. All days were just 'normal' days. Had MRIs after year one, no new lesions. Had recent blood work andy lymphocytes are low, but still within range.

Mollyabigail profile image
Mollyabigail

Hi, TeacherAssistant! Sorry, I do not have any experience with Mavenclad. Is he newly diagnosed? Rough time there! Check YouTube to see if Dr. Aaron Boster has a Mavenclad video. He answered a ton of my questions through watching his videos. If I lived closer to Ohio, I would be one of his patients.

Xvettech profile image
Xvettech in reply toMollyabigail

If I could drive I would drive to Ohio to go to his clinic! He seems to be the rare great doctor! I’m even trying to move there!

CatsandCars profile image
CatsandCars

I recently found the PDF in this link. It contains a report for physicians about helping patients to understand how cladribine (Mavenclad) works. The various graphics are the part meant for patients. It's kind of unusual, but it's got a lot of information. It was compiled by a prominent British MS neurologist.

link.springer.com/article/1...

I understand there is also a Facebook page dedicated to Mavenclad, if you haven't found that already. 😊

Xvettech profile image
Xvettech in reply toCatsandCars

Thank you! I will be checking it out too 🙂

Mandymae5 profile image
Mandymae5

After having problems with high liver enzymes after having been on Aubagio, Mavenclad was one of the medications that my Neurologist recommended.I'm not sure on this & also would like to hear from others who may be on this.

CatsandCars profile image
CatsandCars in reply toMandymae5

I don't know if you saw this, but you can post a separate question using the blue rectangle that says "Write" near the top of the page.

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