Ocrevus

[mamaknits]

Has anyone been on Ocrevus for 2+ years? Do you notice any changes? How are you doing?

[rjoneslaw]

Have u been on it for 2 years?

[mamaknits in reply to rjoneslaw]

I just hit the beginning of my 3rd year.

[rjoneslaw in reply to mamaknits]

Like u this is my 2nd dx that I’ve been on, I was on Tecfidera b4 this. The hospital took me off it and told my dr to put me on Ocrevus.

Like u I’m RRMS but I haven’t really been out the house since Jan. I had 4 dr appt that I had to leave the house 4 because they were appts that couldn’t be done over the phone. It seemed like the dr emptied her office just 4 me because I was the only person there but when I was leaving several people were coming in.

I have 2 admit my doctors go out of their way 2 keep me healthy and get me healthy. Their 1st question to me is what questions do u have ? They know I have a list and last question to me at each appt what can I do for u? Or what do u need?

[twooldcrows]

been on since 2017 doing great feel better ...i feel that it has improved my way of walking and i can work outside longer ...the pain of the shots for so many years since 2004...two kinds and pill form of meds...this is so much better ...i go shopping after the infusion because it is given in a bigger city than where i live and has more shops and things ...i do enjoy taking it for back in 04 i had to use a cane all the time now only when i am tired or for a long distance and if even farther i just use my scooter ...nothing fancey just moves for me ...i hope you have a great experience with this infusion of Orevus... take care and make YOUR own choice not someone else's ...talk to your doctor and do some checking out other meds ...love and much happiness with your life with what ever YOU choice...

[kdali in reply to twooldcrows]

I love that you make it a shopping trip!

[twooldcrows in reply to kdali]

have to have some fun sometimes ....ahhhahha....love to go and don't get to the big city often enough plus now being retired don't have much for funds but it is still fun...

[Juliew19673]

Yes it's slow, but better. Keep in mind Ocrevus only STOPS the progressive nature of MS, it does not fix/cure MS.

[pamgarner]

yes, it has been 4 years,i believe it helps,with fatique weakness,makes me alittle stronger,but i can feel it when I am do the next,i like it

[Iona60]

2 1/2 yrs for me. My experiences vary from infusion to infusion. All in all, I am doing better and don't miss the shots.

[kdali]

I’m just here to bump up the post so it gets more responses 😬

[Neworleanslady]

Any concerns or issues regarding increased immunosuppression?

[mamaknits in reply to Neworleanslady]

I've come to realize that being on Ocrevus and being immunosuppressed is just another part of MS. I've been very careful since I started this medication, but have been super careful since COVID. I haven't left the house much since March.

[Goldilockssearching in reply to mamaknits]

Been on since Oct 2017 (first DMT ever so hard to judge what is/isn’t) but Neworleanslady I find I’ve been less sick-colds/flu bc I distanced myself from crowds & took precautions anyway even before dx or dmt.

[carolek572 CommunityAmbassador]

Welcome to this forum! Yes, mamaknits I have been on Ocrevus since February 2018. I have PP'ms', and progression has been slow. Ocrevus has been good to me but I am not sure if I can prove that unless I stop Ocrevus. I can count the number of times that I have been out of the house since March, and other than my husband, I have had no one in my house.

[mamaknits in reply to carolek572]

Thank you for replying. I am so glad this is working for you with PPMS! I have RRMS which is different I know. Ocrevus is the 2nd DMT I've tried. I'm grateful to have options, but I'm more grateful that there's a med out there for you too.

[carolek572 CommunityAmbassador in reply to mamaknits]

I am also grateful that there are many DMTs out there and one for PP'ms'. I look forward to hearing more from you, in this forum, mamaknits but in the meantime, Keep Smiling

[Andrea65]

I am doing great, it just wears off toward the end of the 4th month

[Andrea65 in reply to Andrea65]

Ocrevus is my 5th DMT, btw

[Spirit67]

I've been on Ocrevus for about 3 years. The only fallback I get from it is that it seems to start wearing off after about month 4. This makes it difficult to get through the next two months until next infusion. I was on Gilenya, a daily capsule, for about 4-5 years. But I started getting small skin cancers and my neurologist believed this was a side effect from the Gilenya. So she switched me to the Ocrevus. No side effect so far.