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9,494 members•21,325 posts

All posts for February 2018

Relapse Management – My MSAA Community Ask Me Anything

Mark your calendars and save the date for March 12, 2018 when we will be hosting an Ask Me Anything about Relapse Management with Dr. Annette Okai on this...

Mark your calendars and save the date for March 12, 2018 when we will be hosting...

MSAA_Staff

•7 years ago

4 Replies

For Newbies, Families, and Everyone

Here is a link to the second edition of About MS. One may download it from the link. https://mymsaa.org/PDFs/About_MS.pdf

Here is a link to the second edition of About MS. One may download it from the ...

greaterexp

•7 years ago

1 Reply

Could this be a MS hug?

Hello, I have a question. Can you have an MS hug in other places beside your mid section? I don't think I've ever had one there but I've had this pressure up...

Hello, I have a question. Can you have an MS hug in other places beside your mi...

LissaH

•7 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Location

The North Coast of United States. The only beach in Pennsylvania USA. (Erie PA) 73 year old guy. Diagnosed in 1980. Sold my motorcycle 2010. PPMS. Reading...

The North Coast of United States. The only beach in Pennsylvania USA. (Erie PA) ...

Iggyvair

•7 years ago

11 Replies

administrative question

I'm receiving duplicate emails in one email box. How do I correct this?

itasara

•7 years ago

4 Replies

Black seed oil

Has anyone heard of black seed oil or is anyone using it for MS

REDLIPS44

•7 years ago

8 Replies

Answers to the Abbrieviations Quizzes

Lengthy, but it's all of the answers! Abbrieviations to define: ACTH - Adrenocorticotropic Hormone AMD – Advanced Medical Directive AMP – Adenosine...

Lengthy, but it's all of the answers! Abbrieviations to define: ACTH - Adrenoco...

CalfeeChick

CommunityAmbassador•7 years ago

9 Replies

Aren't We Fascinating?

There are too many down sides to MS, but it occurred to me the other day that there is no other disease quite like ours! Say what you will about us, we are...

There are too many down sides to MS, but it occurred to me the other day that th...

greaterexp

•7 years ago

16 Replies

Location, location, location

I'm brand new to this community, but definitely not new to MS. I'm super lucky because my lesions cause pain in my legs 24/7. I recently traveled to Savannah,...

I'm brand new to this community, but definitely not new to MS. I'm super lucky b...

Horsegirlforever

•7 years ago

11 Replies

Done at urgent care

They did blood work and chest xrays. All came back ok. No pneumonia. Gave me a breathing treatment. Just gotta get prescriptions now. They treating it as an...

They did blood work and chest xrays. All came back ok. No pneumonia. Gave me a b...

Midgey_Midge06

•7 years ago

24 Replies

Ocrevus patient

Hi I’m Tammy! I’m currently on Ocrevus. Anyone else on this med and if so, how are you doing?

Hi I’m Tammy! I’m currently on Ocrevus. Anyone else on this med and if so, how a...

THalcomb

•7 years ago

21 Replies

On my way to urgent care

Cuz my fiancé gave me his chest cold. And i was just in the hospital for pneumonia in September. Not doing that again. No way no how 😜

Cuz my fiancé gave me his chest cold. And i was just in the hospital for pneumon...

Midgey_Midge06

•7 years ago

19 Replies

My world!

My 2.5 year old had school pictures this week. Oh my heart! This is why I must fight this monster. ❤️❤️❤️❤️

My 2.5 year old had school pictures this week. Oh my heart! This is why I must f...

Qt314grl

•7 years ago

18 Replies

Progressive Forms of MS

Someone mentioned that there doesn't seem to be much information available for those with progressive forms of the disease. John at MSAA was kind enough to...

Someone mentioned that there doesn't seem to be much information available for t...

greaterexp

•7 years ago

6 Replies

Why Your Pharmacist Can’t Tell You That $20 Prescription Could Cost Only $8

Came across this article today: https://mobile.nytimes.com/2018/02/24/us/politics/pharmacy-benefit-managers-gag-clauses.html?referer=

Came across this article today: https://mobile.nytimes.com/2018/02/24/us/politic...

bxrmom

•7 years ago

6 Replies

My husband has been having an emotional affair.

I recently found out that my husband has been texting and calling a female coworker since last June. I am heartbroken! We have been married for 25 years and...

I recently found out that my husband has been texting and calling a female cowor...

Wizardsmom

•7 years ago

50 Replies

Bad head cold and MS

Luckily this has been my first cold since MS diagnosis. Do others feel more tingling and numbness than "normal". Thank you in advance for sharing

Luckily this has been my first cold since MS diagnosis. Do others feel more ting...

LY63

•7 years ago

6 Replies

Copaxone 40 mg to generic Glatopa 50 mg? How did the transition work for you?

My insurance is wanting me to switch from Copaxone 40mg 3x/wk to the generic version, Glatopa 3x/wk. If you've been made to switch, how did it go? Side...

My insurance is wanting me to switch from Copaxone 40mg 3x/wk to the generic ver...

Kokomo26

•7 years ago

3 Replies

Good news today

Well I'm going to start back at work on 25 hrs per week the first week in April. Occupational health physio saw me before my meeting at work this morning and...

Well I'm going to start back at work on 25 hrs per week the first week in April....

janetb1968

•7 years ago

7 Replies

PC Crashed

I will be on checking in with you all as I can from the laptop and library pc. Right now, I've got to take apart the desktop and get it in for repair. Also...

I will be on checking in with you all as I can from the laptop and library pc. ...

CalfeeChick

CommunityAmbassador•7 years ago

18 Replies

Guess what I just heard!

I just heard for the weather on Friday. We might have a Nor'Easter, well my MS is going to be messing with my legs. Hopefully they are wrong but lately they...

I just heard for the weather on Friday. We might have a Nor'Easter, well my MS ...

ssdw1958

•7 years ago

5 Replies

Disability Insurance

Disability Insurance??? Hi everyone. I’m on sick leave from my teaching job I have taught k-5 for 20 years. I fell last year in classroom with 22 students...

Disability Insurance??? Hi everyone. I’m on sick leave from my teaching job I ...

Tracy79

•7 years ago

30 Replies

Blessed Sunday to all.....Has my MS Family considered what side of the bod they should sleep on, left or right?Google is a must..

Tell what you find.One study was that the brain gets toxins out during sleep(less plaque?) and sleep left side...Anyone else have a survey or knowledge on...

Tell what you find.One study was that the brain gets toxins out during sleep(les...

jackiesj

•7 years ago

22 Replies

Supplements!

Cleaning out my supplements drawer, it’s like an aisle at Holland & Barratt lol😂

Cleaning out my supplements drawer, it’s like an aisle at Holland & Barratt lol�...

Peetzil

•7 years ago

6 Replies

What did it feel like when you started to have difficulty walking?

Every once in a while I get both pain and numbness in my foot and leg. I go to bed thinking, "Is this the beginning of foot drop? Will I wake up and I can't...

Every once in a while I get both pain and numbness in my foot and leg. I go to ...

Kokomo26

•7 years ago

7 Replies

What to do with remaining supply?

I went off of ampyra but still have a 90 day supply of unopened bottles. Seems like a waste to just throw it away.

I went off of ampyra but still have a 90 day supply of unopened bottles. Seems l...

Mdernirishman13

•7 years ago

12 Replies

Getting back up after a fall

Obviously they can't be used by everyone under all circumstances, but these may come in handy for some of us. I hope you find at least one helpful tip....

Obviously they can't be used by everyone under all circumstances, but these may ...

greaterexp

•7 years ago

8 Replies

Shrubs confused?

Do these shrubs realize it’s only February 24? That what our beautiful weather the last few weeks have done. My Bradford pears are blooming also. It been in...

Do these shrubs realize it’s only February 24? That what our beautiful weather t...

Doubled51

•7 years ago

22 Replies

Donation Condolences ?

So my son for Christmas donated $200 to the National Multiple Sclerosis Society in my name, which is a beautiful gesture and I love him for it. But then I...

So my son for Christmas donated $200 to the National Multiple Sclerosis Society ...

pmbevac

•7 years ago

14 Replies

MSAA's Relapse Management Meeting

https://cc.readytalk.com/registration/#/?meeting=to23gfqaar1y&campaign=qlovrd04610i

https://cc.readytalk.com/registration/#/?meeting=to23gfqaar1y&campaign=qlovrd046...

greaterexp

•7 years ago

5 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for February 2018

Relapse Management – My MSAA Community Ask Me Anything

For Newbies, Families, and Everyone

Could this be a MS hug?

Location

administrative question

Black seed oil

Answers to the Abbrieviations Quizzes

Aren't We Fascinating?

Location, location, location

Done at urgent care

Ocrevus patient

On my way to urgent care

My world!

Progressive Forms of MS

Why Your Pharmacist Can’t Tell You That $20 Prescription Could Cost Only $8

My husband has been having an emotional affair.

Bad head cold and MS

Copaxone 40 mg to generic Glatopa 50 mg? How did the transition work for you?

Good news today

PC Crashed

Guess what I just heard!

Disability Insurance

Blessed Sunday to all.....Has my MS Family considered what side of the bod they should sleep on, left or right?Google is a must..

Supplements!

What did it feel like when you started to have difficulty walking?

What to do with remaining supply?

Getting back up after a fall

Shrubs confused?

Donation Condolences ?

MSAA's Relapse Management Meeting

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