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My MSAA Community

8,967 members • 20,687 posts

All posts for October 2016

Tools and technology to help us

I went to a MS workshop that had an OT who talked about the apps to track, remind and help organize us. There's also lots of gadgets that assist people with...

I went to a MS workshop that had an OT who talked about the apps to track, remi...

Lindy530611

•7 years ago

9 Replies

Constipation

Is there anyone who has found a treatment for constipation? I take 500mg.of magnesium, took mirilax but made me too loose.Glycerin suppositories help...

Is there anyone who has found a treatment for constipation? I take 500mg.of magn...

Nani5

•7 years ago

28 Replies

It seems like...

...the iPhone app is not updating or accepting posts. Or am I doing something wrong? Peter H

...the iPhone app is not updating or accepting posts. Or am I doing something wr...

Hidden

•7 years ago

10 Replies

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Drop foot

Hi! My name is Brian I'm 43 & I was diagnosed with RRMS in 04' . I just want to tell everyone to be careful & take your time walking especially with stairs if...

Hi! My name is Brian I'm 43 & I was diagnosed with RRMS in 04' . I just want to ...

Sickboy516

•7 years ago

25 Replies

Introducing myself

Hi lm Liza. Like you l also have MS, RRMS to be exact. Have had it now for about 2 yrs now. And always learning. I am also a volunteer administrator to this...

Hi lm Liza. Like you l also have MS, RRMS to be exact. Have had it now for about...

Lizamy_5

•7 years ago

12 Replies

A laugh for all my 'support group' friends

Couldn't help but share this with all of you. Hope it makes you chuckle like it did me! And thanks to my patient husband who helped me get the picture on here....

Couldn't help but share this with all of you. Hope it makes you chuckle like it ...

WAshingtongirl

•7 years ago

31 Replies

Laughing at myself

I would feel terrible if anyone were offended at my, at times, perverse humor. I made a list that made me feel better, so I'll share it. My sister had a hard...

I would feel terrible if anyone were offended at my, at times, perverse humor. ...

greaterexp

•7 years ago

29 Replies

Looking for adult tricycle recommendations

I miss bicycling and doubt I will ever regain the balance necessary. Any recommendations on a reasonably priced, decent adult trike? I saw someone posted a...

I miss bicycling and doubt I will ever regain the balance necessary. Any recomme...

erash

•7 years ago

13 Replies

Ampyra!!!

Thank you to all of you who responded to my ampyra question. I was blown away by the number of responses. I don't think I am to the point of "needing" that...

Thank you to all of you who responded to my ampyra question. I was blown away b...

bavery207

•7 years ago

1 Reply

Coffee ☕️ Sunset 🌅

Having coffee ☕️ with this amazing sunset 🌅. Wishing you all a wonderful evening.

Having coffee ☕️ with this amazing sunset 🌅. Wishing you all a wonderful eveni...

Sleek78

•7 years ago

13 Replies

Lost legs

I suddenly lost my legs suddenly today. If you find them, please return them in good condition. At least laugh with me about it. I hope a little rest will work...

I suddenly lost my legs suddenly today. If you find them, please return them in ...

greaterexp

•7 years ago

33 Replies

Here's to a good weekend MS folks

I am exhausted from busy PT week and getting over a recurring bladder infection; it's sunny today and I am looking forward to a MS workshop on Tools and...

I am exhausted from busy PT week and getting over a recurring bladder infection;...

Lindy530611

•7 years ago

11 Replies

sunburned in Seattle

Hello All, I thought I would ask the experts first before I waste my time with a Dr. I have been being wakened up at about midnight each night because my legs...

Hello All, I thought I would ask the experts first before I waste my time with a...

normwithms

•8 years ago

37 Replies

Ampyra???

I am interested in people's input re: Ampyra. I mentioned it to my neuro. and he said he would never prescribe it to one of his patients because of all the...

I am interested in people's input re: Ampyra. I mentioned it to my neuro. and ...

bavery207

•8 years ago

51 Replies

Stomach problems/food allergies

Anyone getting stomach problems or food allergies since getting MS? Been diagnosed since 2000 and now bananas trigger gastritis and I'm getting very sensitive...

Anyone getting stomach problems or food allergies since getting MS? Been diagnos...

StacyHayward

•8 years ago

9 Replies

Getting a 3rd opinion ugh

Venting here a bit.. Grrr Went to see the ENT yesterday and was a complete waste of my time. The Dr ok let's just call him Doogie Hooser remember that show?...

Venting here a bit.. Grrr Went to see the ENT yesterday and was a complete wast...

Jesmcd2

CommunityAmbassador•8 years ago

15 Replies

debra4shore@aol.com.

hello I'm newley diagnosed with primary progressive I'm 62,iwas a chicken with out a head or squid.never sat down loved helping me and my 4 daughters. just...

hello I'm newley diagnosed with primary progressive I'm 62,iwas a chicken with o...

piccolo0921

•8 years ago

21 Replies

There's so many of these.

This is Australia, but the same goes for home. https://m.youtube.com/watch?v=H-mp3g0R7dE We all went with 1 thing in mind & ended up with a lot more!

This is Australia, but the same goes for home. https://m.youtube.com/watch?v=H-m...

1RiskyRich

•8 years ago

2 Replies

Where are you now, #1RiskyRich

We were chatting about stem cell treatment. Didn't you go to Mexico for treatment? Lynn #Calfeechick

We were chatting about stem cell treatment. Didn't you go to Mexico for treatmen...

CalfeeChick

CommunityAmbassador•8 years ago

8 Replies

PETITION ON CHANGE.ORG RE: HELP FOR EXPENSIVE MS MEDICATIONS

People have been requesting the link to the petition on Change.org which requests the Congress to amend the Social Security Act to allow patients on...

People have been requesting the link to the petition on Change.org which request...

Sukie427

•8 years ago

2 Replies

Bioness Equipment

Let's talk about the Bioness for MS. Why is this small yet effective device so expensive? Why you think the insurance companies will not cover the expense?...

Let's talk about the Bioness for MS. Why is this small yet effective device so e...

Royjr

•8 years ago

18 Replies

Unhappy

I live very unhappy and unsatisfied with m.s. I want my life back.

B_Cruz05

•8 years ago

10 Replies

MS Specialist

Is it me or does everyone hope that the MS Specialist are ready to retire? Once HSCT is available for all these specialist will have nothing to do. I'm glad I...

Is it me or does everyone hope that the MS Specialist are ready to retire? Once...

1RiskyRich

•8 years ago

10 Replies

Vertigo 24/7

Hello. I am dizzy and lightheaded all the time. I eat Meclazine like candy but i don't think it really helps me. Helps my upset stomach but I need to find...

Hello. I am dizzy and lightheaded all the time. I eat Meclazine like candy but...

jkdavid99

•8 years ago

15 Replies

Locked leg muscles. Botox, anyone?

Ankles to top of the hamstring and thigh muscles, right leg. This occurs anytime I'm upright. Neurologist says it's increased tone and spasticity. He has me...

Ankles to top of the hamstring and thigh muscles, right leg. This occurs anytime...

Hidden

•8 years ago

23 Replies

MS has met "its" match !

Hi Everyone, I am new to this community, but from what I read I know I finally found the right "place" to be. There is way too much to get into right now so...

Hi Everyone, I am new to this community, but from what I read I know I finally ...

Me63

•8 years ago

52 Replies

Words of wisdom from those who've been here?

I saw my neuro and went on medical leave from work today and I am going to likely pursue SSDI. I feel lost and strange and panicky and like someone knocked my...

I saw my neuro and went on medical leave from work today and I am going to likel...

erash

•8 years ago

28 Replies

Closed versus open MRI

I spent a fortune on mri's at my old neurologist. When we moved my new Dr. said they were useless because they were open mri's, which didn't show enough...

I spent a fortune on mri's at my old neurologist. When we moved my new Dr. said ...

Donna_uno

•8 years ago

22 Replies

Cargo blues and ataxia in ms

Hi everybody does anyone with ataxia drive a cargo bike? Can you drive it? Is it hard? Like christiania bikes.

Hi everybody does anyone with ataxia drive a cargo bike? Can you drive it? Is it...

goghy

•8 years ago

5 Replies

How do you know?

I am here again telling you my story... How do you know if you are treated properly? I second guess myself a lot...

I am here again telling you my story... How do you know if you are treated prop...

Kkathleen

•8 years ago

25 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for October 2016

Tools and technology to help us

Constipation

It seems like...

Drop foot

Introducing myself

A laugh for all my 'support group' friends

Laughing at myself

Looking for adult tricycle recommendations

Ampyra!!!

Coffee ☕️ Sunset 🌅

Lost legs

Here's to a good weekend MS folks

sunburned in Seattle

Ampyra???

Stomach problems/food allergies

Getting a 3rd opinion ugh

debra4shore@aol.com.

There's so many of these.

Where are you now, #1RiskyRich

PETITION ON CHANGE.ORG RE: HELP FOR EXPENSIVE MS MEDICATIONS

Bioness Equipment

Unhappy

MS Specialist

Vertigo 24/7

Locked leg muscles. Botox, anyone?

MS has met "its" match !

Words of wisdom from those who've been here?

Closed versus open MRI

Cargo blues and ataxia in ms

How do you know?

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive