busy week: MRI, spinal tab, scheduling Ocrevus and more

[anaishunter]

After all the stress and runaround of trying to get insurance approval to schedule my 2nd Ocrevus treatment, I finally had a week with some good news and progress. -

I had a full MRI on Thursday (brain +spine) along with many other tests (blood samples, eye nerve check, neuro test, cognitive test, spinal tap and more) as part of the research study I signed for (EPIC, reports come out on it on a regular basis - you might have seen some of them).

The good news: the neuro emailed me today to tell me that my MRI looked stable.

I aced the cognitive test. But I think that by now I can cheat because I know what to expect and I have a "method" to do as good as I can.

The saga on getting Ocrevus approved by UHC continues. Hard to imagine that someone could create such a convoluted process. After several hours on the phone, it appears that the specialty pharmacy is ready to ship the medicine to the doctor's office where I'll have the infusion. And I'm scheduled to have it next Friday if, only if, the medicine arrives on time and everything else is correct. Keeping my fingers crossed...

Once this is all over, I'll write this down. I also want to do something to make this whole process better. I'm quite sure yet how. But I have to do something about it.

[jimeka]

Pleased your week was productive but why the spinal tap, if they have already confirmed ms? Hope the Ocrevus goes to plan, keep us posted please, Blessings Jimeka 🤗

[anaishunter in reply to jimeka]

The spinal tap was part of the research but not needed per say as I was diagnosed in May2018.

I must say it was painless, a bit long but uneventful. I had a headache today but it dissipated by the end of the day.

[bxrmom in reply to anaishunter]

Glad your tests all went well and that the headache went away pretty quickly. When I had my spinal done, I had a headache for days and had to have a blood patch done to relieve it. Nobody could pay me enough money to do that again.

[Kenu]

Good for you 👍 sounds like you are on a roll 🙏😉 Ken 🐾🐾

[rjoneslaw]

great you will love o.

congrads on the results

[IFwczs]

It's great to hear about your progress and positive developments!

[Hidden]

I read your post . I might get or not on ocravious and I am worride about the health coverage. I am on medicare as well as ghior emblem health. I tried to get information and it was kind of a circular proposition: one entity sending me to another for answers..needless to say I got nothing in this excercise of futility! I wae diagnose about your age, a little earlier I guess. Can you help me with my costs predicaments?