Posts - My MSAA Community | HealthUnlocked

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9,644 members•21,520 posts

All posts for September 2024

Life is good

I've been trying not to stress about Friday's surgery while also getting my house in order, just in case there are complications. Then I got an unexpected...

I've been trying not to stress about Friday's surgery while also getting my hous...

NorasMom

•6 months ago

14 Replies

Short Post 30Sep 2024

Dearest Relapsing Remitting ms (RRms) family. Today is my Monday, whatever day it is for YOU as always look at it with a smile. Go forth with strength and...

Dearest Relapsing Remitting ms (RRms) family. Today is my Monday, whatever day...

RoyceNewton

•6 months ago

4 Replies

False call 🫣

Got a quick update from Kia, the place I'm getting the car from and, rather than the 2nd, it'll be ready on the 7th 🤷‍♀️ happy that I can get it less than a...

Got a quick update from Kia, the place I'm getting the car from and, rather than...

Cwright170994

•6 months ago

7 Replies

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Hurricane update

I want to thank everyone for their kind words. Power was restored yesterday afternoon to our street. We can now leave our home. Can’t thank the line men...

I want to thank everyone for their kind words. Power was restored yesterday afte...

bulldogman

•6 months ago

9 Replies

FES Device

Has anyone tried an FES device? I have foot drop and was wondering if it's worth trying. Any recommendations are appreciated.

Has anyone tried an FES device? I have foot drop and was wondering if it's worth...

Mosmom33

•6 months ago

3 Replies

Delayed posts

I can't keep quiet about this anymore, but I know I'm not losing my mind. I've noticed that many (most?) of the new posts on this site don't appear on my...

I can't keep quiet about this anymore, but I know I'm not losing my mind. I've ...

NorasMom

•6 months ago

12 Replies

Unwanted Private Message

I have been getting messages from someone who doesn’t even know what MS is! How do I block him? Thank you.Kelly

I have been getting messages from someone who doesn’t even know what MS is! How ...

Amore55

•6 months ago

16 Replies

Short post For everybody,

It is Sunday where I am so have a nice quiet boring day. Your troubles will be there tomorrow, but today have a good day. Royce👍

It is Sunday where I am so have a nice quiet boring day. Your troubles will b...

RoyceNewton

•6 months ago

3 Replies

PIP and Motability win!

I know very much about how I should have taken up getting a car when the government awarded me that part: I was fine with my now-husband's car (I can't...

I know very much about how I should have taken up getting a car when the governm...

Cwright170994

•6 months ago

29 Replies

Short post 4 Daily Stoic

Sisters and Brothers of the elapsing Remitting ms (RRms) world. YOU may be a NEWBIE new to this ms world or an old hand. I might recommend Stoicism as a...

Sisters and Brothers of the elapsing Remitting ms (RRms) world. YOU may be a N...

RoyceNewton

•6 months ago

1 Reply

Short post For Newbies

Relapsing Rermitting ms (RRms) Sisters and Brothers. Newly Diagnosed ( newbie), stop crying here is some reality. YOU have a chronic incurable condition,...

Relapsing Rermitting ms (RRms) Sisters and Brothers. Newly Diagnosed ( newbie...

RoyceNewton

•6 months ago

4 Replies

More prayers, please

Since we seem to be on a roll here -- My neighbor stopped by today for a chat in between raindrops. He hobbles around because they're removing parts of his...

Since we seem to be on a roll here -- My neighbor stopped by today for a chat i...

NorasMom

•6 months ago

15 Replies

Miss MS?

A lot of people have asked what my lycra bodysuit is, and what it looks like. I've got the top, bottoms, and socks on. Had my husband take this pic 😁 feeling...

A lot of people have asked what my lycra bodysuit is, and what it looks like. I'...

Cwright170994

•6 months ago

39 Replies

Free Covid Tests are Now Available from the Government

The site is live! https://special.usps.com/testkits

CatsandCars

•6 months ago

19 Replies

MS flares and hiccups....

just as i seem to be out of major suffering virus comes back to slash me back. by the time im up from that it is overwhelming start to look outside my door at...

just as i seem to be out of major suffering virus comes back to slash me back. ...

jackiesj

•6 months ago

5 Replies

High-Dose Vitamin D Linked to Lower Disease Activity in CIS

High-dose oral cholecalciferol (vitamin D3) supplementation significantly reduces evidence of disease activity in patients with clinically isolated syndrome...

High-dose oral cholecalciferol (vitamin D3) supplementation significantly reduce...

BettysMom

•6 months ago

4 Replies

Attention: Cat Owners

As some of you may remember, I rescued another Tuxedo kitty in July of this year. He is mostly black and was named Boston, but I call him Bossy baby brother,...

As some of you may remember, I rescued another Tuxedo kitty in July of this year...

donna0329

•6 months ago

14 Replies

25 Sep 2024

Dearest Sisters and Brothers, I have tonbe absent awhile. Having some annoying Trigeminal and Bladder issues. No rest for the wicked and here I hear I...

Dearest Sisters and Brothers, I have tonbe absent awhile. Having some annoyi...

RoyceNewton

•6 months ago

17 Replies

'About MS' Publication

MSAA has published a comprehensive, easy-to-read, and completely revised 3rd edition of About MS, a free booklet covering extensive information on...

MSAA has published a comprehensive, easy-to-read, and completely revised 3rd edi...

DanaMSAA

Partner•6 months ago

3 Replies

Credit Card Company Abusive Practice Alert

I wanted to share a recent experience so that you, my friends, can keep an eye out for yourselves. I recently got a bill for a store charge card, and at the...

I wanted to share a recent experience so that you, my friends, can keep an eye o...

CatsandCars

•6 months ago

33 Replies

Post-COVID

Hi there, I need some advice and help. My mom has multiple sclerosis and recently went through COVID, which led to post-COVID viral meningitis. Her legs are...

Hi there, I need some advice and help. My mom has multiple sclerosis and recent...

why_today

•6 months ago

18 Replies

C'mon over!

I could never do this!😂😂😂

falalalala

•6 months ago

47 Replies

Prayers needed. Again. Or still.

So, Aunt Peggy has a possibly-cancerous growth on her sole remaining kidney. I wrote about it some weeks ago when it all seemed so simple. Her doctor still...

So, Aunt Peggy has a possibly-cancerous growth on her sole remaining kidney. I ...

NorasMom

•6 months ago

15 Replies

Remember…it’s not always MS

For 2 months I kept telling myself that the reason I was feeling so bad was because of my MS. I just kept pushing along, doing all of the things I wanted to...

For 2 months I kept telling myself that the reason I was feeling so bad was beca...

Amore55

•6 months ago

45 Replies

McDonald Criteria Revisions Signal Shift Toward MS as a Biologically Based Disease

An upcoming revised version of the McDonald diagnostic criteria for multiple sclerosis (MS) will include new MS biomarkers, a panel of experts said....

An upcoming revised version of the McDonald diagnostic criteria for multiple scl...

BettysMom

•6 months ago

5 Replies

trigeminal neuralgia, lhermitte's?

for those who suffer with trigeminal neuralgia and/or lhermitte's, can you tell me if you know what this is? i''m familiar with stabbing face pain,...

for those who suffer with trigeminal neuralgia and/or lhermitte's, can you tell ...

Blanketttime1

•6 months ago

6 Replies

Hospital Visit, So Fun!

I was in the hospital, but I am home now. Thankfully I didn’t need to have surgery, as I suspected I would. That was a big win. I was put on medication for the...

I was in the hospital, but I am home now. Thankfully I didn’t need to have surge...

Amore55

•6 months ago

21 Replies

Advice? I’m so scared.

This seems like such a nice group, I thought I’d ask your advice. I had my first Ocrevus infusion 6 months ago and just got my bill yesterday after insurance...

This seems like such a nice group, I thought I’d ask your advice. I had my firs...

KGrayiskindaok

•6 months ago

36 Replies

Novel Agent First to Slow Disability in Nonrelapsing Secondary MS

A new investigational drug has become the first agent to slow disability in patients with nonrelapsing secondary progressive multiple sclerosis...

A new investigational drug has become the first agent to slow disability in pat...

BettysMom

•6 months ago

12 Replies

written

How is it going, are you doing okay?

RoyceNewton

•6 months ago

10 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2024

Life is good

Short Post 30Sep 2024

False call 🫣

Hurricane update

FES Device

Delayed posts

Unwanted Private Message

Short post For everybody,

PIP and Motability win!

Short post 4 Daily Stoic

Short post For Newbies

More prayers, please

Miss MS?

Free Covid Tests are Now Available from the Government

MS flares and hiccups....

High-Dose Vitamin D Linked to Lower Disease Activity in CIS

Attention: Cat Owners

25 Sep 2024

'About MS' Publication

Credit Card Company Abusive Practice Alert

Post-COVID

C'mon over!

Prayers needed. Again. Or still.

Remember…it’s not always MS

McDonald Criteria Revisions Signal Shift Toward MS as a Biologically Based Disease

trigeminal neuralgia, lhermitte's?

Hospital Visit, So Fun!

Advice? I’m so scared.

Novel Agent First to Slow Disability in Nonrelapsing Secondary MS

written

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