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My MSAA Community

9,019 members • 20,711 posts

All posts for May 2021

Post 736 At last a new printer 31 May 2021

G’day my Relapsing-Remitting ms (RRms) family. Actually, I probably should say family shouldn’t I, in reality “YOU” understand me better than my biological...

G’day my Relapsing-Remitting ms (RRms) family. Actually, I probably should say...

•3 years ago

Cidp

Hii my name is subham chatterjee i am suffering from cidp i have also taken retuximab at 27 april and today is may 28 no improvement so far afterswitching of...

Hii my name is subham chatterjee i am suffering from cidp i have also taken retu...

•3 years ago

Knee replacement

I am having a lot of pain in my knees. I have an appointment with an orthopedic surgeon this month, and he may recommend knee replacement. However, I am also...

I am having a lot of pain in my knees. I have an appointment with an orthopedic...

•3 years ago

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Unnumbered Post Your path 30 May 2021

Family, good afternoon. "YOU" have ms, I have ms. We all have ms. I know of Relapsing-Remitting ms (RRms), it is what I have and what I know a little...

Family, good afternoon. "YOU" have ms, I have ms. We all have ms. I know o...

•3 years ago

Baclofin 20+ years.

Baclofin helps 100% I can't imagine life without it. However, I'm at the high end of dosage and will have to go to the Baclofin pump. 37 years...

Baclofin helps 100% I can't imagine life without it. However, I'm at the...

•3 years ago

MS World Day!!

Isn't it great a day named after all of us! I wish everyone good health and a great day! Warmly, Leslie

Isn't it great a day named after all of us! I wish everyone good health and a gr...

•3 years ago

Laugh of the day ☺️

🤪😜 Ken 🐾🐾🐾🐾

🤪😜 Ken 🐾🐾🐾🐾

•3 years ago

Sunday laugh

Have a great day👍🙏😉🤗🐾🐾Ken

Have a great day👍🙏😉🤗🐾🐾Ken

•3 years ago

Refuse to do anything

My son is bedriden with MS. He is cheerful, eats well and sleeps well. In his bed he refuses to work on his touch his swallowing, and speech. I have no clue...

My son is bedriden with MS. He is cheerful, eats well and sleeps well. In his b...

•3 years ago

Interview next morning 🤤

Have a great weekend 👍😉🐾🐾 ken

Have a great weekend 👍😉🐾🐾 ken

•3 years ago

thank you ALL

for all the kind words and thoughts and prayers,keep praying please.tues my hubby having heart cath and has to swallow a camera to take a picture of his valves...

for all the kind words and thoughts and prayers,keep praying please.tues my hubb...

•3 years ago

Laugh of the day 😊

Breakfast 🍳 time 🤣😂 Ken 🐾🐾👍

Breakfast 🍳 time 🤣😂 Ken 🐾🐾👍

•3 years ago

Laugh of the day ☺️

Have a good day 👍🙏😉 Ken 🐾🐾

Have a good day 👍🙏😉 Ken 🐾🐾

•3 years ago

my oh my

due to a fall i broke my upper rt arm,of course i am rt handed i will have surgery,lost my balance and trip into my lower kitchen cabinets with my whole body...

due to a fall i broke my upper rt arm,of course i am rt handed i will have surge...

•3 years ago

Unumbered post Nothing Special 27 May 2021

Hello, my ms family, I hope that all of "YOU" are well. Nothing unusual happening, same old same old, just plain boring. If it is "YOU" my ms sibling are...

Hello, my ms family, I hope that all of "YOU" are well. Nothing unusual happ...

•3 years ago

Lemtrada

Is anyone taking Lemtrada? What has been your experience with it and what type of MS do you have?

Is anyone taking Lemtrada? What has been your experience with it and what type ...

•3 years ago

Unnumbered Post Say something nice to yourself 25 May 2021

Beloved ms family. Today is Tuesday, I had to look that up, days are all the same to me. Retirement, what can I say:-) As always I wish the best for"YOU"...

Beloved ms family. Today is Tuesday, I had to look that up, days are all the s...

•3 years ago

DO I HAVE MS

I have had several falls in recent months. I have no body strength and my wife has to help me shower dress and sometimes help me get up from a chair. I can now...

I have had several falls in recent months. I have no body strength and my wife h...

•3 years ago

Unnumbered post About you only 24 May 2021

Just thinking about "YOU". "YOU" my ms sibling are a good person, believe that and live it. Do your absolute best to ignore others negativity and your...

Just thinking about "YOU". "YOU" my ms sibling are a good person, believe that...

•3 years ago

Little laughter 🤪

Have a great week 👍🙏😉🤗 Ken 🐾🐾

Have a great week 👍🙏😉🤗 Ken 🐾🐾

•3 years ago

Link between High Iron Levels and MS

Some of the solutions I’ve found for MS symptoms are so simple I want to scream... this is one of them. Has anyone else researched the link between high levels...

Some of the solutions I’ve found for MS symptoms are so simple I want to scream....

•3 years ago

Laugh of the day 😁

Have a wonderful day 👍🙏😉🤗 Ken 🐾🐾

Have a wonderful day 👍🙏😉🤗 Ken 🐾🐾

•3 years ago

Research Study on COVID-19 Vaccines in People with MS

For anyone who is interested: iConquerMS, a research community of people with MS supported by the nonprofit organization Accelerated Cure Project for MS is...

For anyone who is interested: iConquerMS, a research community of people with MS...

Partner•3 years ago

Spouse of someone living with MS

Hello, I hope I’m in the right place. I’m looking for an online support group for spouses of people with ms. My husband has ms and I am having a very hard time...

Hello, I hope I’m in the right place. I’m looking for an online support group fo...

•3 years ago

I am not MS but I have MS

Dear Fellow readers, something has been bubbling up for a while and I thought I would write about it here. I am not MS. Like I am not my body. If i lost a leg...

Dear Fellow readers, something has been bubbling up for a while and I thought I ...

•3 years ago

Another round of Ocrevus today - piece of cake

Just got my n-th infusion this morning. Drove myself to the facility and back. It went pretty fast as I'm only on a 1/2 dose. Benadryl put me to sleep,...

Just got my n-th infusion this morning. Drove myself to the facility and back. ...

•3 years ago

unnumbered post Today is good 20 May 2021

Good afternoon ms family. My wish today is for all of "YOU" to be well and content in your life. I am going through an Ear and Throat infection so fun...

Good afternoon ms family. My wish today is for all of "YOU" to be well and con...

•3 years ago

Baclofen

Is anyone taking baclofen? Is it helping? Do you have any side effects?

Is anyone taking baclofen? Is it helping? Do you have any side effects?

•3 years ago

Laugh of the day 😊

🤪😜😆🤣😂 Ken 🐾🐾

🤪😜😆🤣😂 Ken 🐾🐾

•3 years ago

The Real Deal of MS continues on Recumbent Bike

My accomplishment today riding on my recumbent bike. I focus on time and distance only, not calories, Lol. I’ve worked up to 17 minutes and 3.2 miles the last...

My accomplishment today riding on my recumbent bike. I focus on time and distanc...

•3 years ago

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